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Medicare no longer will cover two boxes of Pulmozyme a month was told its "To expensive?" I was informed today that medicare no longer will cover pulmozyme two boxes anyway because of the cost?...im blown away what do they expect me to do?..they will only allow one refill a month..i do...

Im curious to know if there has been anyone who has gotten there oxygen up and fev beter to and what did you do?..im normal sitting my sats are 96 but ince i start walking i drop to 86..i want so hard to get better !..my fev% is 31 my determined and will do anything an everything to get this...

Im curious to know if there has been anyone who has gotten there oxygen up and fev beter to and what did you do?..im normal sitting my sats are 96 but ince i start walking i drop to 86..i want so hard to get better !..my fev% is 31 my determined and will do anything an everything to get this...

Have any of you noticed a weird tingle or like someone is lightly using a needle and poking you all over your body?..because i at first thought i had dry skin badly from being in the hospital but its not..i notice its one of the iv's an it only happens when its being hooked up and i take these...

Have any of you noticed a weird tingle or like someone is lightly using a needle and poking you all over your body?..because i at first thought i had dry skin badly from being in the hospital but its not..i notice its one of the iv's an it only happens when its being hooked up and i take these...

Yes i seen that i added her on fb :-) i got to talk to her a little bit today very inspirational girl! <3

Yes i seen that i added her on fb :-) i got to talk to her a little bit today very inspirational girl! <3

Breathless bride i believe <img src="i/expressions/face-icon-small-smile.gif" border="0">

Breathless bride i believe <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cf documentary on Tlc wednesday! The girl is told she has 6months to live and needs her double lung transplant and shes fixing to be married. Was making this aware for everyone who may have not known!

Cf documentary on Tlc wednesday! The girl is told she has 6months to live and needs her double lung transplant and shes fixing to be married. Was making this aware for everyone who may have not known!

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Ive never had a nurse take my neb cups and rinse them in the sink!..i cant use tap water let alone to do my sinus rinses!..this to me is a big no no!..also...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Ive never had a nurse take my neb cups and rinse them in the sink!..i cant use tap water let alone to do my sinus rinses!..this to me is a big no no!..also...

So im feeling overwhelmd at the moment been put back in hospital..an were now doing a bronch i want to know what to expect and what happens..were doing this to see if i have cepecia deep down in my lungs since i did culture it 3 yrs ago but since have not..she said theyd go in through my nose :-/

So im feeling overwhelmd at the moment been put back in hospital..an were now doing a bronch i want to know what to expect and what happens..were doing this to see if i have cepecia deep down in my lungs since i did culture it 3 yrs ago but since have not..she said theyd go in through my nose :-/

So im goin back in as ive got that smell in my nose and the doctor thinks i may have possibly became resistant to the medicenes they had me on!..so because im also allergic to penicilen(sp)? I have to be desensitized i was told thats where a allergist comes in an gves you small doese of...

So im goin back in as ive got that smell in my nose and the doctor thinks i may have possibly became resistant to the medicenes they had me on!..so because im also allergic to penicilen(sp)? I have to be desensitized i was told thats where a allergist comes in an gves you small doese of...

Sorry im on my iphone so the oart that says will be shut out to just some advice shouldnt have posted just ignore that lol my phone did something weird

Sorry im on my iphone so the oart that says will be shut out to just some advice shouldnt have posted just ignore that lol my phone did something weird

No i have not had any xray or ct scan done on my sinuses..every once in awhile i do get outlines of blurred vision..it driving me crazy though the smell D: ..will be shut out!..ya nt very nice bt why wuld i want u by my side..ur never happy an i dnt knw why..u seriolsy need to thnk about an...