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    Embarrassing questions about sex

    Unless she's sick herself, it's probably fine. Remember to play safe, though.
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    Post Your Orkambi Updates

    Medicaid update. Just had an appointment with my doc, she's saying that Florida medicaid isn't even acknowledging the drug until some meeting in December. Some other people mentioned Arkansas and California doing similar things, so I guess that's just the situation with medicaid at the moment...
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    help building muscle post lung transplant

    I don't really know your physical capabilities and limitations, but I hear Stronglift 5x5 is a pretty good starting routine. A workout basically consists of 3 different lifts (out of 5) at 5 sets of 5 apiece. I'm sure it could be tailored to what you can handle so you're not pushing yourself...
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    Post Your Orkambi Updates

    Someone had asked me to relay my experience as someone on medicaid, so my update. I got a call last Monday saying they had to contact my provider and all that and that they'd call that in 2-3 days. A week later I hadn't gotten a call so I just called them myself. Turns out the drug is...
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    Post Your Orkambi Updates

    Just talked to Vertex yesterday and they are currently in talks with my medicaid provider. I should know something in a day or two and will let you know how it goes.
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    mucus clearing in throat/trachea? Tips anyone?

    Can't answer about the Vibralung, but I do have crap in my throat a lot. I find that it usually means I need to cough something up even if I'm not feeling overly congested. If I can, I just try to force it; huff cough, something to get it up and out. If you swallow it, it just ends up right...
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    Post Your Orkambi Updates

    I hadn't heard anything from my doc for the past week, so I gave 'em a call to ask about it. Turns out they were already working on it, so that's cool. They asked me if I had documentation of the screening that determined double delta. I didn't but it got done by the previous caseworker at...
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    What I wish my teachers/ school counselor knew about CF

    My only problem in high school was failing four classes in my 10th grade year because I was in the hospital for four weeks (two two-week visits) and no one would help me with the material I missed. Almost happened again in 11th grade but they just said "forget it," and forgave the grades rather...
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    How long til IV antibiotics take effect? /o2 dependency

    For me the first 3-5 days are slow-going, but that's because my bugs have so many resistances that before cultures come back they're just throwing what they have and seeing what sticks. After they get proper drugs in order, usually I feel a little better within a few days. However, being on...
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    Leftover medications.

    The only one here appears to be at the city police station where I presume they just destroy them. I was hoping to get them to someone who might actually use them, but I guess this is an option if nothing else pans out. Had a thought last night to call the clinic I went to as a kid. We don't...
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    Leftover medications.

    I've been doing some cleaning around my house and realize that I have a lot of leftover medication. For a while my doctor was prescribing me a third more Creon than I actually took and eventually it just stockpiled because I couldn't hold my other monthly deliveries. Then I switched to Pertzye...
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    Good battery powered Compressor

    I have a Trek S, I didn't even realize it had the battery option. Maybe it was something extra I didn't get. It works great for travel. I use it when I visit my mom's house for the afternoon or go out of town and use it in a hotel. It takes a little longer than my Vios (15 minute albuterol...
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    The risks of cystic fibrosis diet

    Just remember that CFRD is a thing and that high blood sugar is an inflammatory which can be unpleasant in the short-term, and damaging in the long-term.
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    Vitamin Programs

    I was told that with certain enzymes, Creon I know for sure but I don't know which else, the company that makes them will give you a "free sample" (30 day supply) with your monthly orders. I still get them even after I switched to Pertzye. It may just be my pharmacy since it's a CF-special...
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    Doing meds

    I use a Pari Vios for my day-to-day treatments, and I have a Pari Trek S for when I have to go out of town or spend an afternoon out. In reality though, the Vios only weighs like 5 pounds so before I got the smaller one, it really wasn't an issue to toss it in my backpack and take it when I...
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    E rapid

    I use it for my Cayston. Works pretty well, takes about 2 minutes to do a 1ml dose. Cleaning it is like cleaning any of your other nebs. I just rinse it off and toss it in a pot of boiling water, minus the metallic contact thing inside. That you just rinse off and let dry. Never tried using...
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    Reaction to Bactrum - Alternative suggestions?

    Last time I was on bactrim they had to take me off because of kidney function problems that went away after I stopped. I was on fortaz, coliston, and the bactrim. Then they switched it to doxycyclin, but obviously it all depends on your friend's sensitivities and whatnot.
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    What do you take with you when admitted!

    Usually just my laptop, some clothes, and my DS. Every time is like "hey, I got all this free time so I can finish ______" and then I usually end up having no energy or drive and end up watching television or trying to sleep for most of the trip. Seriously, though, you can't sleep in those places.
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    To NUK or not to NUK

    When I'm in the hospital, everything they give me is in disposables and they just switch 'em out every couple days or so. Then if I have to bring something like my Cayston neb, they give me some solution to soak it in. Though, I have used a baby bottle sterilizer and it's pretty easy to use...
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    Cystic Fibrosis and Florida? Live in Florida? Please Reply!

    1. My medicaid covers nearly everything. It doesn't cover flu shots ($30 at Walgreens) or supplements (I get vitamins for free with my enzymes), but apart from those things, I've paid maybe $150 total out of pocket in the past decade. It's pretty good. I don't know about the application...
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