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    Medical bills...

    Is there anyone else out there getting pissed off & depressed because of the cost of this damn disease? After my last little 'wreck' the bills are mounting. I think I just need to say 'I WAS BORN THIS WAY! I DIDN'T ASK FOR THIS! I DON'T LIKE HAVING TO GO THROUGH ALL THE MEDICAL PROCEDURES & I...
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    Have you become more introverted and anti-social as your health declines?

    I don't take any anti-depressants. I tried several different AD's & they did nothing. I figured, if they don't work, why take them? My Dog is a real help. I talk to her alot! Call me crazy, I don't care. She is also good to make me excercise. She is an Australian Cattle Dog & they are very...
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    Have you become more introverted and anti-social as your health declines?

    I know I've become much more introverted. It started back in late '04 when my health really started failing. I still keep in touch with a few of my friends but nothing like I used to. I'm at home most of the time. If I go out its usually to go to a DR app't. or to the pharmacy to pick up a...
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    What's the mucus look like?

    Pre-trans I constantly coughed up thick, sticky light green mucous. I would bring up anywhere from 1/4 to 1/2 cup in a 10 hr. period. I used to have a sputum culture collection cup in the console of my Peterbilt truck; that's how I knew exactly how much I would cough up in a shift. Even with...
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    Marijuana and CF

    djraitz: Like you, I weighed only around 100-110 lbs all through high school. Right now, I weigh 120 lbs at age 48. For a while, I was up to 137 lbs. Here's how I did it: I drink one Coke a day. Not a 44 oz. Thirstbuster, one 12 oz can of Coke. Every night before bed I'd eat at least 5 ginger...
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    Relationships.....how can you make it last?

    It seems a CF'er with an overwhelmed spouse is a common thread here. Mine tells me she feels oerwhelmed constantly. I just tell her that I'm going to die in debt. It doesn't matter how hard we work, scrimp & save, we'll never dig out from my medical bills. We were never legally married...
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    6 years post transplant TODAY!

    HAPPY TRANNIVERSARY! Sorry it's already over on your side of the country but I just now had time to check thos site. I hope you thoroughly enjoyed your day, and here's to many more!
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    Letter to my Donor, please help

    I felt compelled to answer this one... My Donor was a 17 year old male from San Jose, CA. That is all I know of him. I was 41 when I received his gift. About 2 months post-trans I wrote to the Donor Family. First I expressed my condolences for losing their son. After that, I thanked them for...
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    New Lungs

    Welcome to 'The Club'. I hope your transplant will be 100% successful. A little advice: I've heard that most times if rejection occurs its because the patient failed to take immuno-suppressants regularly. You MUST take all the drugs your doctors tell you to & you MUST do them on a regular...
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    When did you start to decline?

    I didn't really 'Hit The Wall' until I was around 39- almost 40. When I did, it was a very rapid decline. I went from working between 45 to 65 hrs. a week to not being able to work in around 1.5 years. If I would have known I was going to live this long, I would have taken better care of...
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    Fun & Games with the ol' G.I.!

    Hey y'all... When I had my little 'wreck' in Idaho, the GI did a colonoscopy to make sure there was no damage to my colon. When I got home, my GI here in AZ looked at the report & informed me I had a polyp that had to be removed. While it was not cancerous at this time; if left alone it would...
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    Relationships.....how can you make it last?

    Amber, you're a big part of why I check in with this site at least every other day. Thank you for your kind words. I have to say though; this must be a 'Mutual Admiration Society' because I DO admire you! I know some of what you've had to overcome & yet you keep pushin' on through. You are a...
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    Smoking Pot/RSO Oil

    I hadn't even thought about the cancer potential involved with marijuana. Since I've had a transplant, obviously I'm taking immuno-supressants. Those damn things are KNOWN to cause cancer. In fact, I've already had Melanoma. Even though I've pretty much 'hidden' from the AZ. sun all my life, I...
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    Just wanted to say hello

    PJ- Like you, I never reached out to others with CF until I found this forum. There are times when this is unbelievably therapeutic. I've been prety amazed at that; I never thought that associating with other 'CF'ers' would actually help. I 'll send you a private msg with my e-mail address...
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    Relationships.....how can you make it last?

    Thank you Lilmac1177. I appreciate your words of wisdom. I hope you have a satisfying, long & happy life...:o
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    Relationships.....how can you make it last?

    Man, this kinda hits close to home. There are times I feel more worthless a gun with no bullets. I think its even worse for a man. I was forced to medically retire on March 1st of '07. Now, disability is my only income. My Wife works 6 days a week, any where from 12-14 hours a day. I...
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    Gross, embarrassing things that come with CF!

    I know the feeling! In 23 years with my Wife, she's seen & had to do things no Wife should ever have to see/do. She's slept of a 'window sill' in my hospital room for just short of a month post-transplant. She's literally had to wipe for me when I've had multiple IV's in both arms & hands...
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    Gross, embarrassing things that come with CF!

    The awful, stinky gas has got to be the most prevalent annoyance. When I had my old lungs, the gross mucous I was constantly hacking up & spitting had to run a close second. When my gut 'goes down' the nasty bowel production is pretty nasty. I sometimes can't believe my Wife keeps me around...
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    Smoking Pot/RSO Oil

    I'm very calm. All I'm trying to get across is that the idea of smoking anything that has tar in it is usually a pretty bad idea for someone with lung disease. It might be for you, but it aint for me. Even if I do decide to use marijuana medicinally, I will not smoke it.
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    Just wanted to say hello

    Boy, I can sure relate to you Peter! I suffered a lot of self-destructive tendencies when I was younger. I think it was partially due to being told I probably wouldn't live to see 'This Age' or 'That age'. Now, if I knew I was gonna live this long I sure woulda taken better care of myself...
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