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http://www.npr.org/blogs/health/2014/02/07/273174533/lung-in-a-box-keeps-organs-breathing-before-transplants

So, both my daughter and I got the same virus at the same time. High fever x 2 days, cough. Mine is actually worse than my CF daughter's at this point. Her's is slightly above baseline with some mild wheezing(we have a routine appointment next week, hoping she makes it until then) Anyway...

Thanks for all the ideas. Sometimes even going to the grocery store is just too much when there is sickness in the house. I pulled out the crockpot and made pot roast and veggies; I read somewhere about using the leftovers and using crescent rolls to make a hand pie(I know my son will love...

http://www.afflovest.com Anyone seen this? Curious how much it costs...

I think the crockpot is the way to go. I'll do a crockpot pot roast, this weekend....I've also done like a crockpot pulled pork/pulled chicken.

What are some easy quick healthy things you make when your CF child is sick? We're on yet another illness; seems like every 2 weeks....Burnout is looming for me. Cooking can be a pain but of course necessary to keep my CF child fed as well as an every hungry family. Tonight is pancakes. We...

That what I think too! It still tastes good..

Just found a new product since we've all been sick in our family this week. It's a probiotic tea from Bigelow lemon ginger flavored. It is very yummy. My daughter with CF loves it. Just wondering if it's a gimmick; figure it can't hurt anything; we usually drink tea anyway with sore throats...

As a nurse myself; I always wipe down my stethoscope, but honesty did not prior to having my CF daughter. http://www.npr.org/blogs/health/2014/02/27/283439909/stethoscopes-do-as-much-dirty-work-as-hands-in-spreading-germs

http://www.npr.org/blogs/health/2014/02/25/282576223/one-last-journey-for-organ-donors-speeds-transplants

Lungs "in a box" Cool article (does show picture of lungs, if you are squeamish) http://www.npr.org/blogs/health/2014/02/07/273174533/lung-in-a-box-keeps-organs-breathing-before-transplants

My daughter goes to a public school so it's different but she does do an inhaler and her VEST occasionally at school. We only have one VEST and it is VERY heavy; I lug it in and sit with her in a small private room, that is also used for kids to get one on one time with teachers. I spoke with...

My daughter has not been diagnosed with asthma. She did have a bronchoscopy years ago when she was 2 and a half and the CF doc said she had alot of inflammation from her CF. This is when she started her Pulmicort nebs. Lots of things can stimulate her lungs response. A virus or bad cold can...

Was your follow-up with the CF doctor or a pediatrician? My daughter has a large inflammatory component of CF which is very typical in CF. It is a cycle; infection, inflammation, and lung damage. We are trying to interrupt that cycle to prevent the damage. Hope things go in the right...

Did anyone see this the other night with Boomer Esiason and Bryant Gumbal? We don't have HBO and I wish I could have seen the interview. Boomer talked about the Boomer Esiason foundation.

Hi there, I thought that article was very interesting. That study sounds like it is in VERY early stages. I saw this on the CF services website. It is a Hypersal (7%) saline that is ph balanced. http://pharmacaribe.com It is of course different than what you are talking about. Hope...

Libby, Your twins having CF is not your fault. It is genetics. It would be like blaming you for giving your child blue eyes vs. brown. Does the hospital your babies are at have a social worker to help you get things you need; for example CF vitamins and pancreatic enzymes. A respiratory...

Welcome. Are you in the United States? Do you have family to help? Any other children? The Cystic Fibrosis Foundation at www.cff.org has information about Cystic fibrosis and care of newborns. Taking care of twins as a single mom would be alot of work so CF newborn twins is going to be...

Indoor soccer? Basketball?

Nice video!