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I am very fortunate to have the best girl in the world in my life. My Wife (she IS my Wife, even though we've never been officially married) has literally slept on a window sill in my hospital room for 3 weeks. She has sacrificed in every way possible to help me through the decline I (we)...

Nicotine use for a person with CF is a bad idea, no matter what the delivery vehicle is. Nicotine constricts blood vessels & can speed heart rate. When your body is already stressed because of CF, you just don't need another stress. I would think using an e-cig, a regular cigarette or chewing...

I have nothing to offer here except 'THANK YOU LL! ' You wrote a concise guide to 'Poopiedom'. I appreciate that. Hope all's well with you & yours, 'Pat'.

As tempting as the sauna/steam room is, there is no way I would be willing to attempt enjoying that for myself. It just isn't worth the risk in my mind. My advice is probably worth just what you paid for it, but here it is...

I have suffered with insomnia my entire life. It didn't matter when I was trucking, because I could set my own hours. Now, with all the anti-rejection drugs & the rest, the insomnia is worse. My GP prescribed Ambien & thank God I've been sleeping pretty good. Sometimes I still have trouble...

I think your child has the right to absolute privacy in this matter. I couldn't tell anyone for years that I had CF because the job I did demanded a physical. I would have been physically disqualified if the whole world knew of my condition. You are absolutely right in this. Whoever posted that...

Hello my little blog. I figured I should update this thing. I just wanted to say that I am finally starting to feel better after the battle with 'C-Diff'. This hasn't been a fun row to hoe. Its been a real bitch. This little bug really knocked me to my knees. I finally finished all the oral...

That is one thing I really like about this site; we can all be honest with each other because so many of us have the same problems! I think it does help a bit to have a place to go where you can let these issues 'air'. For better or worse.

I was very fortunate; CF didn't affect me too bad as a child. I've always had the digestive ailments that go with CF. For whatever reason though, I never really seemed to get too down about it though. One time, on a field trip in first grade, we took a train ride from our town to the next few...

Yes! I had a transplant & I STILL have asthma! I hate it. I'm usually in pretty good shape after a couple of 'hits' off a Xopanex inhaler.

I went quick. I went from working 45-60 hrs a week to being unable to work in a matter of 3 months. Fortunately, I was only listed for 6 mos. & 1 day before I received my transplant. There is no way I would have made it for another month if I hadn't received my trans. when I did. Unfortunately...

My dog is part of why I'm still alive. We got her as a pup when I started getting really sick. She has so much personality I kept telling myself "I can't die now, I gotta see how this pup turns out!' She has not disappointed. I've always had Australian Cattle Dogs. That is probably a bad idea...

Thank you Autumn- I hope you know how much I appreciate the well-wishes I get from you all the time. I appreciate all the help we can get. Thank God I'm recuperating, albeit slowly. It seems like its getting harder & harder to bounce back after every little medical drama. This crap is really...

Its been another 'interesting' 2 weeks here on the Ol' Rancho. On 5/28 Becky was in WI visiting her family. I was home, holding down the fort. Everything was fine & dandy until around 0830 on the morning of the 28th. I woke with the worst cramps & abdominal pain I've ever experienced. I laid...

So sorry for your loss, you & yours are in my prayers. Cystic fibrosis SUCKS! I've been dealing with this monster for 49 yrs. now. Its not getting any easier. It gets harder each day. Now, even after a double-lung transplant, I'm still failing. I just spent another week at UMC in Tucson after...

Chronic pain is a life-altering ordeal. I had no idea that chronic pain could be caused by my transplant & subsequent removal of most of the donated right lung. Prior to my transplant, I was already suffering chronic pain because I had a dead left lung. I've been suffering with chronic pain...

I think I'm the first male to post a reply here. I can tell you, men get it too. Pre-trans I would be so out of breath I felt like (& sometimes I did) pee myself. That really sucks when you're a man. I had no idea how to deal with it other than taking a change of pants & underwear to work...

Congratulations, & THANKS.

Holy cats! What symptoms have you been 'enjoying'? My Wife sums up all my problems thusly, 'He's (me) an OldGuy with CF!' I'll be 49 on the 31st. I REALLY feel like I've aged an awful lot since '03. The last 10 years have not been kind. Best of luck to you; if you've lived this long with CF...

OK- I get that, thanks. I have the genetic report and it is very technical & hard to read. The only things I could get from it is I have DF508 & CFTR2. So- is CFTR2 the 'other' mutation? My CF doc's 'Main Lady' told me that there are only 8 people on the planet with the same combination of...