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Oh Julie I am so excited for you!!!!!!! I will be on pins and needles waiting for that positive pregnancy test!

Oh Julie I am so excited for you!!!!!!! I will be on pins and needles waiting for that positive pregnancy test!

I just had to ask. My step-son has come to live with us for good. I knew he was coming and I refilled his prescription for MT20 and then once he got here we learned he has changed to a different enzyme. So now we have two bottles/ 1000 capsules unopened factory sealed. I just hate to throw them...

I just had to ask. My step-son has come to live with us for good. I knew he was coming and I refilled his prescription for MT20 and then once he got here we learned he has changed to a different enzyme. So now we have two bottles/ 1000 capsules unopened factory sealed. I just hate to throw them...

Julie I am so excited for you, I don't blame you for not wanting to wait, when your ready your just ready. I think Mark's worries are perfectly normal, when we found out I was pregnant with Andrew we flipped out, we already had one child together and we both have another from our first...

Hi Claudette, It's going okay. I'm just having some issues with feeding, that's the story of my life lately. Andrew is a rare case it seems because of the Cerebral Palsy AND CF, really makes for a bad situation. CP kids have feeding issues as well, which make it really difficult with the...

Oops, didn't work. I'm trying again. I never have any luck w/photos.

Jess- I'm sorry just isn't enough to say. I really enjoyed talking to Allan, he really knew how to put into words exactly what he wanted to say. I don't know if you listen to country music but Kenney Chesney has a really great new song out, I heard it for the first time when my son was in the...

I second that Emily, DAMNIT!!!!!!!! I hate CF.

Seana- Thanks for the compliment, he is a cutie. I'm gonna try to attach a photo of Cameron a little later. Jen

I know this forum has been in an uproar lately, but I hope some of you might share your experiences with me in regard to the colostomy reversal. Andrew had surgery last Tuesday 10/11/05 and now we are in the "waiting for poopie mode". I never knew this was going to be so stressful. Andrew is in...

This is a pic of my son, Andrew w/CF I also have an 11 year old step son w/ CF

My baby was released from the NICU on Friday and they sent me home with Pregestimil formula but there was no mention of enzymes. Unfortunately, I haven't met with the CF doctor yet so I was curious as to if he should be taking enzymes. Does anyone have experience with Pregestimil? Does it not...

First, let me say this; WHAT A ROLLER COASTER RIDE! On Wednesday my whole family came to the hospital with my husband and I and we prepared ourselves to turn off the respirator. We talked with the neurologist who explained to us the severity of Andrew's brain injury and we cried. At 1:30 pm the...

I hate to post this but I could really use some support. The neurologist came in to see Andrew today and after viewing the MRI and EEG results they informed us he will have Cerebral Palsy, he will never walk, talk or see, he will never breath or eat on his own and will requre a ventilator and...

It's funny how just when you think things can't possibly get any worse...they do. The Dr. informed us today that Andrew took a big "hit" to his brain. They did an EEG and an MRI and it looks like the lack of oxygen has really altered his fate. Although she didn't say the words, "Cerebral Palsey"...

Thanks Julie- I left the hospital one day after my c/s and against the OB recommendations, but she understood. I had to get to my baby, but I have paid the price, walking the floors of that huge hospital has nearly killed me. My husband and I are staying at the Ronald McDonald house (what a...

Hi everyone, Andrew was born on 8/27/05 at 39 weeks. Some of you may remember he was showing a dilated bowel (we knew he had CF) at my 34 week L2 U/S, it was dilated 1 cm. At my 36 week L2 u/s it was dilated 1.7 and at my last u/s at 38 weeks it was dilated 2.6 cm. Unfortunately, as many of you...

I'm currently pregnant and I will be induced the week of 8/22. I'm really struggling with my previous decision to leave my job, not only because losing my income would be a really big loss for us, but also because I love what I do so much, it pains me to think of never coming back here. My last...

Carey, Copy the 'Tag' not the url or img and paste it into your profile (if your using photobucket.com), it has to be in your profile/signature. I get easily frustrated with this stuff too.lol