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  1. O

    NAC Brands - any recommendations

    I did take the PharmaNAC for a month ($45 for a box is insane on a budget) and honestly felt very little difference to not taking it. Plus it just tasted awful. The Now stuff at least let me up the dose up to 2 grams a day, 2 pills twice a day, and I did it for about a year, give or take a...
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    NAC Brands - any recommendations

    I used the NOW Foods one on amazon. Has a bright orange label and is a lot cheaper than PharmaNAC.
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    Jury Duty and CF

    Did the website not list what the accusations are? Maybe look around a little more. My state has a database that lists all that stuff and you can search by name and birthday and also lists in what county it's active. As a citizen you have a right to know of what you're accused. So be sure...
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    First Tune Up

    You get to a point where this is the case. For me, I start running these stupid little temperatures every night. Not fevers, just like 99.5-99.9 and my head's kinda fuzzy, then increased mucus and decreased appetite on top of it. At that point, I start expecting to need it then a simple call...
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    Scholarships

    I'm sure you've already done this but it can't hurt to suggest, but see if you don't qualify for a pell grant. I got a 100% free ride from it. Though, to be fair, I also only had my SSI as income in college so technically had a taxable income of $0.
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    First PICC line ever -- panicking

    This. They give you a numbing agent when putting it in, so all you feel is the needle, the initial burn of the lidocaine, and then the pressure of them pushing against your arm for about 10 minutes. Dressing changes are literally the worst part. Doesn't help that I'm a hairy fellow. Good...
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    Was it hard leaving home?

    Hard? Nah, not really. Then again my home life wasn't the best and I would've accepted a lot less than what I currently have just to get out of there. I also already had my SSI set up, so it was really just a matter of finding a place and moving. Best thing I ever did. That said, I don't...
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    Hemoptysis questions

    It doesn't happen often for me, maybe once or twice a year. For me it mostly happens when I'm on things like blood thinners, ibuprofen, that kind of thing. Which is a pain in the hospital, since they put you on blood thinners for the picc line. Inflammation from high blood sugar can do it to...
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    Any smart storage solutions?

    I know that feeling. My desk is a disaster area of pill bottles, nasal sprays, and nebulizer stuff. I mean it has drawers, but most of it I need every few hours so there's not much point it putting it away. I'm also the kind of person who'd likely forget some of the less frequent things if...
  10. O

    Pain in lung

    Could've just slept wrong. I've done that. Just took a tylenol and rolled with it. If it's not affecting your breathing or your cough, I wouldn't worry about it. When in doubt, though.
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    should I go into hospital

    In general, when in doubt, call your clinic. I'd definitely call the clinic were it me. Feel better.
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    Nebulized Colistin.

    Thank you for the response. It honestly wouldn't surprise me if I was doing too much, it sure feels like it, but the labels say to do two vials a day. So I'm guessing a full one is a regular dose. Plus, I was doing this in the hospital and tolerating it fine, or maybe I just didn't notice...
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    Nebulized Colistin.

    I was recently hospitalized for the usual two week course and sent home on nebulized colistin. I've never done it before outside of the hospital, so I don't know entirely how to mix it and it didn't come with directions beyond "nebulize twice daily." They gave me 3ml syringes, some sterile...
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    When do you need Oxygen?

    If you aren't exercising at least somewhat regularly, you should be. Doesn't even have to be intense, just get up and walk for a while. My big decline, personally, came after I finished college and suddenly I wasn't out and about on campus 4 days a week. Otherwise, rigorous adherence to your...
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    vertex submitted its application today for double f508del to the FDA and EU

    Hopefully, as someone with roughly 22% FEV1, I qualify for that. I assume the red tape'll be a pain or it won't be available in my region or something, though.
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    When do your CF doctors glove up?

    Gloves when they enter the room at any time, but doctors only gown up when they come to listen to my lungs. Like, if they come in and stand near the door and ask questions they don't tend to gown up. Nurses do both always. Edit: I just realized this was for appointments, not hospitalizations...
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    Have you ever checked yourself in "voluntarily" for a tune up?

    I'm at the point where I'm doing it every 3-4 months. But I'm fairly low function and can really feel the difference a few months make. Even right now I'm coughing up way too much in general lately and will probably do it again next month. To answer your question, occasional maintenance never...
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    Scar tissue

    Depending on your veins, it may take a while. I've had piccs 1-3 times a year since 2009, a little more sparsely before then but still every couple of years and, fortunately, I haven't burnt out my veins yet. As someone else said, your other option is a port. Not something I want to do until...
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    Passing out while coughing

    Geeze, if I passed out every time I had a coughing fit, I'd be out most of the day. Sounds like a problem with oxygenation and definitely should be mentioned to your doctor.
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    Shortness of breath...

    When in doubt, call your doctor. Better to be overly cautious and have it be nothing than the opposite.
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