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    Need for Better Searching capabilities

    Not sure where to advocate for features, but these forums need better searching ability, or even for the existing advanced search to work resonably well. There is so much informatioin here in this forum datebase and everytime I try to find something from the past it is next to impossible...
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    Need for Better Searching capabilities

    Not sure where to advocate for features, but these forums need better searching ability, or even for the existing advanced search to work resonably well. There is so much informatioin here in this forum datebase and everytime I try to find something from the past it is next to impossible...
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    Can somebody give me some answers, please!

    Have you or do you exercise? It sounds like you are deconditioned. I'd suggest starting to excercise if you do not already. You may need extra O2 when exercising so keep track of you O2 stats if you can. You may think about asking to do pulmonary rehab. I would highly recommend it. They...
  4. C

    Can somebody give me some answers, please!

    Have you or do you exercise? It sounds like you are deconditioned. I'd suggest starting to excercise if you do not already. You may need extra O2 when exercising so keep track of you O2 stats if you can. You may think about asking to do pulmonary rehab. I would highly recommend it. They...
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    What song do you relate your CF fight to

    "Eat It" by Weird Al just came to mind as I sit here pounding a container of almonds. Disturbed- "Down with the sickness" as others have already mentioned is one of my favorites.
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    Coughing more on Prednisone?

    There is really no telling. I doubt it is the prednisone (based on my experience). There certainly are a lot of viruses going around. If she has no fever, I'd probably give it another day or two to let the culture cook, but a call can never really hurt if it helps ease your mind.
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    Coughing more on Prednisone?

    There is really no telling. I doubt it is the prednisone (based on my experience). There certainly are a lot of viruses going around. If she has no fever, I'd probably give it another day or two to let the culture cook, but a call can never really hurt if it helps ease your mind.
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    Ideas for venus

    I think you are over reacting here a bit. You were a bit naive with your posts and someone called you out on it. No biggie, take it as a learning experience. By getting defensive, you are making yourself look worse and more naive. Not sure where you go to clinic and or hospital, but cross...
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    Ideas for venus

    I think you are over reacting here a bit. You were a bit naive with your posts and someone called you out on it. No biggie, take it as a learning experience. By getting defensive, you are making yourself look worse and more naive. Not sure where you go to clinic and or hospital, but cross...
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    pari trek nebulizer compressor

    Technically the pari trek is inferior because it does not break the drug down to smaller particle sizes compared to other nebulizers. Therefore, it is not going to be as effective or get as deep into your lungs. I don't believe it is approved for tobi. That said I am not sure what the...
  11. C

    pari trek nebulizer compressor

    Technically the pari trek is inferior because it does not break the drug down to smaller particle sizes compared to other nebulizers. Therefore, it is not going to be as effective or get as deep into your lungs. I don't believe it is approved for tobi. That said I am not sure what the...
  12. C

    Joint Pain

    First thought is gout. Have your uric acid levels checked. Did you have any changes to your diet before this happened. ie. Did you eat a lot of foods high in Purines...
  13. C

    Joint Pain

    First thought is gout. Have your uric acid levels checked. Did you have any changes to your diet before this happened. ie. Did you eat a lot of foods high in Purines...
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    Note to self

    I think one of the real issues is that you just can't go on the internet and buy 10 altera nebs cheaply so that you have some flexibility in cleaning. The process does not have to be much different then what you do for your other nebs. If you boil your other nebs after each use, you should...
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    Note to self

    I think one of the real issues is that you just can't go on the internet and buy 10 altera nebs cheaply so that you have some flexibility in cleaning. The process does not have to be much different then what you do for your other nebs. If you boil your other nebs after each use, you should...
  16. C

    Tap Water

    It is not like distilled water is perfectly safe. Distilled water is not sterile. If you are that concerned then I'd just boil all your pieces after each use, even in tap water. Maybe you can boil a bunch of water and use that to rinse with, again, if you really are that concerned. There are...
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    Tap Water

    It is not like distilled water is perfectly safe. Distilled water is not sterile. If you are that concerned then I'd just boil all your pieces after each use, even in tap water. Maybe you can boil a bunch of water and use that to rinse with, again, if you really are that concerned. There are...
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    spirometry

    I don't see why it matters as long as you are consistent each time you do them. They may have a policy so that they just know that you are doing them the same way each time. Even if you can do better standing vs sitting, it does not really matter. Best to do it whatever way you can have the...
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    spirometry

    I don't see why it matters as long as you are consistent each time you do them. They may have a policy so that they just know that you are doing them the same way each time. Even if you can do better standing vs sitting, it does not really matter. Best to do it whatever way you can have the...
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    Anyone culture MRSA

    Yup. MRSA has increased my exacerbations big time. I am still trying to figure out how to control them. My docs want me on inhaled tobi or cayston for PA, but I am convinced that when I start these it sets off my MRSA. If I try to do oral Zyvox it helps for about 4-6 weeks and then I seem...
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