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juliesdreamteam 1) The information on crypto was referenced above, before your post. 2) Saying a TX patient can eat anything is just silly. Read the contraindications to the medications she is on for the rest of her life. If you are taking parasitology, you either know or will learn about...

Had the fun test four times, once prior to TX and three times post TX. Not fun, but the TX is not fun either. First time was more difficult, try sucking on ice chips. Last time dropped the data logger getting up for some coffee in the AM and ripped it out with only 20 hours of data. Once...

Use "distilled bottled water", not bottled water. Bottled water is regulated by the FDA and can and does have bacteria. Tap water is regulated under the Clean water act by the US EPA and is better tested and regulated. Try wikipedia on cryptosporidiosis. The US has many third world water...

Where were you transplanted? Does your center use Campath? I have known several to keep the lungs for years with the use of this drug. Duke and Pittsburgh both use this drug. Exercise is very important. Keep the lungs going along with some muscle tone for another TX attempt. Duke would...

Grendel Duke for one center, in the past. This is not hard information to find on the web. Cats have bacteria and parasites that are a serious risk. Keep them off the bed, wash your hands, and good luck, have someone else clean the litter box or wear a respirator. I have dogs, had dogs...

Lindsey: Delay as long as possible. TX is a one way door, new issues, new time line, new clock ticking down. Just don't delay a day too long. In 2000 I had zero options and no regrets. From the past, new drugs that will offer a "cure" have been around the corner for at least the last 25-30...

Duke has an excellent program. Five days a week. Weight machines (5-7), walking on a track or treadmill, bike, stretching with floor exercises, rowing machines, etc. Around 2-3 hours a day, with rest periods and oxygen available. This is a pre and post TX program. If you want details...

If you are out of the hospital within a couple of weeks, you will not loose extensive conditioning. If you have a rather long tough course, things will be tougher. At your age you will recover quickly and can get back to exercise which will benefit the new lungs. Push ups, not for a while...

I had half my test at Duke and the other test at UNC. I had a TX at Duke. They are up front and not into games. You go in for test, a rather hectic couple of days. Nothing you can prepare for or any tricks. The place is large and plan on going all over the hospital and clinic (at least 13...

Duke puts you in daily PT before a TX and considers the better shape you are in, the better outcome. You do PT prior to TX and post TX, in a gym, five days a week for around 3-5 hours. CF-TX 62 cepacia 12 years out

TLM81 Jamiebug is around 4.5 years out with cepacia. I am 12 years out of TX with cepacia since 1995-96 time line. Pitt would have been my second choice years ago, today they would be my first choice. CF-TX 62 cepacia 12 years out

baco 623 Bad choice for future employment for a number of reasons. Cats and birds are a serious issue. Go take a course in microbiology, than the very interesting course in parasitology, these will answer your questions. Talk to several TX pulmonologists.

You can not scuba dive. Ask the world authority, at DAN the Divers Alert Network in NC a few mile's from Duke. They are against the idea for many reasons. Also, infection is a real issue from dive equipment, known in the industry. Use fins, and snorkle, clean with a dive shop cleaners.

What is usually the cause of death for a CFer who has had a successful lung transplant? best 091964 My TX center want prograf (tacro, FK 506) from 8-10 ng/ml trough, this is a level after the initial TX and months out from the TX. Risk infection, rejection (acute, chronic), cancer including...

Rita: My evaluation for transplant with cepacia, was at your current age. TX at the age of 49, with my 50th birthday in the hospital post TX. I certainly have lost friends through rejection. Considering that I had months to live, quality of life was declining (circling the drain), the grasping...

I was not diabetic pre TX but became post TX. As the meds were reduced I ended up getting off the diabetic requirements. On high dose steroids, back to being a diabetic. Currently, not diabetic. My physicians were very surprised. I was heavy pre TX, lost weight and wanted to write a book on the...

Your wife grew out a gram negative bacteria from the microbiological samples not the histology. What did the histology exam show regarding potential rejection? The mycology from the bronc. may not be final at this point. Was this done at her transplant center? Is she seeing and having this...

Your wife grew out a gram negative bacteria from the microbiological samples not the histology. What did the histology exam show regarding potential rejection? The mycology from the bronc. may not be final at this point. Was this done at her transplant center? Is she seeing and having this...

Post TX the number of "things" I can do are too many to innumerate. Life has improved, I am alive and was dying pre TX. I would not hesitate to have the TX, my life was becoming tough prior to the TX. With a drive to live, for some their is no choice but to go for the chance to improve and...

Post TX the number of "things" I can do are too many to innumerate. Life has improved, I am alive and was dying pre TX. I would not hesitate to have the TX, my life was becoming tough prior to the TX. With a drive to live, for some their is no choice but to go for the chance to improve and...