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VAmom, Did your son need just that one sinus surgery? I have heard that polyps tend to come back.. I have started doing Simply Saline 3% my daughter actually likes to do it herself. Not sure how far up there it's getting but I am going the gentle route since she hated the Hypertonic saline...

She's already on Singulair. She needed alot of prednisone this winter; before we knew about the polyp...Maybe that's why she had such trouble this winter clearing her cough...

Plan is to reassess in 3 months and hopefully the nasonex shrinks the polyp. No ENT consult yet. Last time I did Saline washes (hypertonic) she told me she hated me and to never do that again(Think she was 4) She does not mind the Simply Saline spray 3% so I guess I'll pick some up too.

I used to use Simply Saline 3% but since my daughter uses Hypersal 7% by mask i felt like that was good enough. I had stopped using the airfilter, not sure why; maybe the cost of the filter to replace..Guess the next time I am at Walmart I'll get new carbon filters.....Problem is my daughter...

So, My daughter has a nasal polyp...She is being started on Nasonex. I did notice these past few weeks/months she would sound nasally or seem like she had a cold but maybe it was the polyp....Wondering if sinus rinses are a good idea? Or simply saline spray? We are ready do Hypersal with a...

Same thing happened to us; We actually got the 105 and 6 months later I heard a wail like a dying cat coming from the machine. Course it was on the weekend during the midst of a cold. Got another 105 no problems yet. They do refurbish the VESTs so I think that's part of the problem.

You need a prescription from them from your child's doctor. You can order them online, get them from a Medical store, CF Services Pharmacy will add them to your order(free) just ask with orders like TOBI and Pulmozyme. It is important to use the right nebulizer with TOBI to get the most...

What type of nebulizers are you using? The reusable ones like Pari LC plus are made to withstand boiling. I have been boiling my daughters nebs for years. The ones that melt are the disposable cheapo nebs that most hospitals use.

Awesome job to both of you.

Our Respiratory therapist wanted my daughter to start doing her own breathing treatments. Start the process before she becomes a teen. SHe's 9. Today she did all her treatments herself; with me watching. I did education like what the meds are for; generic names for meds what they do. She was...

My daughter has not yet had a lung scan. She does get CXR every year. She had some changes on her CXR this past year, though she was symptomatic prior to the xray. She had been coughing and had the flu 2 years ago; which I think caused the damage. Since that time it seems she has more...

I am sorry that your son does have CF. However, with the right enzymes and CF preventative care your child's health will likely improve. The enzymes do make a world of difference in getting the nutrition your child needs. Are you going to a CF clinic? The Cystic Fibrosis foundation at...

Also, this virus or whatever started with sore throat and my daughter complaining of "feeling tight" in her throat...which is why I felt on "high alert mode" Symptoms seemed to have resolved...til next time<img src="i/expressions/face-icon-small-wink.gif" border="0">

Think we got through this one, knock wood. Things I did that may or may not have helped were; keeping her out of school for one day to rest. Then the weekend; she slept in. I had her do salt water gargles for the sore throat. I gave her some ibuprofen. Really working in a healthy diet...

My daughter finally had returned to baseline; feels great for 3 weeks; good energy no cough. She picked up the virus her friends have at school; arg only have one week left. She's got the throat tickle cough; like the other kids. Any tips to avoid this from progressing(like it usually does) to...

http://www.drugs.com/clinical_trials/top-line-data-phase-3-trial-ataluren-patients-nonsense-mutation-cystic-fibrosis-show-promising-13812.html Maybe it was at the end of this article?

Where is that news release do you see anything about the FDA and it being fast tracked? I do not see that.

I wonder what the combo of Atalauren and Kalydeco would do together?

http://ptct.client.shareholder.com/releasedetail.cfm?ReleaseID=681445

Mindy, Sodium bicarbonate acts as a buffer making the stomach less acidic to help make the enzymes work better. Every CF kid is different and I found that this helps my daughter's digestion. The way I administer the sodium bicarb was my suggestion and the CF clinic went along with it. They...