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    lung function has dropped seriously

    Hi there, sorry to hear you had such disappointing results even when trying your best. Not sure what to say or recommend. If he loves to run and swim let him do it as much as possible. Maybe even at the expense of some homework or school because from your story it's not clear to me if he...
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    Lung bacterias

    A couple common CF bacteria would be and I´m sure I´m forgetting a few obvious ones, Haemophilus influenzae Staphylococcus aureus Pseudomonas aeruginosa Stenotrophomonas maltophilia Escherichia coli Burkholderia cepacia And there's some common fungi like Aspergillus fumigatus. Severity is...
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    I'm 34!

    They sure are amazing milestones aren't they. Having first grey hairs and wrinkles over here myself which is odd after having thought never to see them. Sharing the excitement and asking people to touch the wrinkle get's remarkably little sympathy and doses of pepperspray though weird. People...
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    N-Acetyl Cysteine, useless or useful?

    Thanks everyone for additional links. Thanks Calebf! Triples15 the problem with that story is that it's from PharmaNAC itself and the only real reason anyone would buy PharmaNAC ofcourse. While it's probably true to some extent I can't find much other information about this oxidized and...
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    'Man Purse'

    Hi there, interesting phenomenon indeed and I too carry a lot of emergency CF stuff around with me always and feel quite helpless without my backpack. Won't be mistaken for a man purse either but people will always think I am traveling or still a student. People that know me make jokes about...
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    N-Acetyl Cysteine, useless or useful?

    Thanks! Very interesting readingmaterial. Looks like that oxidationstory is something to look into. My first search to read about it however lands me at sites selling very expensive PharmaNAC so that's a bit fishy. (It makes a great selling point.) Now to find a list of research or tests done...
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    N-Acetyl Cysteine, useless or useful?

    Thanks. Happen to have any links? I'm trying it for a month now myself which is a bit short to say anything. When I started however I was exposed to a cold and was comming down with it (why I started) getting first symptoms. However it didn't developed into a full cold and the times I escaped...
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    N-Acetyl Cysteine, useless or useful?

    Hi there, a couple months ago there was some scam poster here trying to sell a drug having to do with Gluthation. But while Gluthation can't be taken directly as it gets broken down before it ever reaches anything it still got me reading. That led me to come across N-Acetyl Cysteine or NAC...
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    How can I safely lose 10 lb?

    You've asked this atleast five times by now here and people (and me) have taken the time to write you extensive replies. Besides doing your own research you could of atleast payed attention.
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    Every Breath: An Animation About Growing Up with Cystic Fibrosis

    Oh man those are quality animations! watched the Attack no titan one. :D Lemme get me a sizeable cup of coffee and see what else you have on your channel. (I subbed)
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    New game

    Congratulations! You win a chrocheted tablecloth. Though I might as well keep it myself. But I don't want it. Well I'm the winner I can give it to whoever I like.
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    Taking testosterone

    Having a hard time eating very likely has something to do with summer. It's hard to eat when it's very warm. Working out for 2 months is nothing, let's see in a couple years. But the fact that you aren't seeing results from working out I will guarantee you are from not eating right. And so...
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    Sleep Question

    Some googling and what a surprise, pyramid scam. Max International. What a succestory! Learn to network, sell our sugar flavored snake oil to the gullible and get rich now! https://www.youtube.com/watch?v=UEST1wyXq6o Really hope no one bought into that crap, except for you so guess who the...
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    Sleep Question

    Are you sure you aren't just advertising a "miracle drug" as per "make money on the internet" pyramid scheme? Through promoting and selling some company's product, and by paying them a monthly fee that you hope to get back.. you learn how to make websites and get inside knowledge advertisement...
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    Sleep Question

    Yep I need a lot of sleep. 8-10 hours minimum on normal days and it quickly increases with significant activity or decreased health. Can go one or two nights with less but it quickly catches up with me. Depending on where you are at with your health CF is tiring on the body, activity counts...
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    Movie Foreverland

    Not the best of movies. You can tell they took effort to inform themselves but then they stayed on the surface and were afraid to let the guy be more than a person with CF. So in the journey then nothing much eye opening happens for them or the viewer. But honestly it has to be difficult to...
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    Exercises to correct that CF-related slouch?

    It's common with pulmonary diseases. Being sick, weakness, hunging over from trouble breathing and coughing, bad posture from sitting/laying down, infections and bone weakness, antibiotics use, developing barrel chest and so on. It's hard to keep good posture when feeling good(ish), it's...
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    Exercises to correct that CF-related slouch?

    Hiya, yes, bent-over rows are effective especially in combination with training several other muscles to get a strong balanced back. With your muscles working together to make it easier to keep posture for longer periods of time. Besides traps think of your shoulders/back of shoulders, lats...
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    What is the maximum FEV1% that you have to be at to be able to receive lungs?

    Yes because how many people you put on a transplantlist is quite arbitrary and I rather wish to know how many transplants are actually done. but never mind that.
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    What is the maximum FEV1% that you have to be at to be able to receive lungs?

    Ok, About 4 million people are born in America a year. (some would call them babies) In the Netherlands about 190.000 people are born a year. (some would call them gorgeous studs) Ignoring immigration, because who knows what's going on there and atleast both countries have plenty of that so...
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