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Ratatosk, Ha! The filter took me a while to figure out, why who knows. The filter is this black spongy thing inside a black knob(you'll see it on the instructions sent with the compressor). I wash the black spongy thing in antibacterial soap then let it airdry overnight on a papertowel. My...

The Mobilaire compressor is made by Invacare. It is a heavy duty compressor. The Psi is adjustable meaning you can change is according to which drug you are nebulizing. I usually just leave it set at 20 psi. The Pari compressor the psi is 13 ( i think). I just think the compenents in the...

Smiles, The Pari compressor does not last long. We had one and it would break down every 3 months. I finally paid out of pocket for a Mobilaire compressor with adjustable Psi. It cuts down on time which is so precious. It cost about $270 or so but is worth every penny. For exercise my...

Jenny, Hmm, how did I handle my daughter questioning her mortality? I think it's a hard concept for any child. I felt I wanted to tell her the facts first instead of her looking something up online or someone at school saying something stupid to her(kind of like the sex talk;)). I pretty...

It is hard to fit it all in. My son without CF has anywhere from 1-2 hours of homework a night and this is after soccer practice etc. My daughter with CF is only in 4th grade so has nowhere near as much homework but I wonder how she will fit it in. My daughter also can read while she nebs...

Sarah, It is bittersweet. Our kids put up with so much. I actually can not remember when my daughter said she had CF. It's just always been the way it is. Things come up as time passes. The day my daughter asked me if she is going to die from CF tore my heart out. Today she wore a shirt...

I like your idea for trick or treating for loose change. How would that work?

Would love to be able to see this. Is it playing in the US?

Call your child CF doctor if you are at all concerned.

My daughter was found to have a nasal polyp at her last visit(she's 9 1/2)..Her CF doc looks up her nose every time he sees her. I had noticed her voice sounded different; more nasaly, sometimes she would seem like she was coming down with a cold; but she felt fine. She was started on Nasonex...

http://health.yahoo.net/news/s/nm/fda-staff-question-novartis-cystic-fibrosis-drug

Looking for info on ENT's at Boston Children's or Mass General. Gathering info at this point. Thanks so much.

Had the back to school meet with my daughter's teacher. Gave the School and CF booklet; letter from the CF doc and my daughter already has a 504 plan so we should be good to go. I like to meet the teacher ahead of time as I have found most to have misconceptions about CF. Usually give the...

We found the echogenic at 20 week ultrasound; had not had an ultrasound before that.

She likes to watch TV when I do manual cause it's hard to really do anything else. When she was a baby I would put her on my lap or over my shoulder, I used less force for the CPT then too. Now, I have her lie on the couch and I either sit on the side of the couch next to her or I even...

Any suggestions for the best surface for a child to lie on for manual CHest pt? My daughter's VEST pooped out again and I gave her her usual treatments and did manual chest PT on her. The positioning is awkward to do for so long. My elbow and wrist ache after doing PT for 20 minute sessions...

That does not sound right at all. The CF Foundation recommends blood work once a year for vitamin levels for accredidated CF centers. Is your child frequently on Prednisone or steroids? That can cause weight gain.. Children's in Boston also has a CF center. Also, I would want a thyroid...

Has happened to my daughter. She had a nasty viral infection which exacerbates her bacterial load. She was treated with oral steroids(high dose) for 5 days and her heavy duty antibitotics. Also, add in extra albuterol and Vest treatments. Did the culture report come back? Is her o2 sat...

When my daughter was little(she's 9 and a half) now, I was the Mom who encouraged my kids to jump up and down on their beds. They loved it; lots of fun and good exersize...Course I made sure they didn't fall off.:) Tickling and laughing is always a good way to get the lungs working, laughing...

You can purchase sterile water...I looked into this once, called a couple pharmacists...You need a prescription for it. I think one liter cost 15 dollars or something ridiculous. But if you are worried about minerals in your water or sterility, you could give your pharmacy a call and ask...My...