Search results

  1. T

    Battling CF kyphosis

    What are you experiences in improving structural CF related kyphosis? Have you been able to regain mobility in your thoracic spine? After a long period of malnutrition and sickness in my teens, my spine and posture were pretty bad leading into my 20's. My posture and muscular strength have...
  2. T

    Fainting/ Low Blood pressure

    Oh I absolutely hate summers, don't get me started. All the salt you lose you have to take in extra through diet, no way around it. Personally I like soup. It's a great way to take in a LOT of salt. On the other hand so much salt requires an even greater intake of water throughout the rest of...
  3. T

    Just so tiredzzzzzzzzzzzz

    Pretty normal I suppose to feel aches, pains and tired when in rest but not as much when active, got the blood and oxygen pumping and mind likely on something else. But it does sound a lot like lack of sleep. I'm 34 now, it seems I need more and more sleep as years pass. And I mean a LOT of...
  4. T

    I thought you were a smoker

    This part of that humor? Not sure. Poor guys. Ofcourse they have not a million better healthier less annoying disgusting offensive ways available to deal with their nervous intensity. I'm only just over half your age but here at my technical school in the 90's it was still okay to smoke in...
  5. T

    Traveling to Disney with CF, Vest, and Portable O2 concentrator?

    Where are your saturations at? If you only recently switched to O2 use during the day you can probably get away with doing rides without O2. You'll be excited and breathing fast so your sats will more than likely be okay. Strange thing is in rest saturation tends to go lower than when moderately...
  6. T

    Two Kids with CF - Cross-Contamination

    My two year older sister and I grew up together, played together and were in the same car all the time. (she operated the steeringwheel I did the pedals.) The advantages of growing up together far outweighed possible disadvantages and having a CF sibling is more of a blessing than a curse...
  7. T

    I thought you were a smoker

    For those that DO feel better when smokers get a taste of their own medicine. In Russia they have these Stop a douchebag and Lion versus activist groups. Search for "Lion versus" on youtube. In non smoking areas they ask smokers to put out their sigarettes and spray water at them. :D (sure I'm a...
  8. T

    I thought you were a smoker

    Yes I've often been mistaken for a smoker. People usually just blank derp stare when I tell them instead I have CF. I'm somewhat secretive about my CF but in such a case it's fun to drop that bomb. One strange way to avoid being mistaken a smoker when in a crowd and you feel the worst anyone...
  9. T

    Blood sugar improvement!!

    Well, that stuff is making your body absorb less nutrients and giving you less of an appetite. That reduces glucose levels same as eating less does. Pinpointing glucose active ingredients would be awesome but I doubt they are in there. But if it works for you, more power to you.
  10. T

    International Travel

    Take a travel insurance even if your regular insurance should cover international medical costs. The travel insurance usually covers extra medical costs and makes things go easier should you need it. What are your saturations? Cabin pressure is usually kept at about 2000 meters/6000 feet. If...
  11. T

    Vitamin D advice

    For what it's worth with brands being thrown around, the raw material that vitamine D3 supplements are made of is extremely cheap so brands have little reason to cheat with this stuff. Most over the counter vit D3 is going to be real. Indeed recently we labtested a few very cheap vitamine D3...
  12. T

    CF Clinic + Holistic medicine, does it exist? America or Europe?

    Don't really understand the rare mutation argument to be honest. CF meds in days of yore are not mutation specific at all. They fight symptoms in a broad sense not the cause. (sadly) +10 from me for oral supplementation with NAC. Have been much less susceptible to colds and random virusses...
  13. T

    Feeling tight?

    First early onset of a virus, have her eat a LOT. 500-1000 KCal surplus for a day (or 2..or 3) and sometimes the body can overcome it. Stuck sputum, a good workout session to get everything moving, opened up and cleaned out. If a virus is in full swing that needs it's time but still the...
  14. T

    Vitamin D advice

    People that lift weights are recommended way higher dosages currently. Up to 5000-10000IU. Also in 2012 the European Food Safety Authority raised the recommended daily allowance to 4000IU/100µg for every type of person and children over 11. (2000IU for children under 11 and 1000IU for infants...
  15. T

    Blood sugar improvement!!

    Oh nevermind. Another bogus product aimed at achieving life changing financial succes. Quote:
  16. T

    Blood sugar improvement!!

    Sounds interesting. Taking a quick look at the ingredients though there's some stuff in there I don't like much and am also unsure which is/are the glucose active substances if any. The Lipoic acid? The Chromium? Good idea to pinpoint so they could be taken/tried in isolation. People that...
  17. T

    Huff Coughs

    Don't know what a typical huff session looks like for you but don't think so. Ofcourse you should stop when you get too tired, dizzy or headaches. Getting gunk out outweighs whatever risk there could be but there isn't. Huffing is better for your throat and forces involved are less strong in...
  18. T

    My Church

    Yeah and I'm absolutely sure it has absolutely nothing to do with my post.
  19. T

    My Church

    That's not how that one works.
  20. T

    My Church

    The post you replied to was ancient. I should say the tone in earlier posts of mine here is a bit harsh. The type of topics I should avoid ofcourse as they become personal, easily offensive (a lot of argumentation used here to me is deeply disturbing) and easy to lose track we are communicating...
Top