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  1. E

    my hypothesis on the mechanism behind the clubbing of fingers

    Finger clubbing related to digestion is interesting! As I said earlier, growing up I had GREAT lung function but always had clubbing. My digestion as a kid, however, was always really bad. I was always having belly aches and it took several years to get my enzymes right. I wonder if it's a...
  2. E

    my hypothesis on the mechanism behind the clubbing of fingers

    It makes perfect sense that lung function and the clubbing are related, though I don't quite know how. Mutation alone also makes sense as I, too, have ALWAYS had clubbed fingers (not toes so much), even as a child when my lung function was nearly perfect for my age and weight/height. I didn't...
  3. E

    my hypothesis on the mechanism behind the clubbing of fingers

    It makes perfect sense that lung function and the clubbing are related, though I don't quite know how. Mutation alone also makes sense as I, too, have ALWAYS had clubbed fingers (not toes so much), even as a child when my lung function was nearly perfect for my age and weight/height. I didn't...
  4. E

    my hypothesis on the mechanism behind the clubbing of fingers

    It makes perfect sense that lung function and the clubbing are related, though I don't quite know how. Mutation alone also makes sense as I, too, have ALWAYS had clubbed fingers (not toes so much), even as a child when my lung function was nearly perfect for my age and weight/height. I didn't...
  5. E

    m. abscessus and fevers

    I do have/see an infectious disease doc. She's the one who prescribed the tigecyl and cefoxitin. She and my CF doc are working together on this one. She's also the one who is having my latest culture sent to texas. Right now, though, it seems like we're all at a stand still. Meanwhile, my fevers...
  6. E

    m. abscessus and fevers

    I do have/see an infectious disease doc. She's the one who prescribed the tigecyl and cefoxitin. She and my CF doc are working together on this one. She's also the one who is having my latest culture sent to texas. Right now, though, it seems like we're all at a stand still. Meanwhile, my fevers...
  7. E

    m. abscessus and fevers

    I do have/see an infectious disease doc. She's the one who prescribed the tigecyl and cefoxitin. She and my CF doc are working together on this one. She's also the one who is having my latest culture sent to texas. Right now, though, it seems like we're all at a stand still. Meanwhile, my fevers...
  8. E

    m. abscessus and fevers

    hey all! I know some of you here culture m. abscessus or have kiddos that do. I remember reading that those of you that do, get fevers (or have in the past) like me. Well, I am currently doing IVs for this infection. I've been on these IVs since October of this passed year (and got my first...
  9. E

    m. abscessus and fevers

    hey all! I know some of you here culture m. abscessus or have kiddos that do. I remember reading that those of you that do, get fevers (or have in the past) like me. Well, I am currently doing IVs for this infection. I've been on these IVs since October of this passed year (and got my first...
  10. E

    m. abscessus and fevers

    hey all! <br /> <br />I know some of you here culture m. abscessus or have kiddos that do. I remember reading that those of you that do, get fevers (or have in the past) like me. Well, I am currently doing IVs for this infection. I've been on these IVs since October of this passed year (and got...
  11. E

    pharmacy choice

    Hey there! Great question! First of all, in my 25 years of experience, I've found that retail pharmacies are the worst! When I was little, we first got everything from a Walgreens type drug store. My meds were ALWAYS terribly expensive and the pharmacy couldn't always get them in a decent...
  12. E

    pharmacy choice

    Hey there! Great question! First of all, in my 25 years of experience, I've found that retail pharmacies are the worst! When I was little, we first got everything from a Walgreens type drug store. My meds were ALWAYS terribly expensive and the pharmacy couldn't always get them in a decent...
  13. E

    pharmacy choice

    Hey there! <br /> <br />Great question! <br /> <br />First of all, in my 25 years of experience, I've found that retail pharmacies are the worst! When I was little, we first got everything from a Walgreens type drug store. My meds were ALWAYS terribly expensive and the pharmacy couldn't always...
  14. E

    Antacid

    I was using prevacid and loved it. Prevacid worked great for me but several months after I started using it, my insurance changed and would only cover prilosec OTC. I've been using prilosec OTC (30mg) once a day for years now, and it works just as well as the prevacid did. The only thing I've...
  15. E

    Antacid

    I was using prevacid and loved it. Prevacid worked great for me but several months after I started using it, my insurance changed and would only cover prilosec OTC. I've been using prilosec OTC (30mg) once a day for years now, and it works just as well as the prevacid did. The only thing I've...
  16. E

    Antacid

    I was using prevacid and loved it. Prevacid worked great for me but several months after I started using it, my insurance changed and would only cover prilosec OTC. I've been using prilosec OTC (30mg) once a day for years now, and it works just as well as the prevacid did. The only thing I've...
  17. E

    glucerina shakes/snacks

    Hey guys! I recently posted something asking about what those of you that have cfrd do when you're on prednisone. I'm having such bad sugar spikes that swallowing air seems to put my blood sugars into the 400s. I'm very insulin resistant while on prednisone. I've always been curious about the...
  18. E

    glucerina shakes/snacks

    Hey guys! I recently posted something asking about what those of you that have cfrd do when you're on prednisone. I'm having such bad sugar spikes that swallowing air seems to put my blood sugars into the 400s. I'm very insulin resistant while on prednisone. I've always been curious about the...
  19. E

    glucerina shakes/snacks

    Hey guys! <br /> <br />I recently posted something asking about what those of you that have cfrd do when you're on prednisone. I'm having such bad sugar spikes that swallowing air seems to put my blood sugars into the 400s. I'm very insulin resistant while on prednisone. <br /> <br />I've always...
  20. E

    prednisone and CFRD

    Hey guys! So, I've been on prednisone for the last couple weeks. I was weaning down from 60 mg and am now at a stable 30mg a day (not weaning any further yet). My blood sugars are OUTRAGEOUS. I've been in touch every couple of days with endocrine and every time it's the same thing; increase the...
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