Search results

  1. C

    Anyone culture MRSA

    Yup. MRSA has increased my exacerbations big time. I am still trying to figure out how to control them. My docs want me on inhaled tobi or cayston for PA, but I am convinced that when I start these it sets off my MRSA. If I try to do oral Zyvox it helps for about 4-6 weeks and then I seem...
  2. C

    Daily bloating - Mystery solved!

    I think there is a lot of sense with some of these diets; and if you have the will power and can eat enough food to maintain a healthy weight, then my hat is off to you. I eat a fairly healthy diet and work hard to maintain a healthy weight. While I can will myself to eat a ton to gain weight...
  3. C

    Daily bloating - Mystery solved!

    I think there is a lot of sense with some of these diets; and if you have the will power and can eat enough food to maintain a healthy weight, then my hat is off to you. I eat a fairly healthy diet and work hard to maintain a healthy weight. While I can will myself to eat a ton to gain weight...
  4. C

    Cruising with CF

    I have been on 2 cruises with all the gear. The rooms are small, but It is only for a short time (week), so I didn't find it a big deal. It was just me and my wife though. One recommendation is to bring a power strip. The Carnival rooms I was in only had a single outlet, and if I remember...
  5. C

    Cruising with CF

    I have been on 2 cruises with all the gear. The rooms are small, but It is only for a short time (week), so I didn't find it a big deal. It was just me and my wife though. One recommendation is to bring a power strip. The Carnival rooms I was in only had a single outlet, and if I remember...
  6. C

    Should I get a wheelchair?

    How about a segway? Not sure about Seattle, but many cities have rentals and even segway tours. Its alot of fun too.
  7. C

    Should I get a wheelchair?

    How about a segway? Not sure about Seattle, but many cities have rentals and even segway tours. Its alot of fun too.
  8. C

    Horrible acne breakout

    I don't have much to offer except to say that I also break out with acne from Linezolid, usually towards the end of a 14 day coarse, mostly upper back and chest. I assume it is just a side effect and not being allergic.
  9. C

    Horrible acne breakout

    I don't have much to offer except to say that I also break out with acne from Linezolid, usually towards the end of a 14 day coarse, mostly upper back and chest. I assume it is just a side effect and not being allergic.
  10. C

    Horrible acne breakout

    I don't have much to offer except to say that I also break out with acne from Linezolid, usually towards the end of a 14 day coarse, mostly upper back and chest. I assume it is just a side effect and not being allergic.
  11. C

    HTS prior to Pulmozyme

    I hardly ever have any break in between. I can tell a difference when I do the pulmozyme and times when I don't so something must be working. At times if I am out of clean/sterile nebs I will even use the same empty neb. I think even with the trio eflow they tell you to just do them in the...
  12. C

    HTS prior to Pulmozyme

    I hardly ever have any break in between. I can tell a difference when I do the pulmozyme and times when I don't so something must be working. At times if I am out of clean/sterile nebs I will even use the same empty neb. I think even with the trio eflow they tell you to just do them in the...
  13. C

    HTS prior to Pulmozyme

    I hardly ever have any break in between. I can tell a difference when I do the pulmozyme and times when I don't so something must be working. At times if I am out of clean/sterile nebs I will even use the same empty neb. I think even with the trio eflow they tell you to just do them in the...
  14. C

    Can't seem to shake the PA.. 5th hosp visit this year.

    Are her cultures still sensitive to Tobra and Aztreonam? If not, then maybe they are not working like they used to. I am sure after so many exacerbations close together her body is pretty run down and weak. I know I have had this happen a couple times in my life where I did not get my...
  15. C

    Can't seem to shake the PA.. 5th hosp visit this year.

    Are her cultures still sensitive to Tobra and Aztreonam? If not, then maybe they are not working like they used to. I am sure after so many exacerbations close together her body is pretty run down and weak. I know I have had this happen a couple times in my life where I did not get my...
  16. C

    Can't seem to shake the PA.. 5th hosp visit this year.

    Are her cultures still sensitive to Tobra and Aztreonam? If not, then maybe they are not working like they used to. <br /> <br />I am sure after so many exacerbations close together her body is pretty run down and weak. I know I have had this happen a couple times in my life where I did not...
  17. C

    A sex question for CF men (and especially their partners)

    Are you using a condom?  If not, you could be allergic to your partners semen. I saw this on Dr. Oz once. If its the case, you can be desensitized by a doctor.
  18. C

    A sex question for CF men (and especially their partners)

    Are you using a condom? If not, you could be allergic to your partners semen. I saw this on Dr. Oz once. If its the case, you can be desensitized by a doctor.
  19. C

    A sex question for CF men (and especially their partners)

    Are you using a condom? If not, you could be allergic to your partners semen. I saw this on Dr. Oz once. If its the case, you can be desensitized by a doctor.
  20. C

    Eflow Car Adapters

    Easiest way is to get a power inverter. I have something like this, although I have only used it for nebbing on a long trip. http://www.walmart.com/catalog/product.do?product_id=15529721&findingMethod=rr This one I quickly found is nice since you can still charge your phone if it plugs into...
Top