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Bill, it's true that your dose works for YOU, and since it's effective and has been safe, you should not change a thing. :-) However, it's *also* true that your dose raises the risk for a condition called fibrosing colonopathy. Due to this well-documented risk, the guideline is used for...

Bill, it's true that your dose works for YOU, and since it's effective and has been safe, you should not change a thing. :-) <br /> <br />However, it's *also* true that your dose raises the risk for a condition called fibrosing colonopathy. Due to this well-documented risk, the guideline is...

A couple sprint cups will make it easy to keep the cups separate from what you use for Pulmozyme, but you can also consider marking the pieces of a few of the regular pari cups with dots (I use sharpie and the dots last a long time before starting to fade, even with washing and boiling) to tell...

A couple sprint cups will make it easy to keep the cups separate from what you use for Pulmozyme, but you can also consider marking the pieces of a few of the regular pari cups with dots (I use sharpie and the dots last a long time before starting to fade, even with washing and boiling) to tell...

A couple sprint cups will make it easy to keep the cups separate from what you use for Pulmozyme, but you can also consider marking the pieces of a few of the regular pari cups with dots (I use sharpie and the dots last a long time before starting to fade, even with washing and boiling) to tell...

Emily's fev1 went up nearly 10% when she started Pulmozyme and stayed up~ the only change we'd made was adding that.

Emily's fev1 went up nearly 10% when she started Pulmozyme and stayed up~ the only change we'd made was adding that.

Emily's fev1 went up nearly 10% when she started Pulmozyme and stayed up~ the only change we'd made was adding that. <br /> <br />

As posted, when the first IRT is elevated it is VERY often proven not to be due to CF. It was a real balancing act trying to set a cutoff level that would catch most babies with CF and not yield more false positives than already seen. They are often due to carrier state, and in some cases...

As posted, when the first IRT is elevated it is VERY often proven not to be due to CF. It was a real balancing act trying to set a cutoff level that would catch most babies with CF and not yield more false positives than already seen. They are often due to carrier state, and in some cases...

As posted, when the first IRT is elevated it is VERY often proven not to be due to CF. It was a real balancing act trying to set a cutoff level that would catch most babies with CF and not yield more false positives than already seen. <br /> <br />They are often due to carrier state, and in...

Yes, bugs like this can come and go. Without illness I agree with your choice not to want to treat. I am just a parent like you, not a medical professional, but if your dr is in agreement here, I support this choice- our clinic does not treat everything unless it's causing a problem. I would...

Yes, bugs like this can come and go. Without illness I agree with your choice not to want to treat. I am just a parent like you, not a medical professional, but if your dr is in agreement here, I support this choice- our clinic does not treat everything unless it's causing a problem. I would...

Yes, bugs like this can come and go. <br /> <br />Without illness I agree with your choice not to want to treat. I am just a parent like you, not a medical professional, but if your dr is in agreement here, I support this choice- our clinic does not treat everything unless it's causing a...

Your daughter is guaranteed to at least be a carrier, since you had no 'normal' cftr gene to pass on to her. It's just a matter now of whether or not her father passed on a mutation. Her test will show 3819+10kbc>t <b>or</b> r668C from you, and either nothing else <b>or</b> a 2nd mutation from...

Your daughter is guaranteed to at least be a carrier, since you had no 'normal' cftr gene to pass on to her. It's just a matter now of whether or not her father passed on a mutation. Her test will show 3819+10kbc>t <b>or</b> r668C from you, and either nothing else <b>or</b> a 2nd mutation from...

Your daughter is guaranteed to at least be a carrier, since you had no 'normal' cftr gene to pass on to her. It's just a matter now of whether or not her father passed on a mutation. <br /> <br />Her test will show 3819+10kbc>t <b>or</b> r668C from you, and either nothing else <b>or</b> a 2nd...

CF is an autosomal recessive disease. This means you have to inherit a mutation from each parent in order to have the disease. Inheriting a mutation from one parent makes you a carrier. So yes, your daughter would have your mutation as well as the same one as her dad. There are only extremely...

CF is an autosomal recessive disease. This means you have to inherit a mutation from each parent in order to have the disease. Inheriting a mutation from one parent makes you a carrier. So yes, your daughter would have your mutation as well as the same one as her dad. There are only extremely...

CF is an autosomal recessive disease. This means you have to inherit a mutation from each parent in order to have the disease. Inheriting a mutation from one parent makes you a carrier. So yes, your daughter would have your mutation as well as the same one as her dad. There are only extremely...