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Hi Alex -- sorry to hear about your diagnosis. As someone already said above, it's better to know so the doctors can give you more appropriate treatments for CF. I was diagnosed at 34 after a long series of lung infections that weren't clearing up. Once they knew I had CF, they gave me...

The 110 and 80 look like percentages. Take a look at this discussion forum to better understand them: http://forum.cysticfibrosis.com/threads/51373 i agree with the comment above -- exercise is a really good supplement to breathing treatments. Do they test his sputum for infections? Sometimes a...

I was diagnosed at 34 after a series of lung infections that wouldn't clear up, so your story sounds similar to mine -- although your diagnosis is even later. Based on your symptoms, I'm assuming you're also pancreatic sufficient, which is also the case for me. Now that they've determined that...

I'm glad you got your appointment moved up. Hopefully one of the meds will help you start feeling better. Assuming the tests identify your problem, they should be able to start treating it properly. I know it's hard not to worry -- I hope the results are back soon.

I don't have much new to add, but I agree that it's better to look at actual numbers. Several years ago my clinic switched the expected value data source from the 1960's to something more current. It appeared my lung function dropped 10%! At that point I started looking at actual numbers. I find...

Great responses above already. I'll try to add a few other comments. CF cases vary considerably from person-to-person. Some of the factors that can effect a person's health: 1) Which gene mutation they have -- there are many associated with CF. Some mutations cause more mild symptoms and some...

As noted above, IV Amikacin can cause permanent hearing loss. I've been told that Azithromycin can cause temporary hearing loss. Both can cause ringing in your ears. You need a hearing test. I was on IV Amikacin for an extended period and went for monthly hearing tests. I did lose some of my...

I'm glad to hear the appointment went well and you are being referred. Hopefully, they'll be able to move you up. I also had to wait about two months before I saw a respirologist, which eventually led to my CF diagnosis. It was a frustrating wait, but I was relieved when they finally figured out...

I have a lot of problems with fungus on my feet. I use prescription Lamisil, which seems to provide temporary relief. I think taking so many antibiotics makes me prone to fungus. I'm not pre-diabetic or diabetic, so I don't know if that could be causing your problem.

My allergist referred me to a resperologist who decided to do a genetic test for CF based on my prior positive and negative sweat tests. (They also couldn't figure out what was causing my symptoms.) Once the test came back positive, I was quickly referred to the CF clinic. I think you're...

My comments are essentially the same as others, but my story is similar to yours. I was diagnosed with a sweat test around 5 years old in the early 1970s. We then moved to another state and my parents had me retested. The sweat tests came back negative. They repeated the tests and continued to...

I have coughed up blood several times in the last year. My CF clinic put me on Vitamin K, which has definitely helped me. I was initially taking hypertonic salines twice a day, and they also cut me to once a day. As commented above, you should definitely check with your CF team. They will be...

I do my sinus rinse first thing in the morning as part of my medical routine. I had sinus surgery many years ago and my ENT got me starting doing sinus rinses. I use a home-mixed combination of distilled water, salt and baking soda and rinse using an ear syringe. My ENT told me not to do it...

I bought a box of 7% last year. It cost me $75 (Canadian dollars)! Because of the very high price, I went back to buying bags of hypertonic saline for $3.50 each.

Related to comments above, I get CT scans twice a year because I have mycobacterium abscessus. In addition to my CF doctors reviewing it, I take the scans with me to my NTM doctor for his review. The cost of the scan is covered by the provincial health plan (I am in Canada), so I don't pay...

I go to a very large adult CF clinic. They have different days of the week for cepacia, people on IV meds, GI issues and everything else (the big clinic!). You have an assigned appointment time although I think people don't always pay attention to their time -- some show up early, others late...

Sorry for the slow response -- I'm just seeing your follow-up now. I don't really have any idea where I caught the pseudomonas. I lived in Chicago at the time, worked in a large office, took public transit. It could have been any number of places. I moved to Canada about a year and a half...

I've been on Cipro for years and I have not had issues with ongoing depression or anxiety. If you this on an internet page of side effects, you may want to talk to your doctor for clarification. They usually have better information on how common/frequent side effects are.

I agree with the frequent nasal rinses, hypertonic saline and lung clearance. I also start taking Cold FX anytime I think I'm getting a cold. It seems to work for me. Unfortunately, I find once I get a cold, I end up with stuff in my lungs which sets me back.

You're already exploring this, but I was going to suggest you might have c difficile. I had it about two years ago. They caught it early for me and it was easy to get rid of. I would also recommend probiotics. I take Florastor, although I've seen others on here recommend other brands. Good luck!