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Interestingly, got home after running errands to 3 medical bills totaling $630...Sigh.

http://www.nytimes.com/2014/11/19/business/for-cystic-fibrosis-foundation-venture-yields-windfall-in-hope-and-cash.html?hp&action=click&pgtype=Homepage&module=first-column-region&region=top-news&WT.nav=top-news

My daughter had abdominal surgery at 5 days old due to a meconium ileum. She was not perforated. She had a small amount of her bowel resected put back together. It is very stressful. I think asking questions, writing them down(especially because of stress and sleep deprivation) is...

I agree you may find you have health improvement now that you are diagnosed with CF. You should be seeing an adult CF doctor at a CF clinic. There they can treat your specific CF needs for example CF specific Bacteria causing the sinus infections, and Bronchitis. Do you do any airway...

I would be concerned; especially since it is the 2nd time of getting it. The spores for C dif can be difficult to get rid of. Handwashing only with soap and water; Purell will not work.

I have not heard about antihistamines either. I also worry about the drying effect. How long a course of Flagyl did you son use? We are still working out my daughter's GI issues as well. They are improved but not back to baseline. We have her on Miralax twice a day, Culturelle twice a day...

I love the color coded neb idea!

Decreasing the level of noise of the airway clearance devices..The VEST is very loud. We usually try to muffle the noise with a blanket and or my daughter with CF wears headphones while using the computer and doing her VEST. Same goes for her compressor for nebulizers. Everything gets VERY...

I don't have access to another dishwasher right now. I have some dishes soaking in hot soapy bleach water. I guess we can you plastic/paper til it's fixed. But I want to clean all the dirty dishes int the washer or they will get stinky ugh always something.........

What is the best way to handwash our dishes that won't get bacteria etc for our CF'er. Could I use some bleach is the sink with soapy water and rinse after of course? I won't have the dishwasher fixed for a few days and I am not wanting my daughter to get any wierd bacteria from handwashing...

This is interesting. Our dog has been having some skin issues. I thought it was a hot spot(under the collar area)..We've done special medicated baths, antibiotics, prednisone. It came back after we stopped the prednisone. Back to the vet; given special flea medicine and more prednisone(which...

The scary thing is it was just one random pill at the bottom..What if someone gave it to her or if she took it herself? I used it as a learning experience to remind my daughter to always question the meds given to her(even by me). I have found plenty of mistakes, usually it's not getting...

I was going to give my daughter her antibiotic, which is a big white pill. I get them in 90 day supply. I found at the bottom of the bottle a pink pill that I had no idea what it was. Called the pharmacy and they identified it as a mood stabilizer. It was in with a child's antibiotic. I am...

We are home. THey decided not to do the flagyl at this point. My daughter is exhausted. They got out as much sludge as they could to try to get her back to baseline. Time will tell.

We are still in the hospital; maybe going home tonight or tomorrow. Sooo tired. Golytely is still running through an NGT and still has an IV. Taking clear liquids around the tube. She still has sludgy areas(I was told) but they think they got out as much as they could via the golytly. We...

Heading in tomorrow for GI clean out; NGT with golytely. Been a long time since last admit; 9 years:)...I am very tired. Refresh me of good things to bring...VEST enzymes, computer, Clorox wipes? Daughter is going in healthy lung wise; it's just this stupid constipation...Want her to come out...

No apologies needed..I value your insight and knowledge. We all learn from each other:D

Would you drink Barium if you were getting a Abdominal cat scan? I am not in favor of it, it is very constipating and this is the issue. The radiologist wants my daughter to drink it

Little lab, My daughter, just to clarify, is not having an actual colonoscopy, she had the prep part to try to clean out her constipation. We're still evaluating and working on a plan to relieve her problem and solve her issues.

Littlelab, Thank you, Wow. I am speechless. I am going to your above post as a reference. My daughter did a miralax colonoscopy prep this weekend at home and I am not convinced she's cleaned out. I have a nagging feeling things are going around an obstruction, scar tissue or something. I...