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Thankyou for responding! Haggard how did you find this other doctor?..see there telling me there is nothing they can do and my lung is slowly healing..an question can i tell them what i want done an they do it?..theyve told me tey dont want to do any stapling or anything cause itll cause...

Anyone whose had experience could you please tell me them and what they did to help you they wont do the stapleing because it would cause more problem for transplant..please share your experiences i am still in the hospital and there trying to figure what to do..i was taking off suction...

Anyone whose had experience could you please tell me them and what they did to help you they wont do the stapleing because it would cause more problem for transplant..please share your experiences i am still in the hospital and there trying to figure what to do..i was taking off suction...

Mine was spontaneous..just over a week ago i was told we didnt need to start transplant i was to healthy then this happens 6days later..an now my lung wont reinflate 100% only 80% and now i need new lungs so scary how this is all happening right now feels like its all a bad dream

Mine was spontaneous..just over a week ago i was told we didnt need to start transplant i was to healthy then this happens 6days later..an now my lung wont reinflate 100% only 80% and now i need new lungs so scary how this is all happening right now feels like its all a bad dream

I need alot of support..my lung has healed 80% but 20% is still not reinflating there looking at taking me off suction tomorow to see how i tolerate that..id i tolerate that ok then ill have a smaller tube put in and be sent home as well tomorow im starting my transplant evaluation so il be...

I need alot of support..my lung has healed 80% but 20% is still not reinflating there looking at taking me off suction tomorow to see how i tolerate that..id i tolerate that ok then ill have a smaller tube put in and be sent home as well tomorow im starting my transplant evaluation so il be...

Mine happend monday and i was all on my own no coughing or anything different to have set it off. I had woke up and sat up and just all of a sudden could t breathe!..i thought well maybe i just need nebulizers and i went to try and get them and something just really didnt feel right it brought...

Mine happend monday and i was all on my own no coughing or anything different to have set it off. I had woke up and sat up and just all of a sudden could t breathe!..i thought well maybe i just need nebulizers and i went to try and get them and something just really didnt feel right it brought...

I been doing great feeling fine..well i was deprived my pulmozyme for two weeks because medicare decided they werent going to cover two boxes a month because its to expensive?..so cause i was short of the medicene i was without for two weeks..i then start it back up started running the fevers...

I been doing great feeling fine..well i was deprived my pulmozyme for two weeks because medicare decided they werent going to cover two boxes a month because its to expensive?..so cause i was short of the medicene i was without for two weeks..i then start it back up started running the fevers...

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) Miko private message me!

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) Miko private message me!

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) Cysticdude what state do you live in :-) and im obsessed with the chocolate ones! Lol I love being able to help my other fellow Cfers out i was told that my clinic cant take...

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) Cysticdude what state do you live in :-) and im obsessed with the chocolate ones! Lol I love being able to help my other fellow Cfers out i was told that my clinic cant take...

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) I have 39 boxes! An there not expired <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) I have 39 boxes! An there not expired <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) If you would like these just let me know im thinking i have 25 boxes? I dont like the strawberry im a chocolate person lol! And the pharmacy i get these through wont take them...

Anyone need Schandi shakes?..I have a bunch of strawberry flavor i dont drink and looking to help another Cfer out ;) If you would like these just let me know im thinking i have 25 boxes? I dont like the strawberry im a chocolate person lol! And the pharmacy i get these through wont take them...

Medicare no longer will cover two boxes of Pulmozyme a month was told its "To expensive?" I was informed today that medicare no longer will cover pulmozyme two boxes anyway because of the cost?...im blown away what do they expect me to do?..they will only allow one refill a month..i do...