Search results

Just was wondering what the thought was on hair salons? My daughter is 5 mos with CF...obviously she wouldn't be getting her hair done..but I didn't know if it would be ok for her to go along with me. I forgot to ask this at our CF appt last week so just thought I would check on here and see...

Just was wondering what the thought was on hair salons? My daughter is 5 mos with CF...obviously she wouldn't be getting her hair done..but I didn't know if it would be ok for her to go along with me. I forgot to ask this at our CF appt last week so just thought I would check on here and see...

We have a pellet stove but since my daughter with CF is only 4 mo old...it hasn't been cold enough to use it yet this year. However, our CF doctor didn't seem to think there would be any problems with it. Last year was our first winter to have it and you could never smell smoke. The only time...

We have a pellet stove but since my daughter with CF is only 4 mo old...it hasn't been cold enough to use it yet this year. However, our CF doctor didn't seem to think there would be any problems with it. Last year was our first winter to have it and you could never smell smoke. The only time...

We have a pellet stove but since my daughter with CF is only 4 mo old...it hasn't been cold enough to use it yet this year. However, our CF doctor didn't seem to think there would be any problems with it. Last year was our first winter to have it and you could never smell smoke. The only time...

We have a pellet stove but since my daughter with CF is only 4 mo old...it hasn't been cold enough to use it yet this year. However, our CF doctor didn't seem to think there would be any problems with it. Last year was our first winter to have it and you could never smell smoke. The only time...

We have a pellet stove but since my daughter with CF is only 4 mo old...it hasn't been cold enough to use it yet this year. However, our CF doctor didn't seem to think there would be any problems with it. Last year was our first winter to have it and you could never smell smoke. The only time...

Jennifer- When my daughter had her sweat test she had it in the morning at an accredited center and our pediatrician which is at another facility an hour from where the test was done called us that same afternoon with results. I see no reason you shouldn't know the results that same day, unless...

Jennifer- When my daughter had her sweat test she had it in the morning at an accredited center and our pediatrician which is at another facility an hour from where the test was done called us that same afternoon with results. I see no reason you shouldn't know the results that same day, unless...

Jennifer- When my daughter had her sweat test she had it in the morning at an accredited center and our pediatrician which is at another facility an hour from where the test was done called us that same afternoon with results. I see no reason you shouldn't know the results that same day, unless...

Jennifer- When my daughter had her sweat test she had it in the morning at an accredited center and our pediatrician which is at another facility an hour from where the test was done called us that same afternoon with results. I see no reason you shouldn't know the results that same day, unless...

Jennifer- <br />When my daughter had her sweat test she had it in the morning at an accredited center and our pediatrician which is at another facility an hour from where the test was done called us that same afternoon with results. I see no reason you shouldn't know the results that same day...

Raegan's mom- Hi! and welcome to the site!! I am also a young mother of a daughter with CF. Her name is Hadley Kate and she is almost four months old. I can relate to alot of what you have been through. My daughter was diagnosed at 3 weeks and is also on enzymes and chest therapy. This site is a...

Raegan's mom- Hi! and welcome to the site!! I am also a young mother of a daughter with CF. Her name is Hadley Kate and she is almost four months old. I can relate to alot of what you have been through. My daughter was diagnosed at 3 weeks and is also on enzymes and chest therapy. This site is a...

Raegan's mom- Hi! and welcome to the site!! I am also a young mother of a daughter with CF. Her name is Hadley Kate and she is almost four months old. I can relate to alot of what you have been through. My daughter was diagnosed at 3 weeks and is also on enzymes and chest therapy. This site is a...

Raegan's mom- Hi! and welcome to the site!! I am also a young mother of a daughter with CF. Her name is Hadley Kate and she is almost four months old. I can relate to alot of what you have been through. My daughter was diagnosed at 3 weeks and is also on enzymes and chest therapy. This site is a...

Raegan's mom- <br />Hi! and welcome to the site!! I am also a young mother of a daughter with CF. Her name is Hadley Kate and she is almost four months old. I can relate to alot of what you have been through. My daughter was diagnosed at 3 weeks and is also on enzymes and chest therapy. This...

Steve- Thank you for your response. I will talk to my doctor at Hadley's next visit about doing the full genetic test. She said that my insurance company wouldn't cover it and that it would be 2-3,000 dollars out of pocket. Is there any way that I can talk to my insurance and convince them to...

Steve- Hi! I have an 11 week old daughter who has been diagnosed with CF. She had 2 positive sweat tests and had the genetic test for the 97 genes. Her genetic test came back with one Delta F508 gene. The doctor doesn't think that we need to do further genetic testing as it won't effect her...

My daughter Hadley was diagnosed with a newborn screening. I was breastfeeding her until I had mastitis 6 times in the first 6 weeks. I decided that I had to be healthy in order to take care of her. When we went to our CF clinic right after I had decided to put her on formula they told us about...