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Jarod, anonymous is serious, at one photo shook a couple of years ago for an album cover she posed with a pig... I think she suckled it in a few shots. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Numbers being down refers to PFTs (as Emily said) most often, but can also refer to SATs (oxygen saturation levels). I've never had trouble with being unable to control bodily functions- I burp and fart more than most, but it isn't a problem in my life really (when I was younger, it used to be...

It is called a fecal fat test, Emily <img src="i/expressions/face-icon-small-smile.gif" border="0">. Basically, you poop in a big bucket for 3 days (either not taking or taking enzymes, depending if they are determining if you need more or less). You can do it at home, except the poop has to be...

I don't think CF should be listed under possible symptoms, but maybe under possible causes? If there is such a category, it may be a good idea to reccomend CF be listed under it. <img src="i/expressions/face-icon-small-smile.gif" border="0">

This has been bothering me and its not something I can bring up in conversation with people who aren't on this board... The sad face is really ugly/weird! <img src="i/expressions/face-icon-small-sad.gif" border="0"> See? I also wanted to see all the icons, so ignore this part.... <img...

Julie.. Just curious which one of your is a member of the military... I know for drafts, CFers are exempt in 4F (F4?) because of the CF, but can a CFer willingly enlist? Just curious <img src="i/expressions/face-icon-small-smile.gif" border="0">

The chat is open to registered users only. Registering is free and easy. Emily's right Jaime, you need Macromedia

Just wanted to add... I'd prefer not to post my email or instant message addresses on here, but if you'd like to talk with me, I'd be happy to contact you.

Shamrock-- this is just what I've heard-- NG tubes can exacerbate inflammation and cause congestion, which would not be good for a CFer. I was advised against them pretty much.

Haha... I see where your mom is coming from, but I think the 70ish degree room surrounding the formula balances the ice out to a degree. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Told you I'd be back! 1. Does having CF limit your activities? In the past, I had no trouble with activity, but now I get short of breath more easily. When I'm well I can walk around (hills, stairs) without problems, but when my numbers are down, I get short of breath doing that sometimes...

I've had that problem and it is really unpleasant! Mine I think is just because I am full of formula, because it doesn't happen during other coughing fits.... I can't say I've found any really good solutions for it, except to use your stomach muscles to try your best not to throw up (resisting...

It doesn't bother me. It can be awkward, but I actually like telling the expectant parents that it is not the end of the world...and I'd imagine it's great for them when they see CFers in high school, college, graduating, getting married, having kids of their own, working in good jobs, etc. The...

Maria and Emily are right, a more specific question will be more helpful, because honestly, I looked at your topic title and said "How DOESN'T CF affect a family?" I'm glad you've been looking around the forums, and appreciate the fact you aren't just exploiting us on here to get information...

I was also in the Tobi study. I've had on and off ringing in the ears when I am on Tobi. They monitor my hearing cause of it, and if I get ringing I stop Tobi.

<blockquote>Quote<br><hr>well said...are you sure you are fifteen? <hr></blockquote> Yep, I'm 15 Luke.... 16 in April. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'm so glad you like the quote, Maria. It's from one of my favorite songs in Rent, "Another Day". I love Rent! I still cry every time I see it, because some of the songs, even though they are singing about having AIDS, really hit home for me with CF and all. It's a good cry though- makes you...

If you don't intentionally smoke around me, it doesn't bother me if a person smokes. If they get emphysema or lung cancer, I would feel some priority over them in terms of a lung transplant. I think smoking in public places should be banned (it pretty much is around me though, so I don't think...

Yes, the vests have different sizes, but you also have to be old enough to handle the shaking to get the Vest. I got mine when I was 4 or 5 (right when they came out).

Marie, In CF there aren't any set severities/stages, like there are in cancer with levels 1-5 or anything like that. However, severity varies greatly within the CF community. I am probably considered to be on the more severe end of that spectrum. I had my first IVs at age 5. But, there are...