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  1. L

    family opinions????

    I think sometimes these responses are from ignorance, and sometimes they are a form of denial. My husband's sister is in complete denial about our children's diagnosis (she has refused to even get her kids tested to see if they are carriers). We have had several issues where she will show up...
  2. L

    family opinions????

    I think sometimes these responses are from ignorance, and sometimes they are a form of denial. My husband's sister is in complete denial about our children's diagnosis (she has refused to even get her kids tested to see if they are carriers). We have had several issues where she will show up...
  3. L

    family opinions????

    I think sometimes these responses are from ignorance, and sometimes they are a form of denial. My husband's sister is in complete denial about our children's diagnosis (she has refused to even get her kids tested to see if they are carriers). We have had several issues where she will show up...
  4. L

    family opinions????

    I think sometimes these responses are from ignorance, and sometimes they are a form of denial. My husband's sister is in complete denial about our children's diagnosis (she has refused to even get her kids tested to see if they are carriers). We have had several issues where she will show up...
  5. L

    family opinions????

    I think sometimes these responses are from ignorance, and sometimes they are a form of denial. <br /> <br />My husband's sister is in complete denial about our children's diagnosis (she has refused to even get her kids tested to see if they are carriers). We have had several issues where she...
  6. L

    Coping with CF & your job

    Evelyn, So far, I have been lucky, but I sure can relate to your concerns. My job (professor) gives me some autonomy and some flexibility, as thus far, hospitalizations (two daughters with CF) have hit mostly during times when I could safely 'disappear' without having to make special requests...
  7. L

    Coping with CF & your job

    Evelyn, So far, I have been lucky, but I sure can relate to your concerns. My job (professor) gives me some autonomy and some flexibility, as thus far, hospitalizations (two daughters with CF) have hit mostly during times when I could safely 'disappear' without having to make special requests...
  8. L

    Coping with CF & your job

    Evelyn, So far, I have been lucky, but I sure can relate to your concerns. My job (professor) gives me some autonomy and some flexibility, as thus far, hospitalizations (two daughters with CF) have hit mostly during times when I could safely 'disappear' without having to make special requests...
  9. L

    Coping with CF & your job

    Evelyn, So far, I have been lucky, but I sure can relate to your concerns. My job (professor) gives me some autonomy and some flexibility, as thus far, hospitalizations (two daughters with CF) have hit mostly during times when I could safely 'disappear' without having to make special requests...
  10. L

    Coping with CF & your job

    Evelyn, <br /> <br />So far, I have been lucky, but I sure can relate to your concerns. My job (professor) gives me some autonomy and some flexibility, as thus far, hospitalizations (two daughters with CF) have hit mostly during times when I could safely 'disappear' without having to make...
  11. L

    just got the news

    Welcome, Jenifer. Like, you I had a child diagnosed when she was older; she was five, and we did the test "just to rule it out." Everyone was sure it was not CF, because she gained weight, and did not have many of the symptoms of CF, other than a tendency to have colds escalate into infections...
  12. L

    just got the news

    Welcome, Jenifer. Like, you I had a child diagnosed when she was older; she was five, and we did the test "just to rule it out." Everyone was sure it was not CF, because she gained weight, and did not have many of the symptoms of CF, other than a tendency to have colds escalate into infections...
  13. L

    just got the news

    Welcome, Jenifer. Like, you I had a child diagnosed when she was older; she was five, and we did the test "just to rule it out." Everyone was sure it was not CF, because she gained weight, and did not have many of the symptoms of CF, other than a tendency to have colds escalate into infections...
  14. L

    just got the news

    Welcome, Jenifer. Like, you I had a child diagnosed when she was older; she was five, and we did the test "just to rule it out." Everyone was sure it was not CF, because she gained weight, and did not have many of the symptoms of CF, other than a tendency to have colds escalate into infections...
  15. L

    just got the news

    Welcome, Jenifer. Like, you I had a child diagnosed when she was older; she was five, and we did the test "just to rule it out." Everyone was sure it was not CF, because she gained weight, and did not have many of the symptoms of CF, other than a tendency to have colds escalate into infections...
  16. L

    Trying find a mechanical chest percussion device for my cousin with CF.

    I am afraid I don't know the details, I do recall others posting here that the makers of the VEST had programs to help families that cannot afford the VEST because they are not insured, or insurance will not cover it. I did not see anything about this on the website (www.thevest.com), but I...
  17. L

    Trying find a mechanical chest percussion device for my cousin with CF.

    I am afraid I don't know the details, I do recall others posting here that the makers of the VEST had programs to help families that cannot afford the VEST because they are not insured, or insurance will not cover it. I did not see anything about this on the website (www.thevest.com), but I...
  18. L

    Trying find a mechanical chest percussion device for my cousin with CF.

    I am afraid I don't know the details, I do recall others posting here that the makers of the VEST had programs to help families that cannot afford the VEST because they are not insured, or insurance will not cover it. I did not see anything about this on the website (www.thevest.com), but I...
  19. L

    Trying find a mechanical chest percussion device for my cousin with CF.

    I am afraid I don't know the details, I do recall others posting here that the makers of the VEST had programs to help families that cannot afford the VEST because they are not insured, or insurance will not cover it. I did not see anything about this on the website (www.thevest.com), but I...
  20. L

    Trying find a mechanical chest percussion device for my cousin with CF.

    I am afraid I don't know the details, I do recall others posting here that the makers of the VEST had programs to help families that cannot afford the VEST because they are not insured, or insurance will not cover it. <br /> <br />I did not see anything about this on the website...
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