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  1. E

    How do you feel on a daily basis?

    Kristen, I must say I know EXACTLY how you feel. I've been on IVs for an infection with mycobacterium abscessus for the last 6 months and clearly, the abx aren't working. I have fevers on a daily basis, I get SOB very easily and could nap 7 hours a day. I'm still working part time and going to...
  2. E

    How do you feel on a daily basis?

    Kristen, I must say I know EXACTLY how you feel. I've been on IVs for an infection with mycobacterium abscessus for the last 6 months and clearly, the abx aren't working. I have fevers on a daily basis, I get SOB very easily and could nap 7 hours a day. I'm still working part time and going to...
  3. E

    How do you feel on a daily basis?

    Kristen, <br /> <br />I must say I know EXACTLY how you feel. I've been on IVs for an infection with mycobacterium abscessus for the last 6 months and clearly, the abx aren't working. I have fevers on a daily basis, I get SOB very easily and could nap 7 hours a day. I'm still working part time...
  4. E

    Up Insulin while on Prednisone

    Prednisone is MURDER on my sugars. I become so insulin resistant that even increasing all my insulin levels (I have a pump) by 200% doesn't help much. That makes me average 400 instead of 800. <img src="i/expressions/face-icon-small-sad.gif" border="0"> In the past, though, I have found that...
  5. E

    Up Insulin while on Prednisone

    Prednisone is MURDER on my sugars. I become so insulin resistant that even increasing all my insulin levels (I have a pump) by 200% doesn't help much. That makes me average 400 instead of 800. <img src="i/expressions/face-icon-small-sad.gif" border="0"> In the past, though, I have found that...
  6. E

    Up Insulin while on Prednisone

    Prednisone is MURDER on my sugars. I become so insulin resistant that even increasing all my insulin levels (I have a pump) by 200% doesn't help much. That makes me average 400 instead of 800. <img src="i/expressions/face-icon-small-sad.gif" border="0"> In the past, though, I have found that...
  7. E

    Transplant & kidney damage

    I don't have anything to add as an answer to your question, but I wanted to thank you for posting it! I'm not quite at the point of tx yet (PFTs in the 30s-40s) but I know I'm closer to that point than I ever seriously have been. I had the same thing happen with my kidneys and IV tobramycin...
  8. E

    Transplant & kidney damage

    I don't have anything to add as an answer to your question, but I wanted to thank you for posting it! I'm not quite at the point of tx yet (PFTs in the 30s-40s) but I know I'm closer to that point than I ever seriously have been. I had the same thing happen with my kidneys and IV tobramycin...
  9. E

    Transplant & kidney damage

    I don't have anything to add as an answer to your question, but I wanted to thank you for posting it! I'm not quite at the point of tx yet (PFTs in the 30s-40s) but I know I'm closer to that point than I ever seriously have been. I had the same thing happen with my kidneys and IV tobramycin...
  10. E

    Question about CF'ers and alcohol

    @ Havoc: I admire the scientific nerd in you (please do not be offended that I called you a nerd <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). As a biologist myself, I love all of your posts and learn a lot from them! I had no idea we CFers tend to have a better tolerance for...
  11. E

    Question about CF'ers and alcohol

    @ Havoc: I admire the scientific nerd in you (please do not be offended that I called you a nerd <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). As a biologist myself, I love all of your posts and learn a lot from them! I had no idea we CFers tend to have a better tolerance for...
  12. E

    Question about CF'ers and alcohol

    @ Havoc: I admire the scientific nerd in you (please do not be offended that I called you a nerd <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). As a biologist myself, I love all of your posts and learn a lot from them! I had no idea we CFers tend to have a better tolerance for...
  13. E

    SSDI and taxes

    I get SSDI and have for a year now (a tax season's worth) and I honestly can't answer your questions. <img src="i/expressions/face-icon-small-sad.gif" border="0"> For me, I started getting payments in march of last year (including back pay). I got a letter stating what I would get monthly and...
  14. E

    SSDI and taxes

    I get SSDI and have for a year now (a tax season's worth) and I honestly can't answer your questions. <img src="i/expressions/face-icon-small-sad.gif" border="0"> For me, I started getting payments in march of last year (including back pay). I got a letter stating what I would get monthly and...
  15. E

    SSDI and taxes

    I get SSDI and have for a year now (a tax season's worth) and I honestly can't answer your questions. <img src="i/expressions/face-icon-small-sad.gif" border="0"> <br /> <br />For me, I started getting payments in march of last year (including back pay). I got a letter stating what I would get...
  16. E

    Enzymes

    I've switched back and forth from Creon and Zenpep based on availability of the drug at my pharmacy. There was one time while I was in the hosp. that my CF doc thought I was taking Creon, ordered it, and then realized I was taking Zenpep. I just used the Creon that time until I got home. I never...
  17. E

    Enzymes

    I've switched back and forth from Creon and Zenpep based on availability of the drug at my pharmacy. There was one time while I was in the hosp. that my CF doc thought I was taking Creon, ordered it, and then realized I was taking Zenpep. I just used the Creon that time until I got home. I never...
  18. E

    Enzymes

    I've switched back and forth from Creon and Zenpep based on availability of the drug at my pharmacy. There was one time while I was in the hosp. that my CF doc thought I was taking Creon, ordered it, and then realized I was taking Zenpep. I just used the Creon that time until I got home. I never...
  19. E

    ABPA and flare ups are they alot

    Yes, there is a point in taking both. The IV cortisone (steroid) is treating the inflammation/allergic reaction (what's causing your high IgE level), which is the "ABP" part of ABPA. The Itraconazole is an antibiotic (not a steroid) treating the aspergillus, the organism that is in your lungs...
  20. E

    ABPA and flare ups are they alot

    Yes, there is a point in taking both. The IV cortisone (steroid) is treating the inflammation/allergic reaction (what's causing your high IgE level), which is the "ABP" part of ABPA. The Itraconazole is an antibiotic (not a steroid) treating the aspergillus, the organism that is in your lungs...
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