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  1. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Sorry for all the misunderstanding to those who were confused i am on a phone so what i type may not make sense..anyway i got a blokd patch done to cover the pneumo and had a new tube placed!..today we are seeig great results!..i dont need oxygen at night during the day weve had to turn it down...
  2. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Looks like my lung surgeon came into me this morning and told me we are placing a higher chest tube in simce the hospital where mine was placed didnt place it high enough!..and there also taking blood and injecting it to see if a scab will cover the hole like how a cut heals on the outside of...
  3. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Looks like my lung surgeon came into me this morning and told me we are placing a higher chest tube in simce the hospital where mine was placed didnt place it high enough!..and there also taking blood and injecting it to see if a scab will cover the hole like how a cut heals on the outside of...
  4. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Reason why i feel strongly about the pulmozyme being the cause of my pneumo because feels strangely coinsedental(sp) that i stop this medicene and get clogged up and wheezing really bad i never have sounded like that..as well i wasnt saying nothing else wouldnt cause pneumos all i was saying is...
  5. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Reason why i feel strongly about the pulmozyme being the cause of my pneumo because feels strangely coinsedental(sp) that i stop this medicene and get clogged up and wheezing really bad i never have sounded like that..as well i wasnt saying nothing else wouldnt cause pneumos all i was saying is...
  6. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Holmbers i will mention that!..And MissT yea it sounds very strange to me how they cannot do anything for me but leave a chest tube in till its time for transplant?!..i mean come on people how ridiculous!..imm not accepting this as are final answer and i will be staying stuck in my words on what...
  7. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Holmbers i will mention that!..And MissT yea it sounds very strange to me how they cannot do anything for me but leave a chest tube in till its time for transplant?!..i mean come on people how ridiculous!..imm not accepting this as are final answer and i will be staying stuck in my words on what...
  8. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Yes sorry i am posting from a phone but what im saying is the transplant lady was agreeing with me and saying she feels the being without pulmozyme trigured this to .
  9. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Yes sorry i am posting from a phone but what im saying is the transplant lady was agreeing with me and saying she feels the being without pulmozyme trigured this to .
  10. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    And when i say tolerate suction i mean not having to be connected to the wall for suction
  11. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    And when i say tolerate suction i mean not having to be connected to the wall for suction
  12. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Miss T what doesnt make sense?...all i asked was what other options can be done to help mend the pneumo?..i never said the doctor said it was the pulmozyme that caused this??..i said i feel this happend because of me not being on pulmozyme for two weeks..i do this medicene everyday but medicare...
  13. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    Miss T what doesnt make sense?...all i asked was what other options can be done to help mend the pneumo?..i never said the doctor said it was the pulmozyme that caused this??..i said i feel this happend because of me not being on pulmozyme for two weeks..i do this medicene everyday but medicare...
  14. C

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option?

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option? Oh and let me add because i just got back from walking but i just for the first time since i been in hospital which is almost 2weeks i just walked at a steady pace for 45mins no...
  15. C

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option?

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option? Oh and let me add because i just got back from walking but i just for the first time since i been in hospital which is almost 2weeks i just walked at a steady pace for 45mins no...
  16. C

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option?

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option? Just over a week ago i i was told i didnt need to start transplant evaluation because i was to healthy and theyd just continue to see me every time i saw my cf doctor..well just over a...
  17. C

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option?

    Help! Need advice!..I had a spontaneous pneumothorax and now im being told that transplant is my only option? Just over a week ago i i was told i didnt need to start transplant evaluation because i was to healthy and theyd just continue to see me every time i saw my cf doctor..well just over a...
  18. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    My doctor is telling me there is nothing they can do to patch or staple this pneumo i have..shes also telling me cause im very healthy outside of this pnuemo that happend i could be on the transplant for a year ?..an wolst waiting in the meantime ill have a chest tube in and just wait!?..i find...
  19. C

    IMPORTANT!..Need to know what you people have had done to help your pnuemathoraxes!

    My doctor is telling me there is nothing they can do to patch or staple this pneumo i have..shes also telling me cause im very healthy outside of this pnuemo that happend i could be on the transplant for a year ?..an wolst waiting in the meantime ill have a chest tube in and just wait!?..i find...
  20. C

    Result from the pneumathorax is i need a lung transplant

    Thankyou for responding! Haggard how did you find this other doctor?..see there telling me there is nothing they can do and my lung is slowly healing..an question can i tell them what i want done an they do it?..theyve told me tey dont want to do any stapling or anything cause itll cause...
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