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    SSDI...Renewal? Volunteering? Vacationing?

    Thanks for asking this question. I too have been curious about the 3 year review. I'm right at the 3 year mark and have actually been healthier in the years since I quit working. I have not been hospitalized or on IVs for almost 2 years. I have used nebulized antibiotics quite frequently so...
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    Hcg levels

    Hi Robin, No, neither should directly effect hcg levels. However, I have heard that certain antibiotics can have an effect on HCG levels, so indirectly I suppose there is a chance. Certain cancers can also change HCG levels. Other than that, birth control and fertility meds are the only...
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    Do you like the new CFF logo?

    Blah, I totally agree. Maybe it will grow on me?
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    Port Spewing Blood

    Hi Maggie, I'm sorry this is happening! Ugh. That sounds really scary. I would definitely have it checked out further before removing it but it sounds likely that it needs to come out. What did they do in the ER to determine it needed to come out? I just lost my port a week and a half...
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    Port removal on Monday morning

    I'm back! :) Everything was easy peasy. I fed Maya just before they took me back. They were really accommodating and understanding. I was worried they would think I was crazy! They ended up giving me so light of a dose of twilight anesthesia that I never fell asleep. I just felt super calm...
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    Port removal on Monday morning

    Thanks a bunch mamaScarlett! Yes, I had checked out Kellymom and bookmarked the page about anesthesia/sedation. It looks to reiterate exactly what I was told. It's nice to know that between the breastfeeding medicine specialist, kellymom, and Dr. Hale's info. we can figure pretty much...
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    Port removal on Monday morning

    Caroline, Thank you SO much for your words. They bring me more comfort than you will ever know. ;) So good to have it reinforced that breastfeeding after anesthesia is perfectly safe. As I said, I completely trust the breastfeeding medicine specialist, but I was still feeling a tad bit...
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    Port removal on Monday morning

    Hello again everyone! Don't necessarily know that I'm looking for specific info or advice, more of just a venting of my anxieties! But if you have any advice/info/support I'd love to hear it! :) I had my monthly port flush last week and we could tell something was awry. Flushed slower and with...
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    New vest without compressor?

    I saw that also. It looks really interesting. I have a GK 3 percussor that I love. I sometimes use in addition to or in place of the vest. I'm hoping maybe someone has some experience with the vest version but I have yet to hear of anybody using it. The idea of not having the compressor...
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    Question about email I got from cysticfibrosis.com

    Wow Jenny, that is a weird coincidence! I'd have been a little freaked too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I got the same email and took the survey. I haven't ever purchased a spirometer.
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    Pari neb compressor

    Thanks Liza. I did the same thing with my Pulmo-Aid, just bought out of pocket. I wanted the old school Pulmo-Aid again because prior to the Pari Trek I had a Pulmo-Aid that had lasted me 10+ years. I maybe should have contacted Pari directly, but since I had got it from the DME supplier I...
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    Pari neb compressor

    Hello again everyone! Quick question. I have had a Pari Trek S for about 3 1/2 years. It actually quit nebulizing properly a year or so ago and I have been using a Pulmo-Aide I bought out of pocket since. After reading on here that Pari's have a 5 year manufacturer warranty I called the medical...
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    Nurse Case Manager through the ins.company

    Thanks so much for all of your replies! I'm really glad to hear several of you had positive experiences. I didn't figure someone who worked for the insurance company would ever go to bat for me, so I'm glad to hear they did for you. Jenn, that is great that you had someone so helpful! I'm...
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    Nurse Case Manager through the ins.company

    Hi everyone, I changed to United Healthcare through my husband's employer in January. Yesterday I got a letter from a Nurse Case Manager saying she had been assigned to my case and is available to help me "manage my disease". Ha. It also said she has been trying to reach me by phone, which she...
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    Nurse Case Manager through the ins.company

    Hi everyone, I changed to United Healthcare through my husband's employer in January. Yesterday I got a letter from a Nurse Case Manager saying she had been assigned to my case and is available to help me "manage my disease". Ha. It also said she has been trying to reach me by phone, which she...
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    Breastfeeding and CF

    Hi Kross, I am currently breastfeeding my 6 month old and everything has gone really well. Just as Marisa said though, it was a little tough in the very beginning. Don't be afraid to ask the nurses/lactation consultants for help in the hospital. Be prepared to check your modesty at the door...
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    Indulge for a Cure - CFF fundraiser in Southbury, CT

    Awesome Lauren, wish I lived closer! Thanks for all the work you do for the cf community!
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    Indulge for a Cure - CFF fundraiser in Southbury, CT

    Awesome Lauren, wish I lived closer! Thanks for all the work you do for the cf community!
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    IVF

    Congratulations! So exciting!
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    Using Vest while pregnant

    Congrats to you!! I also used my vest right up to the end- during early labor. I wanted to get a treatment in right before heading to the hospital because I knew it could be a while until I got my next one! I'm glad I did because boy was labor a lot of work! I actively pushed for about 3...
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