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  1. L

    I thought 30 was normal?!

    Most people think of CF genes as a recessive; you have to have both to have any symptoms. In fact, there is a lot of evidence that many carriers (people with only one gene) have milder conditions that are related to CF. So in my family, we have lots of sinus issues. In my husband's family...
  2. L

    I thought 30 was normal?!

    Most people think of CF genes as a recessive; you have to have both to have any symptoms. In fact, there is a lot of evidence that many carriers (people with only one gene) have milder conditions that are related to CF. So in my family, we have lots of sinus issues. In my husband's family...
  3. L

    I thought 30 was normal?!

    Most people think of CF genes as a recessive; you have to have both to have any symptoms. In fact, there is a lot of evidence that many carriers (people with only one gene) have milder conditions that are related to CF. So in my family, we have lots of sinus issues. In my husband's family...
  4. L

    I thought 30 was normal?!

    Most people think of CF genes as a recessive; you have to have both to have any symptoms. In fact, there is a lot of evidence that many carriers (people with only one gene) have milder conditions that are related to CF. So in my family, we have lots of sinus issues. In my husband's family...
  5. L

    I thought 30 was normal?!

    Most people think of CF genes as a recessive; you have to have both to have any symptoms. In fact, there is a lot of evidence that many carriers (people with only one gene) have milder conditions that are related to CF. So in my family, we have lots of sinus issues. In my husband's family...
  6. L

    My 4 year old...help, please

    Many pediatricians still think of CF in ways that don't mirror what we know now about the disease. There are MANY variant ways the disease expresses, and so if there is ANY question, CF should be ruled out. My own daughters both presented atypically. My oldest was diagnosed with asthma for...
  7. L

    My 4 year old...help, please

    Many pediatricians still think of CF in ways that don't mirror what we know now about the disease. There are MANY variant ways the disease expresses, and so if there is ANY question, CF should be ruled out. My own daughters both presented atypically. My oldest was diagnosed with asthma for...
  8. L

    My 4 year old...help, please

    Many pediatricians still think of CF in ways that don't mirror what we know now about the disease. There are MANY variant ways the disease expresses, and so if there is ANY question, CF should be ruled out. My own daughters both presented atypically. My oldest was diagnosed with asthma for...
  9. L

    My 4 year old...help, please

    Many pediatricians still think of CF in ways that don't mirror what we know now about the disease. There are MANY variant ways the disease expresses, and so if there is ANY question, CF should be ruled out. My own daughters both presented atypically. My oldest was diagnosed with asthma for...
  10. L

    My 4 year old...help, please

    Many pediatricians still think of CF in ways that don't mirror what we know now about the disease. There are MANY variant ways the disease expresses, and so if there is ANY question, CF should be ruled out. My own daughters both presented atypically. My oldest was diagnosed with asthma for...
  11. L

    I thought 30 was normal?!

    As Melissa notes, the sweat test is not always determinant, especially with some variants of the disease. Both of my girls have CF; one tested borderline (49) and the other tested normal (11). On genetic testing (the full Ambry panel), both had an atypical form of CF. However, their symptoms...
  12. L

    I thought 30 was normal?!

    As Melissa notes, the sweat test is not always determinant, especially with some variants of the disease. Both of my girls have CF; one tested borderline (49) and the other tested normal (11). On genetic testing (the full Ambry panel), both had an atypical form of CF. However, their symptoms...
  13. L

    I thought 30 was normal?!

    As Melissa notes, the sweat test is not always determinant, especially with some variants of the disease. Both of my girls have CF; one tested borderline (49) and the other tested normal (11). On genetic testing (the full Ambry panel), both had an atypical form of CF. However, their symptoms...
  14. L

    I thought 30 was normal?!

    As Melissa notes, the sweat test is not always determinant, especially with some variants of the disease. Both of my girls have CF; one tested borderline (49) and the other tested normal (11). On genetic testing (the full Ambry panel), both had an atypical form of CF. However, their symptoms...
  15. L

    I thought 30 was normal?!

    As Melissa notes, the sweat test is not always determinant, especially with some variants of the disease. Both of my girls have CF; one tested borderline (49) and the other tested normal (11). On genetic testing (the full Ambry panel), both had an atypical form of CF. However, their symptoms...
  16. L

    have you or your child ever had sinus surgery?

    Hi, Casey. My youngest (4) just had her surgery a month ago. She also had her adeneoids out as well. She had the surgery as an outpatient procedure. We brought her in early, she had the sedation, then, as others said, they drained out the sinuses. In her case, they also tried to open up the...
  17. L

    have you or your child ever had sinus surgery?

    Hi, Casey. My youngest (4) just had her surgery a month ago. She also had her adeneoids out as well. She had the surgery as an outpatient procedure. We brought her in early, she had the sedation, then, as others said, they drained out the sinuses. In her case, they also tried to open up the...
  18. L

    have you or your child ever had sinus surgery?

    Hi, Casey. My youngest (4) just had her surgery a month ago. She also had her adeneoids out as well. She had the surgery as an outpatient procedure. We brought her in early, she had the sedation, then, as others said, they drained out the sinuses. In her case, they also tried to open up the...
  19. L

    have you or your child ever had sinus surgery?

    Hi, Casey. My youngest (4) just had her surgery a month ago. She also had her adeneoids out as well. She had the surgery as an outpatient procedure. We brought her in early, she had the sedation, then, as others said, they drained out the sinuses. In her case, they also tried to open up the...
  20. L

    have you or your child ever had sinus surgery?

    Hi, Casey. My youngest (4) just had her surgery a month ago. She also had her adeneoids out as well. She had the surgery as an outpatient procedure. We brought her in early, she had the sedation, then, as others said, they drained out the sinuses. In her case, they also tried to open up the...
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