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    Treatment Procedural Question (Pulmozyme)

    Paula- I started doing aerosols when I was about 3 or 4 years old. Before that, my mom did do CPT on me. It was done as a preventative thing. I'm seeing many more little, little kids on here who do aerosols from a very young age, so I think maybe protocol has changed since I was little. Jena-...
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    picc line/tune up questions

    I think it would be best to be honest with Jason about the PICC/IVs and NOT to spring it on him right before you go into the hospital. Try to emphasize how much better he'll feel afterwards, and that IVs are not a punishment type thing, but instead a good thing for him. I was first in the...
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    working mom of a cf child

    Sally, If you have any other questions I'd also be happy to answer. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Acidophilus and Antibiotics

    I don't take acidophilus daily, but I do eat at least one container of yogurt a day (I only like ONE flavor of ONE brand, but luckily I love that one flavor). Yeast infections are a problem, but I usually only get them with IV or oral antibiotics, not inhaled (like Tobi). If I get oral thrush...
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    life expentancy

    Thanks Roo! <img src="i/expressions/face-icon-small-smile.gif" border="0"> That's kind of a bummer that the government has a 'deal' with that one hospital. Ugh sometimes government annoys me! (ours in the US too LOL)
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    whoops

    I'm in NJ America, and have off from school this week so that's good! Nothing much happened today, but I've been having a fun week.
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    what are you doing

    I think she didn't write anything because her topic name said it all-- "what are you doing?" Right now, I'm doing aerosols. Thrilling right?
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    picc line/tune up questions

    I am always sedated for my PICC insertions. I haven't had any trouble with them, knock wood. I also do home IVs and am a pro now. Some meds are 3x/day, some are 4. If your son is up to it, he can go to school, provided scheduling works out. I prefer to stay home, rest and focus 100% on getting...
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    working mom of a cf child

    Brandi- You know you're my pal, but please, stay out of this one. I never thought attacking you was really 'justified' but when Amy is telling me that my mother is a bad parent, I have a right to set her straight. I also think she expressed herself very clearly despite being over the internet...
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    vegan diet

    To each his (or her) own. Personally, I would (or maybe that's COULD) never be a vegetarian, but let's keep the topic on getting adequate nutrition while being a vegan, since Mezzanine has her heart set on it, and that is what she asked about. Her reasons for being a vegan were just an aside.
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    life expentancy

    Slightly random question- are there centers in Ireland who do lung transplants? I ask out of curiousity, but also because a family friend of ours has a cousin back in Ireland (coincidentally with the same last name as my mothers maiden name) with CF who got a lung transplant and had to go over...
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    finally a name

    Well I shield my waffles with my life ( I don't quite get the waffle thing, but I'll just go with it), but even though they do not touch my waffles, sometimes anonymous posting bothers me. If they don't sign their name, that is. I think people will post things that they wouldn't have the guts to...
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    working mom of a cf child

    Amy, there is NOT always a way to stay home. The alternative to having my mother (a single parent) working was for us to live on the street because we would have had no income. My mom returned to work when I was 2 (when my parents were divorced) and from then until kindergarten I had full time...
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    trumpet

    I also play flute. I don't think I will make a career out of it or anything, but for that's not really the point. I enjoy being in school band (except for fall band and our football game uniforms <img src="i/expressions/face-icon-small-smile.gif" border="0">), and the flute is good respiratory...
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    life expentancy

    <blockquote>Quote<br><hr>Makes perfect sense that the mutations in Ireland could be generally more severe. <hr></blockquote> Very interesting though. My mom is 100% Irish (immigrant grandparents) and my dad is predominately Irish, and I am hit very hard by my CF. I never really thought of the...
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    Hospital Stories/Rude People Stories

    Yeah.. it was so satisfying to yell at that woman. I'm pretty good about standing up for myself in situations like that. Sometimes you hear someone say something though and can't really say something back, since it would look lik eavesdropping. Once I was at a restaurant with my best friend...
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    Hospital Stories/Rude People Stories

    Ruuuuuuude person story here, from just last night: My friends and I were at the movies, and we were leaving. Well, the cold air hit me hard and I started having a bad coughing fit-- hiccuping, fighting not to puke too, the works. So I'm leaning on a parking meter, my friend is rubbing my back...
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    upset with cf team

    I'm so glad you are happy with the new team! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    picc line or not to picc line?

    I'm the opposite of Emily. I've had no trouble with PICCs at all *knock wood*. I've had... probably 10 at least, and no problems with them, except once in the hospital it clotted when a nurse claimed it didn't need a heparin flush because it had a valve, but I knew it did despite the valve, and...
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    Children

    Men with CF have trouble having children Brandi... their vas deferens (I'm pretty sure they are tube-like things that carry the 'fluids') are either clogged or non-existent. So sometimes they have trouble having children the 'conventional' way.
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