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  1. B

    pseudomonas and staph

    I am still having trouble with the Tobi in the nebulizer. It takes her 45min to get it all. I went through my paperwork that came with her nebulizer, and cups, and as I was reading I found in the info that you were supposed to take the cap off the top of the cup if you were using the fish mask...
  2. B

    Piper is up again!

    sending prayers and positive vibes your way!
  3. B

    Piper is up again!

    sending prayers and positive vibes your way!
  4. B

    Piper is up again!

    sending prayers and positive vibes your way!
  5. B

    Piper is up again!

    sending prayers and positive vibes your way!
  6. B

    Piper is up again!

    sending prayers and positive vibes your way!
  7. B

    pseudomonas and staph

    Thanks so much for the encouraging replies! We finally got the Tobi on Wed. after waiting for a prior auth from insurance. But glad we got that! YIKES! That stuff is expensive! I had no idea! Hadley has been doing great with the treatments. I even got her to wear the mask!!!! This is huge for us...
  8. B

    pseudomonas and staph

    Thanks so much for the encouraging replies! We finally got the Tobi on Wed. after waiting for a prior auth from insurance. But glad we got that! YIKES! That stuff is expensive! I had no idea! Hadley has been doing great with the treatments. I even got her to wear the mask!!!! This is huge for us...
  9. B

    pseudomonas and staph

    Thanks so much for the encouraging replies! We finally got the Tobi on Wed. after waiting for a prior auth from insurance. But glad we got that! YIKES! That stuff is expensive! I had no idea! Hadley has been doing great with the treatments. I even got her to wear the mask!!!! This is huge for us...
  10. B

    pseudomonas and staph

    Thanks so much for the encouraging replies! We finally got the Tobi on Wed. after waiting for a prior auth from insurance. But glad we got that! YIKES! That stuff is expensive! I had no idea! Hadley has been doing great with the treatments. I even got her to wear the mask!!!! This is huge for us...
  11. B

    pseudomonas and staph

    Thanks so much for the encouraging replies! We finally got the Tobi on Wed. after waiting for a prior auth from insurance. But glad we got that! YIKES! That stuff is expensive! I had no idea! Hadley has been doing great with the treatments. I even got her to wear the mask!!!! This is huge for us...
  12. B

    Fitting treatments into the day

    Ashley- Sounds like its all going well for you! I just wanted to reply and say that we are in the same boat right now. Just started Cipro twice a day and Tobi. This is our first time for tobi too! My daughter has been doing better than I expected with it. I was just going to tell you our routine...
  13. B

    Fitting treatments into the day

    Ashley- Sounds like its all going well for you! I just wanted to reply and say that we are in the same boat right now. Just started Cipro twice a day and Tobi. This is our first time for tobi too! My daughter has been doing better than I expected with it. I was just going to tell you our routine...
  14. B

    Fitting treatments into the day

    Ashley- Sounds like its all going well for you! I just wanted to reply and say that we are in the same boat right now. Just started Cipro twice a day and Tobi. This is our first time for tobi too! My daughter has been doing better than I expected with it. I was just going to tell you our routine...
  15. B

    Fitting treatments into the day

    Ashley- Sounds like its all going well for you! I just wanted to reply and say that we are in the same boat right now. Just started Cipro twice a day and Tobi. This is our first time for tobi too! My daughter has been doing better than I expected with it. I was just going to tell you our routine...
  16. B

    Fitting treatments into the day

    Ashley- <br />Sounds like its all going well for you! I just wanted to reply and say that we are in the same boat right now. Just started Cipro twice a day and Tobi. This is our first time for tobi too! My daughter has been doing better than I expected with it. I was just going to tell you our...
  17. B

    pseudomonas and staph

    I got a phone call this morning with not very good news. Hadley was seen at CF clinic last week for her 3mo checkup and yearly lab. They had recieved the throat cultures back and said that she cultured pseudomonas and staph! This is the first time that she has cultured these and it is scary to...
  18. B

    pseudomonas and staph

    I got a phone call this morning with not very good news. Hadley was seen at CF clinic last week for her 3mo checkup and yearly lab. They had recieved the throat cultures back and said that she cultured pseudomonas and staph! This is the first time that she has cultured these and it is scary to...
  19. B

    pseudomonas and staph

    I got a phone call this morning with not very good news. Hadley was seen at CF clinic last week for her 3mo checkup and yearly lab. They had recieved the throat cultures back and said that she cultured pseudomonas and staph! This is the first time that she has cultured these and it is scary to...
  20. B

    pseudomonas and staph

    I got a phone call this morning with not very good news. Hadley was seen at CF clinic last week for her 3mo checkup and yearly lab. They had recieved the throat cultures back and said that she cultured pseudomonas and staph! This is the first time that she has cultured these and it is scary to...
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