Search results

  1. K

    SURVEY

    <b> Sex: Female Current age: 25 Age in which the first symptoms were noticed: Birth Nacionality: Sicilian/American 1. In what organs of the body do you suffer from cystic Fibrosis? (Write "Yes" or "no" near the word) Lungs YES Pancreas YES Liver Nostrils Intestine Sweat glands YES Reproductive...
  2. K

    SURVEY

    <b> Sex: Female Current age: 25 Age in which the first symptoms were noticed: Birth Nacionality: Sicilian/American 1. In what organs of the body do you suffer from cystic Fibrosis? (Write "Yes" or "no" near the word) Lungs YES Pancreas YES Liver Nostrils Intestine Sweat glands YES Reproductive...
  3. K

    SURVEY

    <b> <br />Sex: Female <br />Current age: 25 <br />Age in which the first symptoms were noticed: Birth <br />Nacionality: Sicilian/American <br /> <br />1. In what organs of the body do you suffer from cystic Fibrosis? (Write "Yes" or "no" near the word) <br />Lungs YES <br />Pancreas YES <br...
  4. K

    Aspergillus?

    Hey Caitlin- I have APBA & use oral antifungals "as needed" (itraconazole) & prednisone as well to keep the aspergillus at bay. I haven't had any side effects due to the itraconazole. My cf doctor & allergist also recommended getting on the Xolair shots. But my insurance did not approve it & i...
  5. K

    Aspergillus?

    Hey Caitlin- I have APBA & use oral antifungals "as needed" (itraconazole) & prednisone as well to keep the aspergillus at bay. I haven't had any side effects due to the itraconazole. My cf doctor & allergist also recommended getting on the Xolair shots. But my insurance did not approve it & i...
  6. K

    Aspergillus?

    Hey Caitlin- <br />I have APBA & use oral antifungals "as needed" (itraconazole) & prednisone as well to keep the aspergillus at bay. I haven't had any side effects due to the itraconazole. My cf doctor & allergist also recommended getting on the Xolair shots. But my insurance did not approve it...
  7. K

    Military

    My husband is the military & I can see why they wouldn't want you to join. It's long hours, strenuous workouts, sometimes 2-3 times daily. Not to mention basic training would probably make you VERY sick. You sleep VERY little, eat VERY little & they probably wouldn't know how to work in your...
  8. K

    Military

    My husband is the military & I can see why they wouldn't want you to join. It's long hours, strenuous workouts, sometimes 2-3 times daily. Not to mention basic training would probably make you VERY sick. You sleep VERY little, eat VERY little & they probably wouldn't know how to work in your...
  9. K

    Military

    My husband is the military & I can see why they wouldn't want you to join. It's long hours, strenuous workouts, sometimes 2-3 times daily. Not to mention basic training would probably make you VERY sick. You sleep VERY little, eat VERY little & they probably wouldn't know how to work in your...
  10. K

    Port Failure

    Hey Kat - It sucks you are having so many problems with it. My port has never failed (knock on wood). When i got it i was only going to the hospital twice a year as well, but I was always having major problems with PICC lines. If you don't have a problem with those I don't really see the point...
  11. K

    Port Failure

    Hey Kat - It sucks you are having so many problems with it. My port has never failed (knock on wood). When i got it i was only going to the hospital twice a year as well, but I was always having major problems with PICC lines. If you don't have a problem with those I don't really see the point...
  12. K

    Port Failure

    Hey Kat - It sucks you are having so many problems with it. My port has never failed (knock on wood). When i got it i was only going to the hospital twice a year as well, but I was always having major problems with PICC lines. If you don't have a problem with those I don't really see the point...
  13. K

    Is this normal?

    I'm not sure what exactly you are speaking of when you say nasty stuff... but The DAY after i stop my TOBI my mucus feels sticky & super thick...
  14. K

    Is this normal?

    I'm not sure what exactly you are speaking of when you say nasty stuff... but The DAY after i stop my TOBI my mucus feels sticky & super thick...
  15. K

    Is this normal?

    I'm not sure what exactly you are speaking of when you say nasty stuff... but The DAY after i stop my TOBI my mucus feels sticky & super thick...
  16. K

    Cayston

    FANTASTIC , RIGHT?! I was amazed as well. An inhaled treatment in less than 2 mintues! YIPEE!
  17. K

    Cayston

    FANTASTIC , RIGHT?! I was amazed as well. An inhaled treatment in less than 2 mintues! YIPEE!
  18. K

    Cayston

    FANTASTIC , RIGHT?! I was amazed as well. An inhaled treatment in less than 2 mintues! YIPEE!
  19. K

    Coughing.......UGH!

    Agreed! Cough Meds are good, using pillows also works for me too. But have you ever tried doing another albuterol treatment when you wake up coughing? Or do you use a rescue inhaler? A couple puffs of that could help the constriction. I'm not sure if you have ever tried Symbicort. I use it...
  20. K

    Coughing.......UGH!

    Agreed! Cough Meds are good, using pillows also works for me too. But have you ever tried doing another albuterol treatment when you wake up coughing? Or do you use a rescue inhaler? A couple puffs of that could help the constriction. I'm not sure if you have ever tried Symbicort. I use it...
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