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  1. B

    pseudomonas and staph

    I got a phone call this morning with not very good news. Hadley was seen at CF clinic last week for her 3mo checkup and yearly lab. They had recieved the throat cultures back and said that she cultured pseudomonas and staph! This is the first time that she has cultured these and it is scary to...
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    GREAT STRIDES TIPS

    This is just our second year participating in Great Strides. Our team had good success with having a bake sale outside of Walmart the weekend before Easter. Lots of people bought treats for easter baskets. Walmart will let you sign up and have something outside twice a year. We also talked to...
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    GREAT STRIDES TIPS

    This is just our second year participating in Great Strides. Our team had good success with having a bake sale outside of Walmart the weekend before Easter. Lots of people bought treats for easter baskets. Walmart will let you sign up and have something outside twice a year. We also talked to...
  4. B

    GREAT STRIDES TIPS

    This is just our second year participating in Great Strides. Our team had good success with having a bake sale outside of Walmart the weekend before Easter. Lots of people bought treats for easter baskets. Walmart will let you sign up and have something outside twice a year. We also talked to...
  5. B

    GREAT STRIDES TIPS

    This is just our second year participating in Great Strides. Our team had good success with having a bake sale outside of Walmart the weekend before Easter. Lots of people bought treats for easter baskets. Walmart will let you sign up and have something outside twice a year. We also talked to...
  6. B

    GREAT STRIDES TIPS

    This is just our second year participating in Great Strides. Our team had good success with having a bake sale outside of Walmart the weekend before Easter. Lots of people bought treats for easter baskets. Walmart will let you sign up and have something outside twice a year. We also talked to...
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    Fundraising for CF in tough economic times

    We have Papa John's pizza in our area....I'm not sure where all they are located...but they sold me 50 fundraising cards for a dollar a piece. We then sell them for $10 a piece. The cards have 16 little stickers on the back of them that the purchaser can buy one pizza and get one FREE ...16...
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    Synagis

    Hi! We have just finished fighting this battle with our insurance also. They first denied the synagis...but when my daughters CF doctor wrote a letter of medical necessity they then approved it. They also approved home health to come out and give it once a month. We do have to pay 20% copay on...
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    Synagis

    Hi! We have just finished fighting this battle with our insurance also. They first denied the synagis...but when my daughters CF doctor wrote a letter of medical necessity they then approved it. They also approved home health to come out and give it once a month. We do have to pay 20% copay on...
  10. B

    Synagis

    Hi! We have just finished fighting this battle with our insurance also. They first denied the synagis...but when my daughters CF doctor wrote a letter of medical necessity they then approved it. They also approved home health to come out and give it once a month. We do have to pay 20% copay on...
  11. B

    Synagis

    Hi! We have just finished fighting this battle with our insurance also. They first denied the synagis...but when my daughters CF doctor wrote a letter of medical necessity they then approved it. They also approved home health to come out and give it once a month. We do have to pay 20% copay on...
  12. B

    Synagis

    Hi! We have just finished fighting this battle with our insurance also. They first denied the synagis...but when my daughters CF doctor wrote a letter of medical necessity they then approved it. They also approved home health to come out and give it once a month. We do have to pay 20% copay on...
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    Hair Salons

    Thanks everyone for your replies and advice! My gut was telling me that it probably wasn't a good idea to take her along with me...but I just wanted to see what others experience was. Sometimes I just wonder if I am being overly cautious...probably not such a thing when your dealing with an...
  14. B

    Hair Salons

    Thanks everyone for your replies and advice! My gut was telling me that it probably wasn't a good idea to take her along with me...but I just wanted to see what others experience was. Sometimes I just wonder if I am being overly cautious...probably not such a thing when your dealing with an...
  15. B

    Hair Salons

    Thanks everyone for your replies and advice! My gut was telling me that it probably wasn't a good idea to take her along with me...but I just wanted to see what others experience was. Sometimes I just wonder if I am being overly cautious...probably not such a thing when your dealing with an...
  16. B

    Hair Salons

    Thanks everyone for your replies and advice! My gut was telling me that it probably wasn't a good idea to take her along with me...but I just wanted to see what others experience was. Sometimes I just wonder if I am being overly cautious...probably not such a thing when your dealing with an...
  17. B

    Hair Salons

    Thanks everyone for your replies and advice! My gut was telling me that it probably wasn't a good idea to take her along with me...but I just wanted to see what others experience was. Sometimes I just wonder if I am being overly cautious...probably not such a thing when your dealing with an...
  18. B

    Hair Salons

    Just was wondering what the thought was on hair salons? My daughter is 5 mos with CF...obviously she wouldn't be getting her hair done..but I didn't know if it would be ok for her to go along with me. I forgot to ask this at our CF appt last week so just thought I would check on here and see...
  19. B

    Hair Salons

    Just was wondering what the thought was on hair salons? My daughter is 5 mos with CF...obviously she wouldn't be getting her hair done..but I didn't know if it would be ok for her to go along with me. I forgot to ask this at our CF appt last week so just thought I would check on here and see...
  20. B

    Hair Salons

    Just was wondering what the thought was on hair salons? My daughter is 5 mos with CF...obviously she wouldn't be getting her hair done..but I didn't know if it would be ok for her to go along with me. I forgot to ask this at our CF appt last week so just thought I would check on here and see...
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