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When I was a child my Mom fed 7 kids & worked a full-time job outside the home. She really didn't have time to separately cook for one child with CF. If I didn't like what was being fed for supper, I didn't eat. I'm glad it was done like that. I think it made me realize that no one was going...

Thank you both, I appreciate your well-wishes. Yea, most people cry like little weenies when they hit 50, while those of us with CF are tickled pink just to have lived that long & have some semblance of health remaining! I hope the younger people that suffer with this damnable disease will see...

Wow... Who'da thunk it? I turned 50 yesterday. It was the best birthday I've ever had. We had a section in my favorite Mexican food restaurant reserved for the party. It had around 30 seats in it. The party started at 1PM. At around 1:15 I got up & started walking to where my former boss was...

I was in the pilot program for Pulmozyme back in the early/mid 90's. The whole time I was on Pulmozyme, I did it twice a day. That's how my doc prescribed it. I had a dramatic turn-around when I started using Pulmozyme. Honestly, I believe it played a huge role in my survival until I could...

You're right, that WAS an incredibly dumb thing to do. I think your cigarette addiction is mostly a mental thing. I really doubt you could become physically addicted to nicotine after just one or two cigs. As for pot, I asked my CF doc about it. He said he didn't think it was a bad idea unless...

Hey there! It's good to know your son is having some great FEV1's. Always nice when CF is involved. Before I had my transplant, there were many times I had pain mostly in the upper lobes, but sometimes in the lower lobes as well. We finally figured out the problem: Pleurisy. Maybe you could...

Well, here we go again, same chapter, different verse. I just got done with a 5 day stint at Good Samaritan Hospital in PHX. I started running fevers again, along with vomiting every time I tried to eat. After 3 days of inability to keep any food down, the 'Better, More Sensible Half' DEMANDED...

Well said. Yea, regardless of one's personal battles, we ARE all in this together. CF sucks, period. Our best to you all, fighting The Fight.

Becky & I went to PHX yesterday for an appointment with my CF Pulmonologist. I've had this particular doctor on my medical team for the last 15 or so years. He's really a great doctor & we trust him inherently. The appointment went real good. My PFT's were up 5% since the last time I had them...

I've had many bronchs. So many, I can't remember them all! We did have a negative consequence from one bronch, but all-in-all, they have been a very necessary tool for diagnosis & maintenance. Like any surgical procedure, there is some risk involved. Honestly, I wouldn't worry too much; as...

If you ever get near Phoenix, AZ. let me know. I'm interested in your project. Best of luck to you.

Encourage her to hang on 'til they can get her a new set of lungs. I underwent a double-lung trans on June 16, 2005. I'm still alive to tell you about it. When I had my trans, I was in the hospital for a month afterward. From what I understand, they've got this procedure down to where many...

I had headaches for years before we finally figured out what the problem was. Even though when I'd have an oxcimeter put on every time I'd go see my doctor & it showed anywhere between 90-94% sats (As time went on, sats got lower of course; up until I needed transplantation.) I still wasn't...

Does anyone remember a little over a year ago when a young man named Mark Fischer was looking for CF patients to interview for a book he was writing? He interviewed Becky & me via 'Skype' a few times. I tried to get in touch with him a few months back to see how his book was coming along, I...

We've lost another one. This really sucks. Our condolences to Rami's family & friends. May God grant him eternal rest & peace.

Hi Max. First, I hope you're feeling better. Second, it sounds like you either took too much or too little enzymes for what you ate. If you're just starting to take enzymes, you may have to kinda experiment with the amount you have to take with each meal. What kind of enzymes are you taking...

Hey Brad. Thanks for your response. Yea, it seems no matter how hard we work, we're just stuck. This is something 'normal' people seem to have a problem understanding. Even members of my immediate family, my brother for instance, don't understand. They only know part of the physical aspects...

Let me preface this by saying I'm not the type to whine about having CF. I was born with it, that's just the way it is. Not long ago, however, I was thinking how bad CF really sucks. Thanks to my having CF, Becky & I have been robbed of so many things 'Normal' people take for granted. We...

So sorry for you loss. Losing a younger brother has got to be a rough one to take. You're in my prayers Sweetie.

Hannah, when I was still able to work, I had to spend somewhere around 1-1/2 hrs. doing treatments in the morning, before I went to work. I would then grab something to eat on the way out the door & then put in my 12-14 hour work day. I ate my lunch going down the road. (I was a truck driver)...