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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> but he was concerned about it not being approved for my mutation (yet) </end quote> Concerned for safety? Or efficacy? If it's...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> but he was concerned about it not being approved for my mutation (yet) </end quote> Concerned for safety? Or efficacy? If it's...

I am so sorry your family is going through this. Sending lot of thoughts and prayers your way.

I am so sorry your family is going through this. Sending lot of thoughts and prayers your way.

Amy, I'm impressed that your doc is willing to prescribe it for you. My insurance says they will cover it off-label, but my doc was still hesitant to prescribe it for me, even though I have R117H. (He said he didn't want to be the roadblock to me getting it, but he was concerned about it not...

Amy, I'm impressed that your doc is willing to prescribe it for you. My insurance says they will cover it off-label, but my doc was still hesitant to prescribe it for me, even though I have R117H. (He said he didn't want to be the roadblock to me getting it, but he was concerned about it not...

I have done azithromycin twice - the first time it made me feel a lot better but tore apart my stomach. My stomach hurt so much that I was more miserable overall, so I stopped taking it. That was over 5 years ago. Three months ago my doctor asked me if I wanted to give it another try, so I did...

I have done azithromycin twice - the first time it made me feel a lot better but tore apart my stomach. My stomach hurt so much that I was more miserable overall, so I stopped taking it. That was over 5 years ago. Three months ago my doctor asked me if I wanted to give it another try, so I did...

Hmmm, that is weird. I'm pretty sure the numbers are based on Sex, Age, Weight, and Height, but I don't think they change that dramatically even if you do have a birthday or gain/lose weight. Could the new clinic have entered something wrong into the computer? I can't answer the question about...

Hmmm, that is weird. I'm pretty sure the numbers are based on Sex, Age, Weight, and Height, but I don't think they change that dramatically even if you do have a birthday or gain/lose weight. Could the new clinic have entered something wrong into the computer? I can't answer the question about...

It is a tough decision! I agree that coming up with a plan in advance is a great idea. You are lucky you have family close that can help. My CF doctor said having a good support system is the most important thing. For me, pregnancy was easy and did not affect my health at all (but I do have...

It is a tough decision! I agree that coming up with a plan in advance is a great idea. You are lucky you have family close that can help. My CF doctor said having a good support system is the most important thing. For me, pregnancy was easy and did not affect my health at all (but I do have...

<div class="FTQUOTE">Originally posted by: Angel2393 Y&eah but I was not sure if i COULD take it , if it will mix or give me bad reaction/ Why don't you call your doctor and ask?

I started Cayston last May and I think all of my heads still work - I get a new one with each treatment cycle and I haven't been good about keeping track of which one is which, if that makes sense. How do you know if one still works? My RT said that I should toss them if they treatments start...

I started Cayston last May and I think all of my heads still work - I get a new one with each treatment cycle and I haven't been good about keeping track of which one is which, if that makes sense. How do you know if one still works? My RT said that I should toss them if they treatments start...

Also, the Abstracts from the CF conference are here: http://onlinelibrary.wiley.com/doi/10.1002/ppul.v45.33s/issuetoc

Also, the Abstracts from the CF conference are here: http://onlinelibrary.wiley.com/doi/10.1002/ppul.v45.33s/issuetoc

Ditto Anomie - if you have a gating mutation or R117H, it is worth talking to your doctor (and/or you could look into the clinical trials they are starting this year). The prescribing info for Kalydeco specifically says that it does not work for doubleDF508.

Ditto Anomie - if you have a gating mutation or R117H, it is worth talking to your doctor (and/or you could look into the clinical trials they are starting this year). The prescribing info for Kalydeco specifically says that it does not work for doubleDF508.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Two things: The original manufacturer of the Eflow said not to use antibacterial because of residue issue I believe. I do not steam sterilize the head in the steamer? Do you all? Why do that...isnt' that the point of...