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Looking for advice for my 11 year old daughter for a bag that will hold her compressor, bags of nebs, meds and pulmozyme(needs to be cold) When we travel I feel so disorganized and have lots of little bags but I would like to find a nice bag for her so she could manage this stuff herself, for...

Agree with the others. Do not check the VEST. We have always carried it on. I had our daughter's CF doc write a medical necessity letter for the airline re carrying on the vest; nebs meds etc. Never needed to pull it out though. Security will make us pull out the VEST scan it and they are...

We did manual CPT on our daughter starting when she was a newborn in the NICU. It became part of our daily routine. Just like changing her diaper and giving her a bath. If she was fussy; we would do CPT while she was sleeping. I usually did the am routine, my husband the evening one; I was...

Not really sure what you are asking. Could you be more specific? Does your child go to a public school? Do they have extracurricular sports? For example; cross country? Practice for my daughter was 3x a week progressed to up to an hour and 15 minutes long(they did stretches, and cool downs...

I almost titled this for the ladies but some men also have pierced ears. Anyway, my daughter (almost 11) wants to pierce her ears. I keep putting her off, I guess I am more concerned about getting an infection in her ears from it. I know when I was little I got my ears pierced and they did...

She pooped. It's a start. Phew.

We did go for a walk. Nothing. I am supposed to work tomorrow..Wondering if I should call out.

Drinking the 4th dose of miralax; still no poop. shouldn't it be working by now?

So, my 10 year old with CF has not pooped in a few days(I think). She has had a cold; which is not what I am worried about at this point. Yesterday, she woke up and said her stomach was upset and she was tired. She asked to stay home from school(unusual, she loves school)...Anyhow, she said...

Weddings can be emotional moments; that may have added to your feelings as well. I think the comment was only meant to be caring. I am the Mom; not the one with CF. I have had to harden my exterior to some of the comments which have been insensitive. I dread the day when my daughter with CF...

Hi Autumn, For bad tasting oral antibiotics I use an oral syringe and hold the child, and try to squirt the medicine past their taste buds. If your child has a favorite candy they get it immediately after. My daughter loves sour candy to be taken right after her gross liquid medicine; i guess...

So last week; I went over to the school during my daughter's study hall. She did her inhaler and about 20 min of vest in a small room the principal said we could use. Then off to cross country. One day last week I got tied up and my daughter could only do her inhaler before cross country(no...

Thank you so much for the feedback. I was looking at my daughter's schedule at school; she has a study hall every day at the last half hour of school. So, that could work to do a quick neb and vest or CPT session before heading off for cross country. I'll talk to the school; we've always done...

She does her vest 3 times a day. For afterschool activities; in the past I have tried to squeak in a session but in this case there may not be time.. With this particular activity; if she is actually really running(not walking) it may help her lungs better than the VEST. just from what I...

So, My child with CF plans on doing cross country for afterschool activity..It will be her 1st year..It is right after school.. She usually does an albuterol neb and vest right after school. Thoughts on having her do her Albuterol inhaler instead and then having her do the running. I am a...

I would buy bottled water. Our family went on an RV vacation and the RV even had signs in it saying doing not drink the water. We had an awesome time on our RV vacation; went camping white water rafting, camp fires(just made sure my CF daughter wasn't breathing in huge amounts of smoke).

Hope he feels better! did the daycare say if there has been a stomach bug going around? Sometimes I'll ask and try to find out how long it's been lasting in the kids. I always breathe a sigh of relief when I know other kids have had similar symptoms that my daughter has had.

http://files.parsintl.com/eprints/77998.pdf

Getting ready to set up a meeting with my daughter's middle school homeroom teacher. Any advice about what to go over? This year she will be switching classes more often. Last year she had the same teacher for her classes except for stuff like art, gym. music. How do you keep consistency...

Prune juice soda......one half prune juice to one half diet coke in a cup with a straw. My daughter drinks one a day; has since she could sip from a straw..Used to be half prune juice half apple juice when she was a toddler. Miralax if she gets backed up.....