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Happy 34th! Here's to at least 34 more. Yea, birthdays are a pretty important celebrations for us with CF, huh?

I saw the movie today. I think it's a must-see for any of us suffering with CF. Thank you for letting me know about it. May God bless all of us suffering with this horrible disease. T here are plenty of days I just get fed up with it; right up to my eyebrows. Just this week, CF caused me to...

Oh man, I remember those days all too well. Pre-transplant my breath seemed like it was just awful. I used to chew tobacco too, so I'm sure that didn't help. Gave up the Copenhagen (tobacco) back in '99. Since I had to have something in my mouth all the time, I started chewing gum all my...

Hi Natasha! Welcome to the website. When I started participating on this site, it was the first time I'd ever associated with others with CF. I've enjoyed the contacts, quite a lot! I use a Xopanex inhaler, & I used Albuterol via SVN before I had my transplant. Yea, both these meds make me...

Yes Jelly, I have the classic CF barrel chest too. It sucks because between the distended belly & skinny arms & legs, I was constantly teased when I was a teen-ager. Kids can be so cruel. I was called an Ethiopian, among lots worse. I hope you don't suffer through your teens near as much as I...

Yea, I thought that was kinda odd that a CF summer camp would let an avowed practicer of S&M be an entertainer there. Of course, it was in CA., right? I don't know how risqué they allowed him to be, but if I remember right, what they showed of him at the CF camp was a tad on the risqué side...

That's what I found most interesting... Obviously, I had never seen another naked man (or woman) with CF. Bob's body very closely resembles mine. Take out all the piercings, & I could be looking into a mirror. Now I know what my poor wife has to look at! Damn, is she a brave woman or what...

Has anyone else seen the documentary titled 'Sick' made by Bob Flanagan? Bob Flanagan was an artist who had CF. He died in 1997. This film is strictly 'Adults Only'. I think this movie would be offensive to most people. Do not allow children to see it. In fact, I am in no way endorsing this...

Alright! Thanks for the response(s). Chaos, yeah, my purse does look very military. It's OD in color and since AZ is a conceal/carry state, there is a pocket in my purse for a pistol, should someone choose to carry concealed. Steven, that's too funny! I have heard of men calling their vitals a...

Here's the latest: my G.I. performed a scope to go in to get the stones & sludge from the common bile duct. She couldn't do it. I'm sure everybody's heard of Diverticulitis. This is when the diverticula become irritated, inflamed, etc. I'm one of the few that has diverticula in the small...

Thank you, I appreciate your sentiments.

I just found an article online that says Gov. Jan Brewer restored AHCCS funding for lung transplants on April 1st 2011. As far as I know, that is still the case. However, AZ. has only one transplant team. The University of Arizona (where I had my TX) is no longer doing lung TX. They are still...

Having CF, especially if you have CF & diabetes, means you have to carry a lot of 'personal items' at all times. I'd like all the guys out there to let us know how you do it. Spouses & GF's are welcome to tell us what their Significant Other carries. Personally, I carry a Maxpedition Jumbo...

Welcome! I'm glad you decided to share your CF experience with us. This is the first CF oriented website I've ever been active with & I've learned a lot & met some very decent people via the website. I look forward to reading a bit about you & your CF experience. Have a great week, 'Pat'.

I suffer from night sweats pretty much every night. I've had a TX & since then, I haven't had any lung problems except when scar tissue forms. When that happens, I go for a bronchoscopy & get it cleaned out but even after that I STILL have night sweats! I hate it. None of my medical team seem...

One of the docs just walked in. He advised me the test they just ran a little while ago (an MRIC or something like that) shows that I have biliary 'rocks & sludge' again. That's more than likely the root of my problem. He gave me a choice: I can either stay in the hospital for one more day...

Yea, I think we just might hit Red Lobster on the way home. We love seafood!

If your ex is not going to oversee your daughter to make sure she gets her meds, she doesn't need to go to his house for any length of time. The dereliction of his duty to be a FATHER & make sure his daughter stays healthy is a very serious problem. As far as I'm concerned, it's child abuse...

Thank you, I appreciate your concern & compassion for me (& all of us 'CF'ers'). Good news, I get out of the hospital today! I have tons of follow-up crap to attend to, gonna have to put a lot of miles on Lil' Blue (my Ford Ranger 4X4 truck) in the next week but oh well. If that's what it...

Yee-Haw! I'm getting out of the hospital today. They've done tons of tests. Now they're thinking the cause of the fever is CMV. CMV is a virus I caught from my donor. I had a flare-up once, back in '06. I was a sick puppy then, not so much this time. I guess it's pretty hard to diagnose this...