Search results

  1. J

    Surprising results

    This is interesting. I was trained early on in good breathing through singing and playing the flute. Until last summer, my PFTs had always been quite high. They were mostly in the 90s for years and then had slowly dropped over the last few years until my FEV1 and FVC were both in the low 80s...
  2. J

    Surprising results

    This is interesting. I was trained early on in good breathing through singing and playing the flute. Until last summer, my PFTs had always been quite high. They were mostly in the 90s for years and then had slowly dropped over the last few years until my FEV1 and FVC were both in the low 80s...
  3. J

    neuropathy?

    2 hours after the 1st bite
  4. J

    neuropathy?

    2 hours after the 1st bite
  5. J

    neuropathy?

    Okay, I checked my blood sugar after meals yesterday. Two hours after dinner, which was full of carbs, my sugar was 110, and I think that's good. However, this morning before I ate (I never ate anything else after dinner last night), it was 116. That seems strange to me, but I'm pretty...
  6. J

    neuropathy?

    Okay, I checked my blood sugar after meals yesterday. Two hours after dinner, which was full of carbs, my sugar was 110, and I think that's good. However, this morning before I ate (I never ate anything else after dinner last night), it was 116. That seems strange to me, but I'm pretty...
  7. J

    neuropathy?

    I had a lot of labs done back in November for tingling in my hands and feet. I originally thought it was from the IV antibiotic I was on, so mentioned it to the doctor, and he wanted to rule out a lot of issues that could cause the problem. My A1c is 6.0, which doesn't seem high enough for...
  8. J

    neuropathy?

    I had a lot of labs done back in November for tingling in my hands and feet. I originally thought it was from the IV antibiotic I was on, so mentioned it to the doctor, and he wanted to rule out a lot of issues that could cause the problem. My A1c is 6.0, which doesn't seem high enough for...
  9. J

    port questions

    Hi Jeana, I think my experience was pretty similar to yours with the port. It was rather painful for the first couple of weeks. After that, it wasn't too bad, but I remember noticing it a lot and not being able to sleep on that side without pain for a long time. That eventually went away...
  10. J

    port questions

    Hi Jeana, I think my experience was pretty similar to yours with the port. It was rather painful for the first couple of weeks. After that, it wasn't too bad, but I remember noticing it a lot and not being able to sleep on that side without pain for a long time. That eventually went away...
  11. J

    pari trek nebulizer compressor

    I use the Trek when I travel and in my car, and it works pretty well. I like it because it is so light and small. It gets "tired" and takes longer when I do my hour of treatments, but it's worth the extra time to me for traveling easily. When I do shorter treatments--for example, Tobi on my...
  12. J

    pari trek nebulizer compressor

    I use the Trek when I travel and in my car, and it works pretty well. I like it because it is so light and small. It gets "tired" and takes longer when I do my hour of treatments, but it's worth the extra time to me for traveling easily. When I do shorter treatments--for example, Tobi on my...
  13. J

    port being placed tomorrow

    I think you'll like the port, Jeana. It's wonderful not to have to worry about getting a PICC line when you need IVs. Praying all goes well for you!
  14. J

    port being placed tomorrow

    I think you'll like the port, Jeana. It's wonderful not to have to worry about getting a PICC line when you need IVs. Praying all goes well for you!
  15. J

    Blood in sputum

    Hi--sorry to hear you're having a tough time. Coughing up blood is nasty but doesn't generally represent a problem as long as it is mixed with mucus. When you cough up straight blood, you usually know it right away--it gets everywhere. Even then, though, I think it's only a problem if it's a...
  16. J

    Blood in sputum

    Hi--sorry to hear you're having a tough time. Coughing up blood is nasty but doesn't generally represent a problem as long as it is mixed with mucus. When you cough up straight blood, you usually know it right away--it gets everywhere. Even then, though, I think it's only a problem if it's a...
  17. J

    Does anyone recognize these symptoms

    Gunhild, As far as I know, that isn't something related to CF. It actually sounds more like a migraine. I don't have trouble hearing when I get a migraine, but I do have all of the other things--"spotty" vision and sometimes darkness around the outsides of my vision; weakness and tingling in...
  18. J

    Does anyone recognize these symptoms

    Gunhild, As far as I know, that isn't something related to CF. It actually sounds more like a migraine. I don't have trouble hearing when I get a migraine, but I do have all of the other things--"spotty" vision and sometimes darkness around the outsides of my vision; weakness and tingling in...
  19. J

    Daily bloating - Mystery solved!

    As far as the bloating--I recently saw a GI doctor who told me to take charcoal pills because they will absorb some of the extra gunk my system is not properly absorbing. I take a couple of the pills after every meal, and it has made an unbelievable difference. My bloating and stomach pain are...
  20. J

    Daily bloating - Mystery solved!

    As far as the bloating--I recently saw a GI doctor who told me to take charcoal pills because they will absorb some of the extra gunk my system is not properly absorbing. I take a couple of the pills after every meal, and it has made an unbelievable difference. My bloating and stomach pain are...
Top