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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Two things: The original manufacturer of the Eflow said not to use antibacterial because of residue issue I believe. I do not steam sterilize the head in the steamer? Do you all? Why do that...isnt' that the point of...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> Thank you all. I am going to wash it best I can, bring a tiny plastic container into the park and wash the metal head part at least then sterilize everything when we get to the hotel at night. Now-Do I really have...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> Thank you all. I am going to wash it best I can, bring a tiny plastic container into the park and wash the metal head part at least then sterilize everything when we get to the hotel at night. Now-Do I really have...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SarahProcter</b></i>If I am reading it correctly, they tested it with a subset of gating defect mutations, and it helped for almost all of them, but not for one of the ones tested. </end quote> What is said was that the potency...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SarahProcter</b></i>If I am reading it correctly, they tested it with a subset of gating defect mutations, and it helped for almost all of them, but not for one of the ones tested. </end quote> What is said was that the potency...

dramamama, I tried to quote you but I couldn't get it to work properly. Anyway, I know that about gating mutations, but I thought they were doing additional trials so that it could be approved by the FDA for other mutations. From CFF.org: "Vertex is planning clinical trials of Kalydeco in...

dramamama, I tried to quote you but I couldn't get it to work properly. Anyway, I know that about gating mutations, but I thought they were doing additional trials so that it could be approved by the FDA for other mutations. From CFF.org: "Vertex is planning clinical trials of Kalydeco in...

Thank you for that explanation!

Yes, I was on Cipro for 90 days and got C. diff. My main symptoms where diarrhea, especially after eating, stomachaches, and weight loss.

Yes, I was on Cipro for 90 days and got C. diff. My main symptoms where diarrhea, especially after eating, stomachaches, and weight loss.

Can you tell that it helps you? If so, how? Do you cough less? Get sick less often? Have more energy? I have been taking PharmaNAC for about 6 months, and I can't really say that I am noticing a difference in my health. Other things, like hypertonic saline and pulmozyme, I can definitely tell...

This is so wonderful!!!! I thought they just approved it for G551D? I thought they were doing additional trials for the other gating mutations. I'm curious to hear from those with G551D how the insurance approval process works - will insurance start covering it right away?

This is so wonderful!!!! I thought they just approved it for G551D? I thought they were doing additional trials for the other gating mutations. I'm curious to hear from those with G551D how the insurance approval process works - will insurance start covering it right away?

My understanding is that we do not have to sterilize right away. I use three handsets a day and clean each one with tap water and dish soap right away, but then I put them on a paper towel until the end of the day, when I sterilize all three handsets at the same time. However, I will also...

My understanding is that we do not have to sterilize right away. I use three handsets a day and clean each one with tap water and dish soap right away, but then I put them on a paper towel until the end of the day, when I sterilize all three handsets at the same time. However, I will also...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anien2</b></i> About that connection between weight and health for CFers... I am not an expert, but I think it is in the oppositte direction, it is not that CFers who weight more have a better health, but CFers with a better health...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anien2</b></i> About that connection between weight and health for CFers... I am not an expert, but I think it is in the oppositte direction, it is not that CFers who weight more have a better health, but CFers with a better health...

Oh, I thought of another one: I can't even count the number of times I've gotten phone calls for my parents to remind them about their daughter Kristen's appointment at CF clinic! LOL

Oh, I thought of another one: I can't even count the number of times I've gotten phone calls for my parents to remind them about their daughter Kristen's appointment at CF clinic! LOL

I have a cat allergy and own one cat (it was two cats until last year). I take zyrtec for allergies and am getting allergy shots (I just started the shots a few months ago, so it's too soon for me to tell if they help). I also removed the carpet from the bedroom and don't let the cat in there.