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    CF and natural options... ???

    The problem is you're drinking bleach. Please stop doing that.. PLEASE don't give it to children. It does not work and it's VERY dangerous. Scientific evidence? Zero. Vague anekdotal testimonials? Plenty. So conveniently turn around on science and the FDA then to make them seem like the bad...
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    CF and natural options... ???

    No. There's no research showing any use for MMS at all and worse that it's quite toxic and dangerous. That's the worst kind of quackery and something I'd want to keep a young child far away from. Cannabis is harmless but also not that effective. I'd probably wait with that till the kid is a...
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    CF and natural options... ???

    You can try natural options as an addition but they are never in any way a replacement for regular therapy and medicine. There are no miracle supplements sadly but diet and lifestyle are crucial. (Which you could consider natural I suppose..) Always aim to have the kid at a caloric surplus...
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    Minocycline Side Effects?

    Sounds like typical messing up of your gut flora/bacteria because of the antibiotic but perhaps not antibiotic specific. 5 days is perhaps a short time for it to restore. It usually does for me even when I'm still on the antibiotic. Then usually another couple days of discomfort after stopping...
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    I probably need enzymes for medical brownies?

    https://www.youtube.com/watch?v=sCNrK-n68CM
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    Powerlifting

    Yep. The one thing that's been saving my life over the last decade when rigorous cardio training turned out to be mostly ineffective for me and my lungs were going down the drain. Nice side effect is going from having a pair of bones as legs, to achieving legs that are normal looking, to...
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    Do you play an instrument?

    Does a copper windinstrument offer constant resistance on the exhale? Kinda like a PEP mask then. :) Do you play bluegrass on the banjo? Maybe on the trombone too? Must be great fun. My main instrument is the piano. Classical pianolessons most of my childhood which I enjoyed a lot. Was also a...
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    How to know Creon is helping

    Hi there, If you are indeed PI the effects should be obvious enough.. Way less cramps, much less watery/oily stools, decent weightgain/need less food, feel better. I don't think bits of undigested food has much to do with taking Creon. Experiment with how much you need because it sounds like...
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    Original Cystic Fibrosis Song

    An amazing voice you have! Hardly my style of music but it's a great song and recorded very well.
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    CF bodybuilder James Boudreau

    People can be smart about steroids or very stupid. The latter seems pretty common. Musclemass itself is not that taxing for the lungs or heart. Not much blood or oxygen to a muscle in rest. Ofcourse putting that musclemass to (full) work costs oxygen but so does a small untrained muscle...
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    CF bodybuilder James Boudreau

    Yes, but that doesn't take away any of his achievements or hard work. Most people on roids don't ever come close to that size and shape let alone with CF. Really wish though people would be a lot more open about it (though Marc is open about it) but as a starting bodybuilder probably in the...
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    Heart rate w/exercise? Plz help

    It's too high of a heartrate for a sustained period of time. As a rule of thumb one should not exceed a heartrate of 220 minus age at peak effort so 205 in your case. Yes CF can be the cause of the high heartrate and having trouble keeping up but we do what we can and ofcourse the way to...
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    Just wondering about Pseudomonas..

    It's true that bacteria sometimes seem to push for dominance. With myself this seemed also true. Culturing staph most of my childhood I believe had a part in keeping pseudomonas away ironically. Eradicating a dominant infection could potentially open up room for another type it seems so yes...
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    CF bodybuilder James Boudreau

    Marc Lobliner is a pro bodybuilder that has a youtube channel and is one of many training channels that I'm subscribed to. To my surprise he mentions from time to time that his young daughter has a friend with CF and so once in a while he does something for CF. Lately too apparently he's...
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    I need to talk to someone

    Not sure what to say or advice to give, but we're listening. Maybe I could say that in puberty learning about and comming to terms with CF is pretty difficult so talk openly about CF with your daughter. People one can talk with about CF in all honesty and not just in positive light are pretty...
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    N-Acetyl Cysteine, useless or useful?

    You can incorporate resistance training (like any adult should CF or not) and see bone density increase a lot and in relatively short time even or especially at advanced age. The body adapts and when our bones are never exposed to decent load they quickly atrophe just like muscles and most...
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    N-Acetyl Cysteine, useless or useful?

    Let's hope it'll soon see approval and become part of everyone's CF treatment then. 3/4th of a year later I can give something of an update too. Combined with lifting weights I've been having great results in health, bodyweight and strength that combined are hard to explain other than that...
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    CF & Sexual Performance? (NSFW)

    Volume is quite dependant on the individual and CF is only part of the story. Lots of healthy males with very low volume (What we see in p0rn is misleading and not exactly average) and CF'ers with good volume. Lots of things affect it for me.: Hydration. Feeling sick. Feeling less then...
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    Anyone take aspirin for anti inflammatory purposes?

    NSAID's (non steroidal anti inflammatory drugs) like this have a known negative effect on muscle growth, muscle recovery etc. Along with other sides like being really hard on your stomach, liver and kidneys it's somewhat less harmless stuff then is often thought. Then again in light of CF...
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    exercise video for 12 yr old boy

    Haa that looks mighty interesting. Skateboarding with more of a drifting/sliding ability. (Never heard of it, feel so old, cry myself to sleep) Might have to get me one of these ripstiks..
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