Search results

I don't even worry about it. Sometimes I get gas pain that will double me over, but it usually passes soon. We DO burn a lot of incense! It does more than just mask the bad smell, it almost banishes it. Like Uncle Mick always said, 'If you can't fart in front of a woman, she aint worth...

You're right. If you're able to work, you need to have job satisfaction. I figure you're going to spend about 2/3 of your waking time at work. (When I was working, I spent even more than that.) To go to a job that you hate is a fate worse than death. I was lucky; I was able todo what I loved for...

My Transplant Team has me on Prednisone & Voricanizole (Sp?) Prednisone is part of the anti-rejection regimen, Voricanizole is an anti-fungal. I contracted a fungal infection from my donor. Problem with Voricanizole, it's horribly expensive. Fortunately, Pfizer has a program where if you meet...

I guess I don't go to a 'clinic'. Whenever I have CF issues, I see either my CF Pulmonologist or my Transplant doctor. It strikes me as kind of risky to go to a CF clinic with no appointment; especially if you have to sit around for 3-4 hour waiting to be seen. That's an awful lot of time to...

I can honestly say I know how you feel. In all, I've had 7 chest tubes. I have nerve damage from 2 thoracotomy surgeries. These surgeries have caused chronic pain. I think you should go to the ER first. See if they will do something there. I had to do that same thing when I was in ID last...

I wonder how this will affect those of us who have had a transplant & are unable to work. VIVA OBAMACARE!

Oh, man... This really sucks. There is (was) another man in my home town who had CF & a lung transplant. He had his transplant at age 21. Today, at the age of 38, he was killed in a single-vehicle accident. That really sucks to have gone through all he did medically only to be killed in this...

Give up my dog? No way! My dog is part of why I'm still alive. She was just a puppy when I started getting really sick. I was dying. When we got this Austrailian Cattle Dog puppy, she had so much personality I kept telling myself, 'I can't die now, I gotta see how this dog turns out!' She has...

It looks like your boyfriend is not leaving you any options. I would simply lay down the law. You must be informed if anyone is sick or else you don't attend, period. End of story. This is not a matter of inconvenience for you, it is a matter of life & death. I know exactly what you're...

I would follow up with endo for sure. Those sound like pretty high readings for fasting. If its that big a concern to you & to his CF doctor its probably a good idea. At the worst, you'll know just where he stands.

Good Lord! Reading these horror stories makes me grateful to have been admitted to Good Samaritan Hospital in PHX. whenever I had exacerbations. The only meds I was ever forced to do on my own were enzymes. The respiratory therapy techs were always timely. The only problems I ever had have...

I had staples, 69 on the outside & dissolving sutures on the inside. I sure felt it when those staples came out! My scar(s) aren't too bad. I've got 7 scars from chest tubes along with many more small scars from laproscopic surgeries so when I take off my shirt its a mess...

I'd like to ask a dumb question, if I may. When someone with CF has a G-tube, can they still eat or is all food taken in via the G-tube? Thanks, 'Pat'.

Yea, I'd take a look at something like that. More importantly, you may be able to educate kids your age. Best of luck with this...

You should be able to get any help with apps & help filling them out if necessary from the Social Worker at your CF PUlmonologist's office. Hope this helps!

We'll make arrangements so you can check out pics. I hope this helps you. I'll be 8 years post-trans on June 16 '13.

Don't worry, it will heal up. If you'd like, I'll send you 'Before & After' pics of my scar. Since I'm a male, it may give you an idea of what the entire scar looks like. From what I understand, a ladie's breasts cover a pretty good part of th scar. I know a woman who had a heart problem...

When I was 19 yrs old I wanted to follow my Dad's bootsteps & be a US Army helicopter pilot. When I tried to join the Army, I had to sign a form under penalty of perjury that I had no physical limitations I was hiding. After the main physical, there was an interview with a doctor. (I believe...

I've always hated the time I've had to waste on a nebulizer. Pre-trans I was spending1-1/2 hrs. twice a day on a nebulizer. I was pretty disappointed to find out that post-trans I STILL spend around 30 min. a day on the neb. I guesss that's just what we have to do.

Oh yea, don't get me wrong; there is way more help out there for 'us' then there used to be. I've been dealing with this crap since I was 18 yrs. old. That's 30 freakin' years! I thank God daily for my doctors, the nurses who have made my life so much better, etc. And, I don't begrudge them a...