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In vitro studies have shown that it works on all gating mutations. It may also work on other mutations (specifically Class IV & V mutations) but studies have not been published.

Here is a facebook post that includes info about the timelines for the drugs (it's near the bottom of the first really long paragraph): https://www.facebook.com/groups/153375788050316/permalink/303066253081268/

Here is a facebook post that includes info about the timelines for the drugs (it's near the bottom of the first really long paragraph): https://www.facebook.com/groups/153375788050316/permalink/303066253081268/

I am so, so sorry. I am thinking of your family and sending out prayers for peace and comfort during this time.

I am so, so sorry. I am thinking of your family and sending out prayers for peace and comfort during this time.

I would prefer someone who reads journal articles and keeps up to date on research, regardless of age.

I would prefer someone who reads journal articles and keeps up to date on research, regardless of age.

I use the Avent Iq24, but I paid like $60 for it...maybe they don't make it anymore? I also have a Nuk baby bottle sterilizer that was included with my first shipment of Cayston - that works too but the Avent holds more stuff. I think any steam baby bottle sterilizer would work.

I use the Avent Iq24, but I paid like $60 for it...maybe they don't make it anymore? I also have a Nuk baby bottle sterilizer that was included with my first shipment of Cayston - that works too but the Avent holds more stuff. I think any steam baby bottle sterilizer would work.

Alisha, I am so sorry you are dealing with this! I'm glad Jenny was able to give you some advice and I hope that helps, otherwise I agree with everyone that going to the ER associated with the CF center would be best. Thinking of you!

Alisha, I am so sorry you are dealing with this! I'm glad Jenny was able to give you some advice and I hope that helps, otherwise I agree with everyone that going to the ER associated with the CF center would be best. Thinking of you!

According to a quick search on Google and the prescribing information in my box of Pulmozyme, your OB is incorrect and it is a Pregnancy Category B. I would definitely take it during pregnancy.

WOW. Imcomudrox and DrRoe, thanks for sharing! DrRoe, I hope Kalydeco makes a big difference for your son!

WOW. Imcomudrox and DrRoe, thanks for sharing! DrRoe, I hope Kalydeco makes a big difference for your son!

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SIcklyhatED</b></i><i>. Out of curiosity, how ARE people going to get/are getting Kaly from their insurance? If you do, you can argue with my...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SIcklyhatED</b></i><i>. Out of curiosity, how ARE people going to get/are getting Kaly from their insurance? If you do, you can argue with my...

Ditto everyone Lauren - thank you so much for taking the time for participating in the trial. I so, so wish that you had not gotten placebo. And ditto Incomudrox - I have not heard of anyone with G551D who has had a difficult time getting the drug (in the US). There just aren't that many people...

Ditto everyone Lauren - thank you so much for taking the time for participating in the trial. I so, so wish that you had not gotten placebo. And ditto Incomudrox - I have not heard of anyone with G551D who has had a difficult time getting the drug (in the US). There just aren't that many people...

I voted. Good luck! I'd also love to read your entry <img src="i/expressions/face-icon-small-smile.gif" border="0">

I voted. Good luck! I'd also love to read your entry <img src="i/expressions/face-icon-small-smile.gif" border="0">