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  1. M

    still waiting, good or bad?

    They said that the test results should be back in two weeks well it's been two weeks and nothing has come back. I continue to wonder if this is a good indicator or bad? I just wonder if I am being TOOOOO impatient and unreasonable at the same time. Our genetic testing was being sent to...
  2. M

    still waiting, good or bad?

    They said that the test results should be back in two weeks well it's been two weeks and nothing has come back. I continue to wonder if this is a good indicator or bad? I just wonder if I am being TOOOOO impatient and unreasonable at the same time. Our genetic testing was being sent to...
  3. M

    still waiting, good or bad?

    They said that the test results should be back in two weeks well it's been two weeks and nothing has come back. I continue to wonder if this is a good indicator or bad? I just wonder if I am being TOOOOO impatient and unreasonable at the same time. Our genetic testing was being sent to...
  4. M

    My peditrician says it's not reflux because my daughter doesn't seem to be in pain?

    Thanks everyone sure is a relief to know that I'm not crazy I had never ever had anyone talk about a baby being in visable pain because of reflux, sure it is probably possible but not the case for every baby. She spits up what makes for a good puddle frq after a feeding...even if she has burped...
  5. M

    My peditrician says it's not reflux because my daughter doesn't seem to be in pain?

    Thanks everyone sure is a relief to know that I'm not crazy I had never ever had anyone talk about a baby being in visable pain because of reflux, sure it is probably possible but not the case for every baby. She spits up what makes for a good puddle frq after a feeding...even if she has burped...
  6. M

    My peditrician says it's not reflux because my daughter doesn't seem to be in pain?

    Thanks everyone sure is a relief to know that I'm not crazy I had never ever had anyone talk about a baby being in visable pain because of reflux, sure it is probably possible but not the case for every baby. She spits up what makes for a good puddle frq after a feeding...even if she has burped...
  7. M

    My peditrician says it's not reflux because my daughter doesn't seem to be in pain?

    Can any of you who's little ones under 2 months seemed to be in obvious pain because of the reflux or did they just spit up freq no matter how many times you burped them?
  8. M

    My peditrician says it's not reflux because my daughter doesn't seem to be in pain?

    Can any of you who's little ones under 2 months seemed to be in obvious pain because of the reflux or did they just spit up freq no matter how many times you burped them?
  9. M

    My peditrician says it's not reflux because my daughter doesn't seem to be in pain?

    Can any of you who's little ones under 2 months seemed to be in obvious pain because of the reflux or did they just spit up freq no matter how many times you burped them?
  10. M

    ok, im confused! (posted in adults also)

    sorry, but it doesnt say they didnt live past age 18 only that only thirty five percent a decade ago reached 18 yrs now that percentage is 47 percent a ten percent incrs in the number who reach eighteen yrs of age. this seems like a positive thing to me! no contradiction i can see... hope...
  11. M

    ok, im confused! (posted in adults also)

    sorry, but it doesnt say they didnt live past age 18 only that only thirty five percent a decade ago reached 18 yrs now that percentage is 47 percent a ten percent incrs in the number who reach eighteen yrs of age. this seems like a positive thing to me! no contradiction i can see... hope...
  12. M

    ok, im confused! (posted in adults also)

    sorry, but it doesnt say they didnt live past age 18 only that only thirty five percent a decade ago reached 18 yrs now that percentage is 47 percent a ten percent incrs in the number who reach eighteen yrs of age. this seems like a positive thing to me! no contradiction i can see... hope...
  13. M

    can anyone tell me?

    it is a soy formula nothing else has been done, it's white and still looks like cuddled milk but OH MY GOSH THE SMELL!! and she is pooping and it is very formed for age it is like a limey green color but smells horrible mayb its just the formula... mlag
  14. M

    can anyone tell me?

    it is a soy formula nothing else has been done, it's white and still looks like cuddled milk but OH MY GOSH THE SMELL!! and she is pooping and it is very formed for age it is like a limey green color but smells horrible mayb its just the formula... mlag
  15. M

    can anyone tell me?

    it is a soy formula nothing else has been done, it's white and still looks like cuddled milk but OH MY GOSH THE SMELL!! and she is pooping and it is very formed for age it is like a limey green color but smells horrible mayb its just the formula... mlag
  16. M

    can anyone tell me?

    We are waiting on the genetic testing results but in the meantime I'm noticing that my little ones spit up smells like vomit... and her poop well it smells like dog poop... is this normal??? She seems to be okay isn't really fussy or anything...but the smells are horrible... I am also under the...
  17. M

    can anyone tell me?

    We are waiting on the genetic testing results but in the meantime I'm noticing that my little ones spit up smells like vomit... and her poop well it smells like dog poop... is this normal??? She seems to be okay isn't really fussy or anything...but the smells are horrible... I am also under the...
  18. M

    can anyone tell me?

    We are waiting on the genetic testing results but in the meantime I'm noticing that my little ones spit up smells like vomit... and her poop well it smells like dog poop... is this normal??? She seems to be okay isn't really fussy or anything...but the smells are horrible... I am also under the...
  19. M

    Welcome Ambry Genetics

    Hi Steve, I had posted earlier and you recommended the seq. testing which is now being done blood sample was taken today... should have results in two weeks. Although I didn't know this when I originally posted to you they already found one mutation, in Fl they test for 35 of the most...
  20. M

    deltaf508 found doing sequencing testing

    Hi Everyone,, So my daughter did not sweat enough for the second sweat test and will have to go back for another in four weeks. After the elevated IRT she was given a test that covers 35 poss. mutations... most common or more common of the cf mutations. She on that test came back with the...
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