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Do you have a dog? You'd be amazed at how good a dog will help you feel. We lost 2 of our dogs in the year before I was listed. Its a shame they don't live as long as we do. We knew we couldn't live without a dog so my Wife surprised me with another Australian Cattle Dog puppy. She has so much...

Man, reading about these doctor visits makes me glad my doctor visits really are bordering on pleasant. When I go to my CF doc, I talk with his nurse for a bit first. She is one of the most helpful people on my Medical Team. I can't say enough good things about her. Then I talk to my Social...

When I was in first grade, our class took a field trip to the next town over on a passenger train. My egg-donor (biological mother) really couldn't find it in herself to get off her dead ass & give me the care I needed. Thus, I wasn't taking enzymes. I suffered from loose & very greasy stools. I...

I had my double-lung transplant 8 years ago. A man I knew in my hometown had CF & a lung transplant. He lived for 17 years post-trans. He was tragically killed in a vehicle accident last April. He seemed like he was in pretty good shape before he was killed. I sure wouldn't worry about being one...

I'm too busy trying to take care of myself to worry about other diseases. At this stage, trying to stay out of the hospital has become a full-time job for me.

Oh man, that really sucks. Scoliosis runs rampant in my Wife's family. Her brother & 2 of our nieces have it. Her brother & one niece had to have the corrective surgery. I would advise that you find a way to get your platelets up so they can do the surgery. Keep singing! That is excellent work...

Ultram helps a bellyache? How so, does it just take away the pain or does it actually 'fix' the problem? They wanted to do a colostomy on me when I had C-Diff- just a 'temporary' one to allow my colon to heal. I told 'AINT NO WAY!!!' My ATV riding buddy has a colostomy because of rectal cancer...

I think all CF'ers have this 'Buddha Belly' problem. I know I've had it all my life. I can't tell you how many times I've been called an Ethiopian. Skinny arms & legs, ribs showing & yet I still have a big gut! I have no idea how my Wife could consider me even somewhat physically attractive. At...

Hi Aileen! How are your PFT's at your young age? Are you in pretty good shape? I'm quite a bit older than you, have lived with CF all my life. I was diagnosed at birth... I've had to undergo a double-lung transplant. Its OK though, the trans so far has added 8 years to my life! Anyway, you take...

Wouldn't you know... I go braggin' about how good I'm feeling yesterday & today I wake up with a bad-ass bellyache! I know exactly what happened. My doctors in Tucson urged me to lower my enzyme intake because if I don't, they're going to damage my colon eventually. Well, I just didn't take...

Naw, we don't do any snow-mobiling, but I sure love riding my ATV in the snow! We get lots of snow in the mountains just south of town. We don't get much here in Globe, but plenty in the Pinal Mountains! I have tons of snow ride pics on my Facebook page. If you wanna friend me, you can see all...

I'm pretty tickled today... I finally cranked up my ATV & went for a little ride in the Pinal Mountains. It felt so good! This is the first time since February I've felt good enough to get out & go for a ride. I put on 31 miles today. It was beautiful up on the mountain! When I left home it was...

I was a truck driver for 23 years. I spent 5 of those years truckin' cross-country. I've been to all the lower 48 states & driven in every major city in the nation. The last 10 years of my career I worked for a small, family owned trucking company. I pulled an end-dump & flatbed with them. We...

Thank you Autumn! Once again, you come through with positive thoughts & ideas & I really appreciate that. The good news is the U of A will continue post-transplant care. I don't have to find a new coordinator & all that happy crap. Someday I might change to St. Joe's, but for now I'm going to...

Marriage problems are bad enough; marriage problems with & because of CF must be awful. I hope you can reconsider & try to reconcile with your husband. I know that coping with CF takes more than one. There's no way I could have done it all these years without my wonderful Wife in my life. I've...

Yea, I'd say CF'ers do need more sleep. When I was younger & still working I could get by with less than 8 hrs. of sleep, but I never felt GOOD when I skimped on sleep. Since I'm no longer able to work, I can pay more attention to what my body needs & yes, I need at LEAST 8 hrs. of sleep to feel...

We got a letter in the mail today from the University of Arizona Transplant Program. It said they were ceasing their transplant program as of July 10th. The funny thing is, we received this letter on July 17th! Thank God there is another transplant center in Phoenix. Actually, this will probably...

So sorry for your loss. Nathan & your family will be in my prayers. There are no words that will bring you comfort, but please know there are people out here that care.

Congratulations! You're right, that IS a big thing in our community. So many of us can't get married without endangering our medical care & leaving surviving spouses alone & destitute after we're gone. That just happens to be a major issue at our house lately. No problems with my lady & me...

This is nice; we had a major holiday with no major crisis! We really enjoyed the 4th. We went to my former boss's house for a BB-Q & fireworks viewing. They have a great view of the fireworks where they live. They BB-Q'ed chicken, hamburgers & hotdogs. It don't get more American, White Trash...