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    Missing you

    There is nothing I can say that will make you feel better. Please accept my sincere condolences. I'm sorry for your loss. I hope & pray you will feel better. Please know your son is in a better place now. He's no longer suffering from this bitch of a disease.
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    malabsorption and belly fat

    I know exactly what you're talking about. All my life I've had a big rib cage, skinny arms & legs, etc. etc. All the classic physical characteristics of a white male with CF. And, post-trans I've been on Prednisone so that's probably the reason for the fold of belly fat. I don't know how...
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    Celebrating 7 year Transplant anniversary!

    Happy 'Tranniversary' Amber! We're so happy for you. When is your wedding? Congratulations, <3 Becky & Pat...
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    vapor nicotine

    Yes, chewing tobacco is bad for people with CF. I dipped Copenhagen snoose for over 20 years before finally kicking the habit. Any nicotine delivery vehicle is bad for us with CF. That includes any vapor delivery system. It's not so much the dippin' snoose that is the problem; the problem is...
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    What to do when the call comes....

    We got the call at 0200. Since we had a 130 mile drive to get to UMC Tucson, we just jumped in the truck & split. I drove. My Wife didn't even have a bag packed, even though she had ample warning. I guess I'd do it the same way if we had to do it all over again. I guess the only change I would...
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    Tattoos

    I got mine 20-some years ago. Post transplant I was told emphatically, 'NO' so I just haven't. At this stage though, I think if I get struck with the urge to get a third tattoo, I'll do just that. I suppose if you're really concerned, I'd ask my doctor. I hope this helps. Of course, free...
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    chronic pain

    Yes. I've had to deal with chronic pain issues since my transplant. As we all know, when surgery is done, lots of nerves are cut. If the wrong nerve just happens to be in the way, oops... Chronic pain may be a result. In my case, they hit a big'un! (Or three.) It happened again after I had a...
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    Lungs "in a box" Cool article (does show picture of lungs, if you are squeamish)

    I sure wish that technology would have been available when I was transplanted. I probably wouldn't be running on less than 1-1/2 lungs right now. The time the donor lungs were outside the body was a huge part of why I've had so many complications. I will not live nearly as long as I could have...
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    RIP Richard Weiss

    Rest in Peace. He fought the Good Fight.
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    Am I the only diaper dependant cf'er?

    Pre-trans I would 'borrow' my Wife's panty liners on occasion. I would get so winded at times a little pee would leak. If I had a particularly hard bout of coughing, Stuart Little would leak even more. You want to talk about emasculating... I was always VERY grateful I never got in a wreck in...
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    Liver issues, continued...

    I hope everybody is well & enjoying life to the fullest. I spoke with my transplant coordinator yesterday. I had blood work done so she called me to let me know about my Gengraf levels. All is well. I asked her about my liver numbers, she said they're OK. My problem is this: she also told me...
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    Is having CF a good enough reason to get a Medical Marijuana Card?

    I've often thought of applying for a MM card myself. I think it would help with my appetite, I have none, along with the other issues you raised; depression, etc. Really, as long as you're not smoking it, I don't see why not. If I do start seriously thinking about getting a MM card, I will...
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    How bad is smoking pot?

    I can tell you that truck drivers are subject to random drug tests, anytime, anywhere. I used to think I only had to worry about a random when I was in my home terminal, St. Paul, MN. Then a few times when I called dispatch for my next load, I was told to proceed to a lab in Atlanta, among...
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    How bad is smoking pot?

    Smoking ANYTHING is a bad idea when you have a chronic lung disease. Should you fail a pre-employment drug screening, you will not be hired. I've never heard of police being called & a person being arrested for failing a drug screening. As far as I know, police can't use that as evidence to...
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    Apology.

    Now that everybody seems to have cooled down a bit, myself included; I would like to apologize to everybody involved for language I used on this forum back in late Nov./early Dec. As we all know, there are some subjects that stir emotions to a boiling point. I allowed myself to be overcome & I...
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    ADA violation at 'MasterCuts', Mesa, AZ.

    Thanks Liza. Yea, I got in touch with Corporate. They offered me a free haircut. I told them, thanks- but no thanks. My Sis-in-Law is like a bulldog when something like this happens. She is very familiar with my situation & all the physical crap I've had to deal with. She called me & gave me...
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    ADA violation at 'MasterCuts', Mesa, AZ.

    On Monday, 13 Jan. I walked in to the 'MasterCuts' franchise inside Superstition Springs Mall in Mesa, AZ with the intent of getting my hair cut. (Fancy that!) There was one other customer in the store. She was an elderly lady & was getting her hair colored. The fumes from the dye were almost...
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    Happy New Year

    Happy New Year to you all. May you have a Happy, Healthy & Uncomplicated 2014.
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    Happy Thanksgiving.

    I'd like to take this opportunity to wish you all a Happy Thanksgiving. Lord knows we all have much to be grateful for. To those of you in the hospital over this holiday, get better soon & I hope you'll be suckin' down some belated turkey with all the trimmings soon. Our best to you all...
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