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  1. C

    Post Traumatic Stress in parents of kids with CF

    This PTSD discussion made me think about the CF transition to adulthood too Mima63. As I did when I read Heather's presentation. Here we fit that description, totally - being hyper-vigilant when they are growing up. Then when they start transitioning to adulthood all the doctors and nurses...
  2. C

    Post Traumatic Stress in parents of kids with CF

    This PTSD discussion made me think about the CF transition to adulthood too Mima63. As I did when I read Heather's presentation. Here we fit that description, totally - being hyper-vigilant when they are growing up. Then when they start transitioning to adulthood all the doctors and nurses...
  3. C

    Post Traumatic Stress in parents of kids with CF

    This PTSD discussion made me think about the CF transition to adulthood too Mima63. As I did when I read Heather's presentation. Here we fit that description, totally - being hyper-vigilant when they are growing up. Then when they start transitioning to adulthood all the doctors and nurses...
  4. C

    Post Traumatic Stress in parents of kids with CF

    Heather - oh my, the reference you give is in spanish - I can't read it. Is there an English version or your NACFC paper to link to? Or is your first entry above all that is in English? Thanks - such good work!
  5. C

    Post Traumatic Stress in parents of kids with CF

    Heather - oh my, the reference you give is in spanish - I can't read it. Is there an English version or your NACFC paper to link to? Or is your first entry above all that is in English? Thanks - such good work!
  6. C

    Post Traumatic Stress in parents of kids with CF

    Heather - oh my, the reference you give is in spanish - I can't read it. Is there an English version or your NACFC paper to link to? Or is your first entry above all that is in English? Thanks - such good work!
  7. C

    Post Traumatic Stress in parents of kids with CF

    Heather - this is such an unexplored topic, but I bet most of us reading it say "Of Course!" I hope you don't mind if I share this around some. Also, is there a formal reference you can provide on what you read orignally or to your own presentation? (Sorry if I missed it - I do have to reread...
  8. C

    Post Traumatic Stress in parents of kids with CF

    Heather - this is such an unexplored topic, but I bet most of us reading it say "Of Course!" I hope you don't mind if I share this around some. Also, is there a formal reference you can provide on what you read orignally or to your own presentation? (Sorry if I missed it - I do have to reread...
  9. C

    Post Traumatic Stress in parents of kids with CF

    Heather - this is such an unexplored topic, but I bet most of us reading it say "Of Course!" I hope you don't mind if I share this around some. Also, is there a formal reference you can provide on what you read orignally or to your own presentation? (Sorry if I missed it - I do have to reread...
  10. C

    Fantastic and exciting news at the cf conference..

    Let's see, the biggest news out of the biggest CF conference with far-reaching implications for everyone on here someday...I say 7 threads may not be enough Grumpy! Thanks Joanna -
  11. C

    Fantastic and exciting news at the cf conference..

    Let's see, the biggest news out of the biggest CF conference with far-reaching implications for everyone on here someday...I say 7 threads may not be enough Grumpy! Thanks Joanna -
  12. C

    Fantastic and exciting news at the cf conference..

    Let's see, the biggest news out of the biggest CF conference with far-reaching implications for everyone on here someday...I say 7 threads may not be enough Grumpy! Thanks Joanna -
  13. C

    Video Day in a life of my son & I shown at NACFC conference - see link

    I wrote last night that I had seen this the previous day and didn't know it was someone I "knew" on here. That message disappeared. This software is bad, hate to say it but I guess it is well known. Anyway, loved it! This was such a nice video and hearing about you and your son. Thanks.
  14. C

    Video Day in a life of my son & I shown at NACFC conference - see link

    I wrote last night that I had seen this the previous day and didn't know it was someone I "knew" on here. That message disappeared. This software is bad, hate to say it but I guess it is well known. Anyway, loved it! This was such a nice video and hearing about you and your son. Thanks.
  15. C

    Video Day in a life of my son & I shown at NACFC conference - see link

    I wrote last night that I had seen this the previous day and didn't know it was someone I "knew" on here. That message disappeared. This software is bad, hate to say it but I guess it is well known. Anyway, loved it! This was such a nice video and hearing about you and your son. Thanks.
  16. C

    Hyperbaric Oxygen Therapy

    Kind of related (but not really) there was a big article in our paper recently about a place having a Salt Room - it had inches of salt on the walls and basically was just very salty. Good for people with allergies and I think maybe asthma (can't recall that part) - think it said respiratory...
  17. C

    Hyperbaric Oxygen Therapy

    Kind of related (but not really) there was a big article in our paper recently about a place having a Salt Room - it had inches of salt on the walls and basically was just very salty. Good for people with allergies and I think maybe asthma (can't recall that part) - think it said respiratory...
  18. C

    Hyperbaric Oxygen Therapy

    Kind of related (but not really) there was a big article in our paper recently about a place having a Salt Room - it had inches of salt on the walls and basically was just very salty. Good for people with allergies and I think maybe asthma (can't recall that part) - think it said respiratory...
  19. C

    Vertex 770 question

    No, results of the early Phase 2 (2a?) for Vx809/Vx770 combo should be coming out in the next couple of weeks, probably in conjunction with the early Nov. CF conference in Anaheim, Ca. No one knows the results yet. More trials are planned or underway for Vx809/Vx770 and the alternate...
  20. C

    Vertex 770 question

    No, results of the early Phase 2 (2a?) for Vx809/Vx770 combo should be coming out in the next couple of weeks, probably in conjunction with the early Nov. CF conference in Anaheim, Ca. No one knows the results yet. More trials are planned or underway for Vx809/Vx770 and the alternate...
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