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    Maria?

    Maria-- thank you so much for your compliments, you are so kind. <3 Mott- Any relation to the apple company Mott family?
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    looking for someone who has CF to help me

    Lacey- maybe when you said 'keep the mucus down' you meant the amount of mucus, but in theory the Vest is meant to help you brng mucus UP and out of the lungs
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    Having more children?

    What does "some sort of dissability" mean exactly? I had an English teacher who had misshapen fingers (though they were fully functional), and she lives a 100% normal life except for the sole fact she has misshapen fingers. If that is included in your percentage, I think that percentage does not...
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    18 month old spitting enzymes out

    I can't say I have any advice about this at the moment (need to confer with my mom), but I too did the same thing. By the time I was a few months old I would eat the applesauce and push the little balls of enzyme out onto my lips. Obviously, my mom got around ths somehow, I just need to ask her how.
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    I need information

    Hi Mott, I hope Logan does not have CF, as I'm sure we all do. You asked about a typical day for a CFer, so here's mine. When I wake up, I do a series of aerosolized medications (bronchodilators, mcus thinner and sometimes an antibiotic), after which I do some form of airway clearance (manual...
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    Project People

    What irks me almost as much as the vague, broad question posts are some of the answers given. Just a few days ago someone asked about CF on the teen boards, and someone said if you do your treatments, CF is "Sweet" and no big deal. That answer is not factually correct- if CF was 100% manageable...
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    chicken pox!!!

    It's possible to get the chicken pox twice. There is a certain minimum number of pox you need to get to be considered immune to the virus (I think its 20). If your first time around you didn't get that many pox, you are still susceptible to get them again
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    Medi-balls

    Thanks Joann, I'm glad I can be of help.
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    Maria?

    Hi Maria-sorry to hear Sami is on IVs again. If it makes you feel any better, I've been on IVs on my birthday more than once), on Easter, and once on my birthday when it happened to fall on Easter. Hopefully you'll bwe finished soon with them for a long time. I have all these thoughts after...
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    My Birthday!

    Happy Birthday, fellow Aries! You better change your signature now to Debbie 24 with CF!
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    Medi-balls

    I have used the same technology too and found that the med is done when they outer laywr of the ball deflates and inside you can sort of see a rod-like shape left (I hope that made sense). I can't think of an example of a med that can't be used right now, but I do know they exist since I once...
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    CHAT

    For some people, despite following doctor's orders and being a compliant 'good' patient, CF isn't "sweet". If it were a totally manageable illness, people wouldn't die of it, now would they?
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    Cf and religion

    To the poster who attacked Emily-- at least have the conviction enough to stand behind what you said with a anme,. Emily and I are good friends and she is kind, witty and most definitely doing something with her life, she's going to school in an intensive ASL program to be an interpreter. She's...
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    THE BEACH

    I LOVE the beach. The salt air does something for me. I think there have done some studies showing salt air to be benficial to CFers or at the very least, to those with lung problems. The bach just seems to make me clear out.
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    Terri Schaivo

    Julie, Terri had struggled with weight and it is believed her collapse/heart attack was caused by potassium imbalance caused by years of bulimia and bulimic tendencies.
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    need some advice...

    The reason you are reading mostly about younger people with CF is because the average life expectancy is only 32. Are you sure you are speaking of cystic fibrosis? I ask because I've never heard of a 94 year old with cystic fibrosis, the oldest was 70-something and died last year. How were you...
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    That new Burger King Sandwich and the Today Show

    I just wanted to point something out that is kind of interesting. The Whopper from Burger King is 700 calories, so this new sandwich only has 30 more calories, which in the scheme of things is equivalent to 1/4 of a snack size package of pudding-- which is not much. If they are all up in arms...
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    i am 16. .i can honestly say im not scared

    No hard feelings. To each his own.<img src="i/expressions/face-icon-small-smile.gif" border="0">
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    That new Burger King Sandwich and the Today Show

    I agree!! New Jersey has this bill I heard about on the news that they want to pass, where nutritional values are on all restaurant menus. I was thinking, "Okay, that's not bad", until they said "The hope is, wth the nutritional information on the menu, restaurants will use less cream, butter...
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    When were you dignosed with CF?

    You worded that correctly Barbara, and I've heard the same thing. <img src="i/expressions/rose.gif" border="0">
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