Search results

  1. A

    Sweat Chloride Test Poll

    J had a really high result (per Dr, never aksed for a # yet) at 19 days old. Have bot repeated, but it would be high, he still leaves salt rings on his sheets where he sweats.
  2. A

    Sweat Chloride Test Poll

    J had a really high result (per Dr, never aksed for a # yet) at 19 days old. Have bot repeated, but it would be high, he still leaves salt rings on his sheets where he sweats.
  3. A

    Sweat Chloride Test Poll

    J had a really high result (per Dr, never aksed for a # yet) at 19 days old. Have bot repeated, but it would be high, he still leaves salt rings on his sheets where he sweats.
  4. A

    Suctioning an infant

    I've only ever suctioned J if he was stuffy, and never been told I need to otherwise. If you do find it necessary to do, however, I have to recommend useng a Nosefrida. My sone won't even tolerate having his nose so much as looked at funny, but suctioning with it has been a breeze.
  5. A

    Suctioning an infant

    I've only ever suctioned J if he was stuffy, and never been told I need to otherwise. If you do find it necessary to do, however, I have to recommend useng a Nosefrida. My sone won't even tolerate having his nose so much as looked at funny, but suctioning with it has been a breeze.
  6. A

    Suctioning an infant

    I've only ever suctioned J if he was stuffy, and never been told I need to otherwise. If you do find it necessary to do, however, I have to recommend useng a Nosefrida. My sone won't even tolerate having his nose so much as looked at funny, but suctioning with it has been a breeze.
  7. A

    Bronchoscopy?

    My 7 month old is currently undergoing his first hospitalization. Neither his viral nor bacterial cultures have grown anything to tell us why he is sick. If nothing is present by tomorrow, he may need a bronchoscopy. Can anyone share their experience with having an infant go through this procedure?
  8. A

    Bronchoscopy?

    My 7 month old is currently undergoing his first hospitalization. Neither his viral nor bacterial cultures have grown anything to tell us why he is sick. If nothing is present by tomorrow, he may need a bronchoscopy. Can anyone share their experience with having an infant go through this procedure?
  9. A

    Bronchoscopy?

    My 7 month old is currently undergoing his first hospitalization. Neither his viral nor bacterial cultures have grown anything to tell us why he is sick. If nothing is present by tomorrow, he may need a bronchoscopy. Can anyone share their experience with having an infant go through this procedure?
  10. A

    Pulmicort or the Devil????

    Pulmicort is a steroid, it is very possible this could be a side effect. Call your doctor or pharmacist to see what can be done to help her cope with the irritated feeling.
  11. A

    Pulmicort or the Devil????

    Pulmicort is a steroid, it is very possible this could be a side effect. Call your doctor or pharmacist to see what can be done to help her cope with the irritated feeling.
  12. A

    Pulmicort or the Devil????

    Pulmicort is a steroid, it is very possible this could be a side effect. Call your doctor or pharmacist to see what can be done to help her cope with the irritated feeling.
  13. A

    Lungs for Jordan

    Amazing! We are pulling for Jordan. Do you by any chance know how I can get in touch with her mother or have an address for care packages? I don't want to bother them at this time (obviously!), but would really like to send something to cheer her up during recovery.
  14. A

    Lungs for Jordan

    Amazing! We are pulling for Jordan. Do you by any chance know how I can get in touch with her mother or have an address for care packages? I don't want to bother them at this time (obviously!), but would really like to send something to cheer her up during recovery.
  15. A

    Lungs for Jordan

    Amazing! We are pulling for Jordan. Do you by any chance know how I can get in touch with her mother or have an address for care packages? I don't want to bother them at this time (obviously!), but would really like to send something to cheer her up during recovery.
  16. A

    on vacation but left pulmozyme at home

    I would try calling genentech. I hear they are a very good company, perhaps they would just spot you 5 days worth. It's worth a shot.
  17. A

    on vacation but left pulmozyme at home

    I would try calling genentech. I hear they are a very good company, perhaps they would just spot you 5 days worth. It's worth a shot.
  18. A

    on vacation but left pulmozyme at home

    I would try calling genentech. I hear they are a very good company, perhaps they would just spot you 5 days worth. It's worth a shot.
  19. A

    Greatful?!?

    Sean, I'm sorry you have to deal with this not only at your young age, but for your whole life. My son has CF and it hurts me so much to think he will have to go through the feelings you're having. I think most people don't know what to say to someone who deals with what you do, and so they try...
  20. A

    Greatful?!?

    Sean, I'm sorry you have to deal with this not only at your young age, but for your whole life. My son has CF and it hurts me so much to think he will have to go through the feelings you're having. I think most people don't know what to say to someone who deals with what you do, and so they try...
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