Search results

Just wanted to add all my little cold/cough tricks; Simply saline rinses; Extra Vest Extra albuterol, focused manual chest PT, rest, Warm baths with Epsom salt, Salt water gargles(for sore throat) decaff green tea with honey... Chicken soup...Lots of extra fluids....Extra Culturelle(cause we...

We are now in the same boat. Cold started last week (I got it too). Coughing post nasal drip; but now sounding more junky cough; Course my daughter waits til late in the day to say she felt wheezy in class..Left a message in the office...

Fasting result 102 2 hour after drinking the oral glucose blood sugar was 89. THis is our first time this test was done, our daughter is 10. She had been on prednisone twice the previous month (high dose). She is always on inhaled pulmicort as well as nasonex. They are calling her pre...

Have you had a culture swab run on your baby? Making sure she is on the correct antibiotic is VERY important. Also, a simple cold/ or respiratory virus can take so much longer for a CF baby to get over than a child without CF. It's hard in the winter when there are so many viruses and colds...

http://www.cff.org/aboutCFFoundation/NewsEvents/12-19-FDA-Recall-of-Selected-Zicam-Nasal-Gel.cfm

Arg, I just typed something up and it got lost:( Anyway, my daughter has been on Pulmicort nebs 2x a day since she was 2 1/2 years old after she had an exacerbation. It helped her after she started it her cough did go away; I think it takes about 2 weeks before it takes full effect. My...

I would check with your CF doc. My guess is as long as they have a fever they are contagious with the flu virus...the fever can last 4-5 days; after that they will likely have a cough. Alot of times, people can get a secondary infection(bronchitis, pneumonia) from the flu which would make...

My daughter has been taking her own enzymes since kindergarten. Every cild is different for maturity level so as a parent if you know your child and think they can do it I would pursue the issue. The child is going to make mistakes but that is ok, in my opinion. This is their life long...

Yeah, I do not want to use rite aid for the Pulmozyme. They have helped me out with the enzymes in the past, so i am giving them a try with 2 of her drugs. I likely will have them transfer her albuterol too there. We'll see. Feeling like CF Services is not being the CF advocate however...

CF services is merging with Walgreens.. Just found out they can not ship to our particular state. I am very aggravated to say the least. So I am transfering out my daughter's scripts to our local drug store for now...I am concerned about her Pulmozyme. Who would you recommend for a pharmacy...

www.justnebulizers.com has Mobilaire filters for $17 a piece. i just ordered them and they came in 2 days.

I just ordered neb supplies at justnebulizers.com. They have the Mobilaire filters $17 a piece. They got delivered quickly... Hope that helps!

Is this ok to give a CF child for a sore throat? It's not a cough suppressant; just has some numbing ingredient in it. It's a comfort thing. I gave my daughter one; she's home with something brewing...She's almost 10 and never had a cough drop so I figure what's it gonna hurt? I know it's a...

I just wanted to add; the times my daughter had to take augmentim for ear infections; it was awful on her stomach as well. I agree about giving the probiotics, too..... I also have switched up my daughter's diet when she is antibiotics that upset her stomach. I will give her mild and bland...

I paid $270 for our Mobilaire..Got it online at a medical online company. Paid it out of our own pocket and worth every penny.

My daughter is almost 10 years old and she has been using Hypersal since she was about 4 years old. She has never had any issues with sodium levels. We always use her albuterol neb prior to her hypersal, so no bronchospasm there. Hypersal has made her vomit a time or two but in a "good way"...

I saw that too. Makes absolutely NO sense. The parents of the child with CF are both carriers, too...There must be something else to this story they are not saying because no doctor would recommend this.

http://youtu.be/uhuRc3c_loM Not sure if this link will work. My 9 year old daughter with CF sang at the school talent show. Just a proud Mom; thought you all would understand.:)

I started using Simply saline spray for my daughter. how often do you throw away the bottle? Every month, after a cold? Just wondering as I bought a huge bottle and I just threw it away after my daughter's last cold.

Smiles, My guess about why Vests are not used in other countries is cost. The Vest costs about $15,000