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I was diagnosed with CF related arthritis when I was 9...I am now 32. It is so painful on some days that I cant move at all. I took ibuprofen, then celebrex for 3 years. I have seen a rheumatologist and none of the meds he has tried have worked. Right now, I rely on prednisone to get me...

I have that book..which I have read. I would be more than happy to send it to anyone who might like to read it. I highly recommend it as well! Dea 32 w/CF

Hi, I am 32 w/CF and went to St.Louis Childrens as a child and now go to Barnes Jewish as an adult. I can help you with the St.Louis area. Ihave a question too...about your last name...is it Harwell? That was my maiden name...we are in southern Illinois. Dea

Its funny how you can see a topic like this...and know what is going to be posted wtihout even reading them. I just wanted to say to the original poster, that I am sorry you have had 2 pregnancies with CF. I am a mother and I have CF....so I can also see both sides of your situation, although...

I am 32 with CF, have a younger sister (without) and a younger brother also with CF. I couldnt imagine my life without CF, but yet I also feel like a burden at times as well. When I read the post about aborting a child with CF, it made me sad as well. None of us enjoy having this disease, but...

I know a set of fraternal twins...the little girl has CF...the little boy does not. Dea

Hi, I'm 32 w/CF , married and have a wonderful 7 yr old daughter (CF free). Ive done fairly well with the CF over the years. I was diagnosed before I was 6 mos old and have the double delta F508 mutation. Over the last couple of years, however, some complications are getting worse. My lungs...

Hi Kristen, Having 1 copy of the delta F508 is not the same as having the double delta F508....but have they told you that she has 2 copies of the delta F508? Just curious.... Just wanted to say that I have the double delta F508 and am 32...and am doing fairly well -lungwise anyway. Ive...

I'm in southern Illinois and today the range is from #2.81 to $2.96...depending on what gas station you go to...which is ridiculous. Dea

I am 32 w/CF and also have a brother who is 25 w/CF. My brother also smokes...and has for many years, unfortunately. I can only tell you from experience...that we can only let them know how we feel. They have to make the decision for themselves. It is very very hard to stand by and watch...

Hi Wander, I thought I would try to answer your questions... Yes...I did have gestational diabetes...toward the last month..but only monitored my sugars as well...no special diet or insulin. I did deliver early...I was a little over 36 weeks-my daughter was very healthy-and weighed 6lbs. I...

Hi there, I also am a CF mom. I am now 32 and have a healthy 7 year old daughter. My pfts were in the high 70s when I became pregnant...and had no lung trouble throughout the pregnancy. I also delivered early at a little over 4 weeks before the due date. I also was diagnosed with gestational...

I also go every 3 months...as long as I am "well". Dea 31 w/CF

I live in Illinois and have terrible sinus problems. I noticed when I traveled to Florida...they were much better. The weather in Illinois right now is just awful...so I'm sure it didnt help you any. I hope for your sake...it was regional! Good Luck! Dea 31 w/CF

I live in southern Illinois so I understand the weather. Summers here are so unbearably humid. I usually have to turn on the a/c in April so I can breathe easier. Unfortunately, it runs all spring, summer, and fall....until the temperatures start to cool down considerably. Without it...

This is such a touchy subject, but I am going to address it as well. I cant say that I have ever blamed God for my CF....but I have asked the question, "Why me?" in general, many times. Then I can usually answer myself and say that for some reason, this was meant to be. I honestly can say that...

Usually...CFers with diabetes need some type of med to help to control the blood sugars....whether it being insulin or oral meds. I have been a diabetic now for 6 1/2 years and still take oral meds. My blood sugars are well controlled. However, MOST CFers with diabetes, usually need insulin...

Clubbed fingers is a symptom of disease, often of the heart or lungs which cause chronically low blood levels of oxygen. Diseases which cause malabsorption, such as cystic fibrosis or celiac disease can also cause clubbing. Clubbing does not cause pain in any way....it is just a distortion of...

I would like to say..yes people die from CF..as well as many other things. I am now 31...born in 1973. The odd were not good for me then..but I am doing very well for a CFer. I also have a brother who is 24 with CF...and also doing quite well. I know many others with CF that are in their 40s...

Lilly, Having CF can interfere with getting your menstrual cycle. Puberty is delayed in many with CF. Dont worry about getting your period...it will happen. I was almost 17 when I got mine. Be patient...Take Care! Dea