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Thank you Katie. That makes alot of sense. I would love some more ideas about the low residue diet. What to eat and what not to eat. Chicken, rice potato, my daughter loves.

Daughter had another belly X-ray today, compared with last one no change. Full of poop. no obstruction. They are going to call us tomorrow with instructions for yet another clean out getting recommendations from the GI doc. Sounds like a colonoscopy prep...I don't know....

Do you have a warrantee of your compressor? Hugs to you!

Any other recommendations?

Getting my ducks in a row. Anyone have recommendations for pediatric GI docs that also know CF? We may be looking at a consult.

Thank you for your input. I thought about increasing her culturelle.. It won't hurt anything. I called the nurse and she's sending an email to the doc. Might not hear back til tomorrow cause he's not there today; but that's ok...The belly thing makes me very anxious.

Thanks. I thought she might need something different than Miralax, like golytely..I think it takes disgusting as well as mucomyst. Might be a hard sell as Miralax takes like nothing. Did your child have surgery for the adhesions? My daughter had surgery at birth for meconium ileus bowel...

Looking for some input. I feel like I am having a hard time getting my child with CF's GI system back on track. It's a long story but if you have time I'll give the background. Daughter is very pancreatic insufficient. She injured herself this summer which limits her mobility...Meaning she...

Glad it worked out. Sometimes I think when we've been doing this for years, people think we make it look easy. It's our routine; but I would not call it easy; and day in day out can take it's toll.. Your MIL know you are a good mom.

I let my daughter watch the video. She said mom "I think he has CF worse than me, he takes 40-50 pills a day"...I said to her, I thought that included all the enzymes one takes for eating too. I said hun,I think you take about 25 pills just in enzymes a day. And she said oh yeah. I just...

http://www.cff.org/aboutCFFoundation/NewsEvents/9-25-OneRepublic-Video.cfm

What about giving her a sweet treat after her neb? Or doing a sticker reward chart. I think it is ok to "bribe" the kids with something. For example, if you daughter really likes jelly beans give her a couple after every neb..She'll know she is going to get a reward and will eventually look...

I prefer a baseball cap I once saw that said "did you poop today?" We'll see she's been having issues this month..Now on daily Miralax...

I try to keep it as simple as possible. We did a spread sheet with boxes to check off for nebs and meds. I also taught my daughter how to do her nebs so I make it my daughter's responsibility when I am away(as long as she's not sick)...Well, if she was sick I'ld likely cancel anyway. I think...

DId you check in with his CF doc? Poor little guy.

What were your son's symptoms that made you take him to the doc?

Just did a clean out at home for my child. We did 1 cap miralax every 2 hours times 3-4 doses...I make sure I give her lots of fluids(I always do anyway) Started the cleanout at 7am; started pooping by 3p; but it lasts for a day or two after. I also give her prune juice daily; not routinely...

Do you have the VEST from Hill Rom? If you do you can call them and They have a teddy bear that has it's own VEST; it's very cute...They should send you one. Also, I remember some instructional video from Hill Rom which showed kids doing their vest; my daughter loved watching it for some...

Do you currently have a pet? I consider our animals, a part of our family. They can enrich your life. I would not get a pet unless you truly want one, if it's like my home I am the one taking the dog out, taking him to the vet...doing the day to day care:) Our dog is about 7 and we got her...

We bought a Mobilaire Compressor by Invacare a few years ago; love it...It's not quiet but it works great. When we travel I just bring the Pari Vios, since it's lightweight...The Mobilaire is super heavy. We paid for it ourselves out of pocket about $275... If we ran it through insurance it...