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  1. E

    Mycobacterium

    <p>Hey there! <p>I've had MAC before (which is a combo of 2-3 different mycobacteria organisms), but now my main cultprit is M. Abscessus. My CF doc was the one who diagnosed it via sputum culture. They diagnose it via AFB smear (where they smear your sputum and do a special stain that stains...
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    What do you wear in the hostpital?

    I usually just wear a camisole under a regular tank or tshirt with a zip up hoodie and pj pants or sweats. I don't wear regular bras b/c I ALWAYS end up having a chest xray done the day I do, lol. Then it gets all awkward having to take my bra off while my shirt is still on and then just carry...
  3. E

    What do you wear in the hostpital?

    I usually just wear a camisole under a regular tank or tshirt with a zip up hoodie and pj pants or sweats. I don't wear regular bras b/c I ALWAYS end up having a chest xray done the day I do, lol. Then it gets all awkward having to take my bra off while my shirt is still on and then just carry...
  4. E

    What do you wear in the hostpital?

    <p>I usually just wear a camisole under a regular tank or tshirt with a zip up hoodie and pj pants or sweats. I don't wear regular bras b/c I ALWAYS end up having a chest xray done the day I do, lol. Then it gets all awkward having to take my bra off while my shirt is still on and then just...
  5. E

    portable oxygen

    First of all, let me say thank you for all of your relpies! You guys are all so helpful! I'm only on O2 at night, but I'm thinking I'll be needing O2 all the time, or at least during activities like grocery shopping or going to the doc, etc. in the near future. I'm calling the doc on monday...
  6. E

    portable oxygen

    First of all, let me say thank you for all of your relpies! You guys are all so helpful! I'm only on O2 at night, but I'm thinking I'll be needing O2 all the time, or at least during activities like grocery shopping or going to the doc, etc. in the near future. I'm calling the doc on monday...
  7. E

    portable oxygen

    <p>First of all, let me say thank you for all of your relpies! You guys are all so helpful! <p>I'm only on O2 at night, but I'm thinking I'll be needing O2 all the time, or at least during activities like grocery shopping or going to the doc, etc. in the near future. I'm calling the doc on...
  8. E

    oxygen use

    Hey all! I have just a couple questions about using O2... 1) Is there a way to tell if you're not on an adequate amount of O2 therapy, aside from just getting more out of breath? I'm currently only on 2L of O2 at night and don't really notice a difference in my days or nights. To tell the truth...
  9. E

    oxygen use

    Hey all! I have just a couple questions about using O2... 1) Is there a way to tell if you're not on an adequate amount of O2 therapy, aside from just getting more out of breath? I'm currently only on 2L of O2 at night and don't really notice a difference in my days or nights. To tell the truth...
  10. E

    oxygen use

    <p>Hey all! <p>I have just a couple questions about using O2... <p>1) Is there a way to tell if you're not on an adequate amount of O2 therapy, aside from just getting more out of breath? I'm currently only on 2L of O2 at night and don't really notice a difference in my days or nights. To tell...
  11. E

    Looking for the cartoon video for kids about cf - saw it on here.

    anytime <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is pretty cute...I love how one of them is an anteater and eating "ant spread" in the beginning! <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  12. E

    Looking for the cartoon video for kids about cf - saw it on here.

    anytime <img src="i/expressions/face-icon-small-smile.gif" border="0"> It is pretty cute...I love how one of them is an anteater and eating "ant spread" in the beginning! <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  13. E

    Looking for the cartoon video for kids about cf - saw it on here.

    <p>anytime <img src="i/expressions/face-icon-small-smile.gif" border="0"> <p>It is pretty cute...I love how one of them is an anteater and eating "ant spread" in the beginning! <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  14. E

    Looking for the cartoon video for kids about cf - saw it on here.

    You'll have to copy and paste it, sorry...I guess I don't know how to actually make the links into links.
  15. E

    Looking for the cartoon video for kids about cf - saw it on here.

    You'll have to copy and paste it, sorry...I guess I don't know how to actually make the links into links.
  16. E

    Looking for the cartoon video for kids about cf - saw it on here.

    You'll have to copy and paste it, sorry...I guess I don't know how to actually make the links into links.
  17. E

    Looking for the cartoon video for kids about cf - saw it on here.

    Could you mean the british kids, Oli and Nush?   http://www.youtube.com/watch?v=WuI72eMrIQI   If this isn't the one, it's pretty cute and worth watching anyway! <img src="i/expressions/face-icon-small-wink.gif" border="0">
  18. E

    Looking for the cartoon video for kids about cf - saw it on here.

    Could you mean the british kids, Oli and Nush? http://www.youtube.com/watch?v=WuI72eMrIQI If this isn't the one, it's pretty cute and worth watching anyway! <img src="i/expressions/face-icon-small-wink.gif" border="0">
  19. E

    Looking for the cartoon video for kids about cf - saw it on here.

    <p>Could you mean the british kids, Oli and Nush? <p> <p>http://www.youtube.com/watch?v=WuI72eMrIQI <p> <p>If this isn't the one, it's pretty cute and worth watching anyway! <img src="i/expressions/face-icon-small-wink.gif" border="0">
  20. E

    I get embarrassed when I'm out of breath

    I'm already on O2 at night and on IVs for an infection. Last time I went to the doc was about 3 weeks ago and had a needle change/labs done for my port yesterday. Thanks for the advice, but I'm just venting about being out of breath and feeling uncomfortable about it, and wondering if others...
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