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Excellent news!

It IS very hard to get rid of pseudomonas, but that doesn't mean it doesn't happen. And over time, it will increase lung disease, but this is a gradual thing, and it will happen to all CFers at some point. As for TOBI- I had problems with ringing in the ears with TOBI, but this was after years...

It was hot (almost 90!) in New Jersey today... but sunny too!

Even in the hospital though, we still have a fun time. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I love AC! It helps me breathe so much better. Aside from the breathing issues though, in the summer it helps us CFers not dehydrate so easily (less sweating, less salt loss, less possibility of dehydration)

I think Pulmozyme can cause a person to cough up small amounts of blood sometimes.

Any CF mutation Ambry identifies is a CF gene. Therefore, if your fetus was shown to have two mutations, the baby does have CF, and it's not false fear or a mistake or anything. However, the rarer mutations sometimes tend to cause more mild cases of CF. But it still is CF. As for Ambry's...

Mom, you were also on the show! LOL. Anyway, I just watched the video and here are my thoughts on advice for other CFers, from 8 year old Coll: "Don't be mad because it's not your fault, and if you feel like its your fault, just tell yourself over and over again that it's not. And it's not your...

If it makes your kids jittery and not wanting to sleep, you can always try Xoponex. It is basically albuterol, but it doesn't make you hyper. I use it because I used to be unable to fall asleep in the evening after doing nebulizer treatments.

Here's a modified post of mine from a few months ago: As a youngster, I was basically limitless in my activities-- as long my mother and I made time for my treatments, I was allowed to spend my day like any other 3 year old chooses to. As I've gotten older, some of my activities have been...

Woo! Disney looks very fun-- lucky! And we look BEAUTIFUL, if I do say so myself haha.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Maral, I just reread my post to you and I must have been having a bad day, because I was kind of harsh! Sorry for that! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Good luck with the project- you seem like a committed student- more so than most project people we get on here!

I think basically everyone in my grade knows that I have CF. I was never especially private about it, because at a certain point I realized that it's just easier for it to be that way--not to mention that the ideas people dream up to explain your absences or small stature are always worse than...

I've had more tune ups than I can count, so if you need advice or anything, just send off a post. Getting the IV placed isn't so fun, but EMLA cream and as Katie said, a calming 'happy' pill will probably help. Also, drink lots of water before they put it in- being hydrated fattens up your veins!

I use the Opti-Chamber, but only for my 'puffers', because I still prefer doing a nebulizer for my treatments-- I feel they work better. Plus, Pulmozyme, one of my medications can't be used in the chamber since there is not an inhaler equivalent.

What a cutie! I love the name too <img src="i/expressions/face-icon-small-smile.gif" border="0">!

What a cutie! I love the name too <img src="i/expressions/face-icon-small-smile.gif" border="0">!

I did? I don't even remember that! LOL

1. Coll 2. From sex- that is, when my PARENTS had it and the result was me. 3. Nope 4. Sorry, I haven't written my memoirs yet. 5. Again my memoirs aren't written yet. 6. 16 Do a bit more research before you post such vague questions. 'Getting' CF occurs at the same time for everyone with it...

You're welcome- and really there isn't much to worry about. I spent the first five or so years of my life on a higher dose of enzymes, and don't have any problems.